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Thread: The pop that was hear around the world

  1. #46
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,531
    Gayle

    I cant believe it either. sigh.

    The only thing you really can do is stay positive....What other choice is there? You know this is just a little setback......chances are that the cuts will be small so not as bad as the original surgery.

    You know that when they go around and fuse the front that it balances out the fusion.....the resulting strength is a sure bet for success....

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  2. #47
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,160

    Revision surgery delayed

    I was all set to go in for my revision Monday, staying as calm and positive as possible, my insurance company even came through by approving it in one day's time. Then today I got the dreaded news that my surgery was being bumped out to next Friday, Feb 3rd, due to an emergency case. I am extremely disappointed to be so close, now another week to wait. I have been stuck in this painful broken rod limbo for almost two weeks now.

    I am in daily pain and very limited in my activities. It hurts too much swim, hurts to walk, hurts to move around in bed, etc. I went back to work the last couple of days because I can at least get paid while I hurt, and I am less bored at work.

    Any cheerful thoughts are appreciated. I will try to stop feeling so sorry for myself now.
    Last edited by leahdragonfly; 01-28-2012 at 09:33 AM.
    Gayle, age 49
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    5/10 VBS Dr Luhmann Shriners St Louis
    5/16 6 yrs post-op, 24*T/ 22* L, mild increase in curves, watching

    also mom of Torrey, 12 y/o son, 16* T, stable

  3. #48
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,794
    Hi Gayle...

    Sorry that you have to wait another week.

    At work, I see patients being postponed for a bunch of different reasons, and my heart always go out to the patients. I think I can truly imagine how disappointing it must be.

    Hang in there. It will be over before you know it.

    Regards,
    Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  4. #49
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    Quote Originally Posted by leahdragonfly View Post
    I was all set to go in for my revision Monday, staying as calm and positive as possible, my insurance company even came through by approving it in one day's time. Then today I got the dreaded news that my surgery was being bumped out to next Friday, Feb 3rd, due to an emergency case. I am extremely disappointed to be so close, now another week to wait. I have been stuck in this painful broken rod limbo for almost two weeks now.

    I am in daily pain and very limited in my activities. It hurts to swim, hurts to walk, hurts to move around in bed, etc. I went back to work the last couple of days because I can at least get paid while I hurt, and I am less bored at work.

    Any cheerful thoughts are appreciated. I will try to stop feeling so sorry for myself now.
    I am so sorry to hear that . When I was going for my first surgery ,back in 2010, I went for pre-op testing and came to find out that I had diabetics. My surgery
    was postponed until my blood sugar numbers were under control. I had to wait from March 13th until May 4th. I was in so much pain and could do nothing about it until I could have the surgery. I am glad that your wait is not that long.
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  5. #50
    Join Date
    Oct 2011
    Location
    East Central FL
    Posts
    192
    Sorry to see this, Gayle. It's got to be awfully disappointing to be postponed. Glad it's a fairly short wait though. Sending prayers & all the best thoughts your way.
    Mom of 14yo son diagnosed Oct 2011
    Surgery 1/3/12 w Dr. Geof Cronen,
    Tampa General Hospital T3 to L1
    Jacob's pre surg curves: T58 & L31 12/28/11
    photos & xrays in "First-Time Surgery" thread "Before & After"

  6. #51
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,901
    Gayle,

    That was unfortunate. But just one more week. Hang in there.

    Sharon
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  7. #52
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,809
    So sorry to hear this, Gayle. Seems like you really can't catch a break (oh, sorry I guess that wasn't a cheerful thought!) but you know how much I am truly pulling for you!!!!

    Big Hugs,
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  8. #53
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,690
    Gayle,
    I am so sorry that you have this delay in the surgery. We will all be pulling for you!
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  9. #54
    Join Date
    Feb 2010
    Location
    Ohio
    Posts
    200
    Gayle,

    I'm so sorry that your surgery was postponed! I'm sure that the days drag when everything hurts. Hoping Friday gets here quickly for you. Sounds like Kristy did great, which I'm sure is encouraging for you.

    Best,
    Kathy
    Kathy
    46 yrs at surgery, now 50
    71 degree thoracolumbar curve corrected to 34 degrees
    8/2/2010 surgery with Dr. Lenke

    posterior T9 to sacrum with pelvic fixation

    4 osteotomies and 1 cage
    http://s1066.photobucket.com/albums/...athK_08022010/

  10. #55
    Join Date
    Mar 2010
    Posts
    2,755
    Cheerful thoughts definitely sent your way. Take Care.

    Rohrer01

  11. #56
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,809
    It's a little early, but I wanted to wish you all the best on Friday, Gayle!! Can't wait to hear that it's over and how well everything went :-)
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  12. #57
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,160
    Thanks, Maria. I am trying not to be nervous. We are leaving this afternoon for our hotel in Portland, and then surgery tomorrow. I'm still waiting to have the time confirmed. Tim will be updating my care page.
    Gayle, age 49
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    5/10 VBS Dr Luhmann Shriners St Louis
    5/16 6 yrs post-op, 24*T/ 22* L, mild increase in curves, watching

    also mom of Torrey, 12 y/o son, 16* T, stable

  13. #58
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445
    Sending you best wishes, thoughts and prayers also.
    Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  14. #59
    Join Date
    Aug 2008
    Location
    Indianapolis, IN
    Posts
    416

    Smile

    Sending good wishes your way! I know you will come through with flying colors and feel so much better. I admire you for going back to work with 2 broken rods, I was hurting so much and couldn't do much of anything that I had to go on STD right after they broke. Prayers your way ;-)
    May 2008 Fusion T4 - S1, Pre-op Curves T45, L70 (age 48). Unsuccessful surgery.

    March 18, 2010 (age 50). Revision with L3 Osteotomy, Replacement of hardware T11 - S1 , addition of bilateral pelvic fixation. Correction of sagittal imbalance and kyphosis.

    January 24, 2012 (age 52) Revision to repair pseudoarthrosis and 2 broken rods at L3/L4.

  15. #60
    Join Date
    Nov 2010
    Location
    San Diego, CA
    Posts
    104
    i'll be thinking of you all day tomorrow, Gayle.

    Best Wishes and keep hitting that PCA button!
    Resilience

    treated w Milwaukee Brace FT for 3 yrs
    currently 46 with 35 LL and 40 RT curves

    8 yr old diagnosed w Scoli 8/10 with 27 LL and 27 RT
    11/10 TLSO Full Time
    4/11 22 LL and 24 RT on waiting list for VBS at Shriners Phila
    12/11 curves still in the 20s but now has some rib cage changes from the brace
    VBS 4/25/12 with Dr. Samdani. Pre Op: 29 RT and 25 LL Post Op: 17 RT and 9 LL
    10/13: 15 RT and 10 LL

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