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Thread: junctional kyphosis/cervical fusion

  1. #1
    Join Date
    Apr 2004
    Location
    Sydney Australia
    Posts
    64

    junctional kyphosis/cervical fusion

    Hi all,
    I had an S curve and I had surgery in 2005, first C7 to C4 and later T8 to sacrum. The surgeon was to go up to T3, but stopped at T8 because I was bleeding too much and he changed his mind about correcting the upper curve. Now I have junctional kyphosis, but it is not that bad. The upper scoliotic curve is 45 degrees. I have seen a few surgeons and some have said they would not operate. Finally I found one on the West Coast who is willing to do the surgery and who I trust.
    I would like to speak to someone who has had the upper curve corrected sometime after the lumbar and/or has a cervical fusion. I am wondering if I am going to lose mobility in my thoracic back. Surgeon says no, I would not notice a difference,but I would like to talk to someone who has had the surgery. The surgeon has several patients like me and showed before and after photos, but his assistant says I can not contact the patients until I agree to surgery.
    So, has anyone on this board had junctional kyphosis that had been corrected? Is anyone fused from C4 to sacrum? I would have only 1 or 2 non-fused segments.
    Here are some photos, they x rays were taped to a window, so you can see the trees in them
    Any advice is appreciated.
    Linda

    PICT0104.jpg
    PICT0105.jpg

  2. #2
    Join Date
    May 2009
    Posts
    3,745
    hi linda
    i do NOT understand the requirement of agreeing to surgery before speaking to his patients!!!!

    i had a consult with Dr Anand in LA 2 years ago.....
    he allowed me to contact a few of his patients (after they gave him the OK)
    and i did NOT plan surgery with Anand...he doesn't take my insurance...
    i do not see why you have to agree to surgery to speak to his patients...
    odds are you will only get to speak to patients who will say very nice things about the doctor anyway...
    but....i am suspicious of why you would have to agree to surgery first to talk to patients!!!

    jess

  3. #3
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,557
    Hi Linda

    We have a local up here that had PJK 5 years post on a T8-L4 fusion. She went and saw my surgeon, and he extended her up to T2 or 3. She is doing well.

    I e-mailed her....maybe we can get her to post.

    Hang in there...

    Check out my mobility thread in my signature. There are pics of me and Iím fused up to T2.

    Ed
    49 yr old male, now 59, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  4. #4
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,802
    Hi Linda...

    Do you have pain in the cervical or thoracic area? Just curious. PJK doesn't always lead to surgery. I've had it for at least 15 years, and have elected not to have it fused.

    I also don't understand why the surgeon's office told you that you'd need to sign up for surgery before talking to other patients. You could get around that by signing up for surgery, and then canceling if you decide against having the surgery.

    Regards,
    Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  5. #5
    Join Date
    Mar 2010
    Posts
    2,755
    Quote Originally Posted by LindaRacine View Post
    Hi Linda...

    Do you have pain in the cervical or thoracic area? Just curious. PJK doesn't always lead to surgery. I've had it for at least 15 years, and have elected not to have it fused.

    I also don't understand why the surgeon's office told you that you'd need to sign up for surgery before talking to other patients. You could get around that by signing up for surgery, and then canceling if you decide against having the surgery.

    Regards,
    Linda
    I'd be careful doing that, as some doctors charge a cancellation fee. I would find out first if he does, if that is the route you want to take.

  6. #6
    Join Date
    Mar 2008
    Location
    Liberty (KC), MO
    Posts
    4

    Similar situation

    I am glad you posted this question. I logged on today because I am considering making an appointment to talk to a specialist about revision of my surgery done in 1974. My S curve correction has slowly regressed back to about 44o in C and T areas and 25 at waistline. I am very scared due to my age and also worry about being able to turn my head as needed to continue driving. I too have been told by two specialists to leave well enough alone. But I have many problems, including finding a comfortable sleeping position, twisting and discomfort in my right shoulder, and burning pain frequently in tbe C curve. So I will follow your progress with great interest. Do you have any pain or discomfort?
    ROYANNE. Harrington Rod fusion 1974 age 34, Thoracic Lumbar curves reduced from 64/25 to 26/12, with thoracoplasty, at Rush, Chicago, Dr. DeWald. Rods removed 2001 in Columbia, MO. Curves now 44/44/20 (triple).

  7. #7
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,802
    Quote Originally Posted by rohrer01 View Post
    I'd be careful doing that, as some doctors charge a cancellation fee. I would find out first if he does, if that is the route you want to take.
    I've never heard of that being the case, but if there is a cancellation charge, they would legally have to notify you of such prior to booking.
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  8. #8
    Join Date
    Apr 2004
    Location
    Sydney Australia
    Posts
    64

    re: PJK/cervical fusion

    I have moderate pain in upper back and neck. The biggest problem I have is keeping my head up. I have some issues leaning forward and walking a moderate distance is uncomfortable. I am also aware of the cosmetic issues, I look hunched over and I can't straighten up. When I lie down on my back I can not get my head down
    flat and I need a pillow to rest my head.
    One of the surgeons said " If you have more surgery you won't have any leverage in your upper back" and that leads me to believe that I wouldn't be able to arch my back at all. Right now I can a little and that helps me get out of bed and I can twist a little which helps me when I'm driving. Even though I have cervical fusion I
    have 50% neck rotation, according to one surgeon.
    I hate the idea of another surgery. It took me 3 years to recover from the last one, mostly to get my energy levels back. Two surgeons said they can fix my problems, two said they wouldn't operate on me.

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