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Thread: After Extensive Surgery, How do I Manage Myself?

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  1. #1
    Join Date
    Jan 2012
    Location
    Laguna Woods, Irvine, CA
    Posts
    42

    After Extensive Surgery, How do I Manage Myself?

    Do people with complicated revisions live by themselves & if so, how do they care for themselves.

    No family nor friends due to issues. Saw 1 Dr last wk. in LA seeing Dr Bederman 22nd. Don't know if I told you but this is what 1st Dr said:

    Fused T4-S1, stopped counting loose screws,(holes too big/angels wrong), broken fusions,
    1. Never talked about the neck cause he ran out of time! That is an issue as well.
    1. Horrible infection in Thoracic, still on antibiotics
    2. Thoracic now sticking outwards (not to side) 50 degrees in maybe 6 months. Terrible pain to walk,I try mile/day. Can't stand up straight.
    3. Many fusions did not fuse (don't know exactly how many or where….was not told, forgot to ask.)
    4. Screws:Can pop through skin.(rest of issues above)
    5. Need bolt in Sacrum.
    6. Need anterior and posterior
    7. No family and I need to exercise daily and take care of myself.

    HOW? I have new email: peacefulgal@me.com

    All suggestions welcome

    Thanks!

    ReneeTina
    60 yrs old did scuba,lift & work. Miss all.
    1st t surgery,28 years. L4/5 fusion
    2nd surgery 10-19; went from 2 80%+ curves to 20% + 30%.T4-S1,38 screws (loose & angled wrong), 15 fusions many fusions did not take,& horrific had/have(?) infection.
    Lot of pain.

  2. #2
    Join Date
    Jan 2012
    Location
    Laguna Woods, Irvine, CA
    Posts
    42

    How do I manage myself?

    Why is nobody answering me? Reneetina
    60 yrs old did scuba,lift & work. Miss all.
    1st t surgery,28 years. L4/5 fusion
    2nd surgery 10-19; went from 2 80%+ curves to 20% + 30%.T4-S1,38 screws (loose & angled wrong), 15 fusions many fusions did not take,& horrific had/have(?) infection.
    Lot of pain.

  3. #3
    Join Date
    Jan 2011
    Posts
    197
    Do you have another thread going? If so, that may be why.

    It sounds like you will need to spend time at a rehab facility post-op until you're able to go home. Could you get a social worker or nurse to visit once a day? Maybe your insurance will cover it? I would suggest you talk with your surgeon about what they recommend. Best to you - it sounds really complex.
    Female, age 38
    4 years of bracing, concluded at 42*upper/38*lower
    currently 64*upper/40*lower
    Fused T3-L4 on Feb 23 2011
    now 32*upper/18* lower

  4. #4
    Join Date
    Jan 2012
    Location
    Laguna Woods, Irvine, CA
    Posts
    42

    After Extensive Surgery, Managing By Myself?

    Nobody is responding is any of them but thank you for reply. I will ck with insurance on Monday. Last time they did not have good rehabs around here. Reneetina
    60 yrs old did scuba,lift & work. Miss all.
    1st t surgery,28 years. L4/5 fusion
    2nd surgery 10-19; went from 2 80%+ curves to 20% + 30%.T4-S1,38 screws (loose & angled wrong), 15 fusions many fusions did not take,& horrific had/have(?) infection.
    Lot of pain.

  5. #5
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,690
    ReneeTina,
    I have to agree with everything Lily said. Obviously, it's preferable to have someone with you 24-7, but there are some on the forum who didn't have that luxury and got along. I don't think Ed had anyone with him. I have heard good things about Dr. B.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  6. #6
    Join Date
    Jan 2012
    Location
    Laguna Woods, Irvine, CA
    Posts
    42

    After Extensive Surgery, Managing By Myself?

    I have Melissa to thank for Dr. Bederman's name. Also want to thank you both for responding! Should I cancel some threads so I can keep better track or how does one keep track of their questions & answers? Thanks Reneetina
    60 yrs old did scuba,lift & work. Miss all.
    1st t surgery,28 years. L4/5 fusion
    2nd surgery 10-19; went from 2 80%+ curves to 20% + 30%.T4-S1,38 screws (loose & angled wrong), 15 fusions many fusions did not take,& horrific had/have(?) infection.
    Lot of pain.

  7. #7
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,690
    I used to start a new thread whenever I had a new question, but they were usually spaced fairly far apart. I think Linda has encouraged us to try to put most of our questions on one thread because of all of the spam issues.

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