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Thread: I may be starting over with a New Doctor~~~whew!

  1. #31
    Join Date
    May 2010
    Posts
    345

    Than- you all!!

    I just want to say that I reached Dr. Lenke's scheduling nurse, and she took information from me. She gave me fax numbers and addresses for these local surgeons to send my records and things to HER. She said this way they won't lay on some desk somplace and not get looked at. Her name was Naomi. And as soon as she gets what they send, another of Dr. Lenke's nurses will call me to ask some more questions. She seemed very efficiant and nice. Anyway, the ball is rolling. I so want to "thank you" guys for giving me supportive words and possitive information on Dr. Lenke. I need that right now. I have read great things about him and heard lots about him through this forum. I will have the screw taken out in a couple days. That will help the pain, I hope. Gentle Hugs to all~~Linda
    Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
    Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
    This started adult onset scoliosis
    July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
    Oct.20th 2010, extended rods to T4 / did osteotomy at L3
    Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
    May 30th 2013 revision
    May 8th cervicle surgery 2016
    May 31st Dr. Gupta revision 2017

  2. #32
    Join Date
    May 2009
    Posts
    3,745
    great to hear, Linda...
    now things can move in a positive direction...
    so glad you made the call...

    jess

  3. #33
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    So glad to hear that you're making progress. Wishing you the very best of luck.
    Jen
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  4. #34
    Join Date
    Oct 2007
    Location
    Indiana
    Posts
    1,974
    I'm excited for you, too, Linda. It looks like things are finally headed in the right direction. And about time! I'm praying for you.
    66 and still heartbroken...
    2007 52 w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
    5/4/07 posterior spinal fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
    Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

    Corrected to 15
    2014 DXd w/CMT (type 2)

    Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

  5. #35
    Join Date
    May 2010
    Posts
    345

    Oh thanks so much!!!

    Quote Originally Posted by Susie*Bee View Post
    I'm excited for you, too, Linda. It looks like things are finally headed in the right direction. And about time! I'm praying for you.
    Thanks so much for the prayers. It means a lot to me right now. What would we do without each other to lean on. It's so hard for family members to ride the ride clear through, without getting completley tired of hearing how bad we feel! I am hoping to hear more from Lenke's scheduling nurse tomorrow. I won't let up till I get in for an appt. I want my life back so bad, I can taste it! I think I am too young for this. Hope you are doing fine and in good spirit. I will post soon as I know more. God Bless~~~Linda
    Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
    Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
    This started adult onset scoliosis
    July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
    Oct.20th 2010, extended rods to T4 / did osteotomy at L3
    Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
    May 30th 2013 revision
    May 8th cervicle surgery 2016
    May 31st Dr. Gupta revision 2017

  6. #36
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,161
    Dear Linda,

    I am so glad to hear things are moving for you to see Lenke. You are definitely too young for all of this, and I know he will get you fixed up finally and on the road to recovery.

    Did you have that exposed screw removed?

    Please keep us posted.
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  7. #37
    Join Date
    Jul 2011
    Posts
    535
    Quote Originally Posted by leahdragonfly View Post
    Dear Linda,

    I am so glad to hear things are moving for you to see Lenke. You are definitely too young for all of this, and I know he will get you fixed up finally and on the road to recovery.

    Did you have that exposed screw removed?

    Please keep us posted.
    Sorry to go off topic here... Gayle, how are you feeling? How is your recovery?

    Warmly,
    Doreen
    44 years old at time of surgery, Atlanta GA

    Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
    Post-Surgery curves ~10 degrees, regained 4 inches of height

    Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
    2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!

    http://thebionicachronicles.blogspot.com/

  8. #38
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,797
    This week's Orthopaedics This Week newsletter has an article titled "The Top 28 Spine Surgeons in America". That list included Larry Lenke and Serena Hu. They were the only deformity surgeons who are commonly named on this forum, to be on the list. (To be fair, there are far more spine surgeons who do few, if any, deformity work. So, most of the surgeons surveyed probably do mostly much smaller surgeries.) They put together the information from surveying a comprehensive list of practicing spine surgeon, and asking the question "who among your peers do you think is at the top of your profession?"
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  9. #39
    Join Date
    May 2010
    Posts
    345
    Quote Originally Posted by LindaRacine View Post
    This week's Orthopaedics This Week newsletter has an article titled "The Top 28 Spine Surgeons in America". That list included Larry Lenke and Serena Hu. They were the only deformity surgeons who are commonly named on this forum, to be on the list. (To be fair, there are far more spine surgeons who do few, if any, deformity work. So, most of the surgeons surveyed probably do mostly much smaller surgeries.) They put together the information from surveying a comprehensive list of practicing spine surgeon, and asking the question "who among your peers do you think is at the top of your profession?"
    OMG!! That is so neat to know things like this. Thank-you Linda. You made my day!! I have heard good things about him~~~but this just Tops them all!! Thanks again for sharing this~~~ Have a great day! Linda
    Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
    Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
    This started adult onset scoliosis
    July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
    Oct.20th 2010, extended rods to T4 / did osteotomy at L3
    Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
    May 30th 2013 revision
    May 8th cervicle surgery 2016
    May 31st Dr. Gupta revision 2017

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