Hi all!!! My name is Andi and my 22 month old daughter, Odella, was diagnosed with congenital scoliosis in October. We were at her peds for her 18month well baby visit and I asked him to take a look at her back because I thought her spine looked curved. He agreed and sent us for xrays. The xrays came back showing a hemivertibrae at t5 and one at t9 (both in the same direction). She has ribs fused at t4-t5 and is missing a rib at t9. Her curve was measured at 30 degrees (left thoracic) from the superior endplate of t4 to the inferior endplate of t11. She also has a minimal right compensatory lumbar curve.
So hearing all of that freaked me out! We then had an appointment with an orthopeadic surgeon in November. He was awful (in my humble opinion). I am of the opinion that while you may be physically treating the child, you must also treat the parents, especially when the patient is so young and this man did nothing to make me at ease or feel okay about the situation. He basically told us to come back in one year. I then suggested that if I saw any change or felt something was different that I would make an appointment sooner and he said "no". He did send Odella for a renal ultrasound though and it was fairly benign with no real issues (unless debris in the bladder of an 18 month old is a problem--which I was told was not). They did no checks of her heart, he said that if her ped didn't hear anything on any of her check-ups, it wasn't necessary.
I was left very unsatisfied with all of this so I am getting her a second opinion. We go on Monday to a new doctor.
I am here to get any thoughts and opinions from those of you with any experience at all.