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Thread: The pop that was hear around the world

  1. #31
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,901
    Very sorry to hear it, Gayle. I hope the fix will be faster and simpler than the original fusion.

    Best regards,
    Sharon
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  2. #32
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    I am so sorry to hear about your problem. Last year , March 2011, when my rod broke, all the surgeons that I saw said that they would remove it . Please keep us informed.
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  3. #33
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,690
    Gayle,
    I feel so bad for you that this has happened. No one wants to think of another surgery, but, hopefully, the recovery will be easier if surgery is necessary.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  4. #34
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,160
    I am anxious to talk to Dr Hart tomorrow. My hospital was able to send the x-rays electronically to him so he will be able to view them right away.

    I am guessing the next step is a CT scan. If surgery is necessary (can't imagine avoiding it after seeing the x-rays), I would like to get through it as soon as possible and get on with my life!

    Thanks everyone for all the well wishes, and I will post when I have news tomorrow.
    Gayle, age 49
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    5/10 VBS Dr Luhmann Shriners St Louis
    5/16 6 yrs post-op, 24*T/ 22* L, mild increase in curves, watching

    also mom of Torrey, 12 y/o son, 16* T, stable

  5. #35
    Join Date
    Nov 2010
    Location
    San Diego, CA
    Posts
    104
    Gayle,

    Best Wishes for your visit with your surgeon tomorrow and a smooth recovery from here.
    Resilience

    treated w Milwaukee Brace FT for 3 yrs
    currently 46 with 35 LL and 40 RT curves

    8 yr old diagnosed w Scoli 8/10 with 27 LL and 27 RT
    11/10 TLSO Full Time
    4/11 22 LL and 24 RT on waiting list for VBS at Shriners Phila
    12/11 curves still in the 20s but now has some rib cage changes from the brace
    VBS 4/25/12 with Dr. Samdani. Pre Op: 29 RT and 25 LL Post Op: 17 RT and 9 LL
    10/13: 15 RT and 10 LL

  6. #36
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,809
    Hi Gayle,

    My heart sank when I read this - I am so sorry.

    I'm glad to read, though, that others have said if surgery is required it shouldn't be nearly as tough as the first one.

    I am thinking of you....
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  7. #37
    Join Date
    May 2010
    Location
    Indianapolis area
    Posts
    966
    Hi Gayle,

    I am really sorry to hear about this. The same thing just happened to Naptown78 (Kristy). She will be having surgery to address the unfused area, but I believe she said the rods would be repaired, rather than replaced.

    I hope you are not in too much pain. Best wishes for getting this resolved quickly and smoothly!

    Evelyn
    age 44
    80* thoracolumbar; 40* thoracic
    Reduced to ~16* thoracolumbar; ~0* thoracic
    Surgery 3/14/12 with Dr. Lenke, T4 to S1 with pelvic fixation
    Not "confused" anymore, but don't know how to change my username.

  8. #38
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445
    Gayle,
    How horrible is that? After all those x-rays telling you everything is fine. And your surgery was more than one year ago. I am so sorry. You must be so upset about this. Lets hope the Doc's can get you fixed up really soon so you can get on with your life. It's things like this that give all of us pause when we hear a pop or feel a pain that isn't our norm or slip and fall down. You will be in my thoughts and prayers.
    Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  9. #39
    Join Date
    Feb 2010
    Location
    Ohio
    Posts
    200
    Gayle,
    I am so sorry to hear this! I thought you were "out of the woods" after your pre-Christmas x-ray looked okay. Drat!

    Your surgery was similar to mine and shortly after mine, so I have always paid careful attention to your posts and progress. It's hard to believe that you were so pain free and then wammy, broken rods.

    I hope the repair is relatively easy on you!

    Thinking of you,
    Kathy
    Kathy
    46 yrs at surgery, now 50
    71 degree thoracolumbar curve corrected to 34 degrees
    8/2/2010 surgery with Dr. Lenke

    posterior T9 to sacrum with pelvic fixation

    4 osteotomies and 1 cage
    http://s1066.photobucket.com/albums/...athK_08022010/

  10. #40
    Join Date
    Oct 2011
    Posts
    7

    Good luck

    I think its hard to keep going through surgeries like we all have but i wish you the best of luck!

  11. #41
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,160

    Revision surgery planned

    I was finally able to speak to my surgeon's PA today, and she said the rods are broken at L2/3 on one side and L3/4 on the other, so pseudoarthrosis at two levels as far as they can tell. I go next Tuesday for a CT scan, more x-rays, to meet with Dr Hart to go over the surgical plan, then a pre-op appt with the PA including labs and pre-op instructions, etc. They will give me a surgery date at that appointment, but I know it will be soon.

    So far the PA said I would need an XLIF at L2/3 and L3/4, then posterior revision with refusion of the unfused levels, with two additional (shorter) rods being placed alongside the broken rods. I don't quite get how that works but Dr Hart is trying to avoid having to open the entire incision. Surgery will be about 6 hours, so no small deal.

    I am trying to stay positive, and I am glad that things are getting lined up for a prompt revision, so I can get on with healing-again. It is really hard to believe this is happening.
    Gayle, age 49
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    5/10 VBS Dr Luhmann Shriners St Louis
    5/16 6 yrs post-op, 24*T/ 22* L, mild increase in curves, watching

    also mom of Torrey, 12 y/o son, 16* T, stable

  12. #42
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    Hope all goes well for you
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  13. #43
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Gayle--
    I'm so sorry to hear about this. That's awful. You are keeping quite a positive attitude about it all and that's good. I hope the revision is swift and recovery is too! Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  14. #44
    Join Date
    Nov 2010
    Location
    San Diego, CA
    Posts
    104
    Oh Gayle,

    Sorry to hear that you have to have another surgery. Best Wishes for a date as soon as possible so you can start to move forward. I know you will get a lot of support here, you give so much to so many here and on the VBS site. Please lean on us if you need anything.
    Resilience

    treated w Milwaukee Brace FT for 3 yrs
    currently 46 with 35 LL and 40 RT curves

    8 yr old diagnosed w Scoli 8/10 with 27 LL and 27 RT
    11/10 TLSO Full Time
    4/11 22 LL and 24 RT on waiting list for VBS at Shriners Phila
    12/11 curves still in the 20s but now has some rib cage changes from the brace
    VBS 4/25/12 with Dr. Samdani. Pre Op: 29 RT and 25 LL Post Op: 17 RT and 9 LL
    10/13: 15 RT and 10 LL

  15. #45
    Join Date
    Oct 2011
    Location
    East Central FL
    Posts
    192
    Gayle, so sorry you're going through all this. Sending best wishes & prayers for a successful revision & an easy a recovery as possible.

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