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Thread: The pop that was hear around the world

  1. #181
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    758
    Amazing to hear from you so soon glad all is well.
    T10-pelvis fusion 12/08
    Fractured t-9 six days out of surgery
    C5,6,7 fusion 9/10
    PJK at t-9
    T2--T10 fusion 2/11
    Removal of left side t6-t10. 8/14
    C 4-5 fusion 11/14
    Right scapulectomy 6/15
    Right pectoralis major muscle transfer to scapula
    To replace the action of Serratus Anterior muscle 3/16

  2. #182
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    Glad that it went well

    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  3. #183
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,690
    Best of luck for a speedy recovery!
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  4. #184
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,160

    Post-op day 12, light at the end of the tunnel

    Hi all,
    It's been a tough week after going home from the hospital too early and ending up in the ER Wednesday evening for uncontrolled nausea/vomitting and dehydration. The ER staff was wonderful and got me tanked up with a liter of IV fluid and some Phenergan, which has been very helpful in resolving the nausea. I think the worst days are past now, and there is light at the end of the tunnel. I am at the point now where I am starting to feel just a little better each day.

    I am able to eat lightly now and drink plenty of fluids. I've gotten into trouble with pain several times (including this afternoon) by sleeping past time for my pain meds, so I'm still looking for the ideal med schedule. I am not a fan of how pain meds make me feel and tend to skimp on them, so I guess I still haven't learned my lesson on that. I'm currently taking oxycodone 10 mg 3x/day, flexeril 5 mg 2x/day (morning and night), tylenol 1000 mg 3x/day, Senokot-S laxative, and occasional Miralax. Fortunately my bowels are regulated now and I avoided any major constipation.

    I take several brief walks outside in the garden each day, always accompanied by my little dumpling, LuLu (the pug), and the cats. I really loved the beautiful Fall weather this weekend and it made it pleasant to take the airs. My goal this week is to walk about 5-10 minutes, three times per day. I am still pretty exhausted and sleep a lot, with a morning and afternoon nap.

    We head back up to Portland in a week, October 12th, to have the stitches removed. I have one 5" vertical incision on the front, and then 3 (!) incisions on my back. There is the large back midline incision as well as two, smaller diagonal incisions that are about 3-4" each, arranged like an arrow. Dr Hart said there was so much scar tissue that he had trouble getting down to everything he needed.
    I'm not quite up to having visitors yet, but I am always happy to get messages or texts. I miss you all and can't wait to be feeling better.
    Gayle, age 49
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    5/10 VBS Dr Luhmann Shriners St Louis
    5/16 6 yrs post-op, 24*T/ 22* L, mild increase in curves, watching

    also mom of Torrey, 12 y/o son, 16* T, stable

  5. #185
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,690
    Gayle,
    It's good to hear from you. It sounds like you had a rough time, but the worst is behind you now. I hope you can continue to enjoy your daily walks with beautiful fall weather.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  6. #186
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,531
    Gayle

    Glad to hear that you have past a few of the hurdles of scoliosis surgery recovery. The persistent vomiting can be so painful, and so draining....

    Its good to hear that you are on track to normality....

    On a side note, I have never known anyone with Pug’s, so upon reading about this breed, I noticed some similarities in that the curved tail is actually a hemi. (Scroll down to serious issues)

    https://en.wikipedia.org/wiki/Pug

    I have attached a Pug scoliosis x-ray you might find interesting....so when you walk with Lulu, you be sure to ask her how she is doing, Ok? (smiley face)

    Hang in there

    Ed
    Attached Images Attached Images
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  7. #187
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,901
    Gayle,

    Great to see you posting that that you are on the mend.

    Best regards,

    Sharon
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  8. #188
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,525
    Quote Originally Posted by leahdragonfly View Post
    Hi all,

    I have one 5" vertical incision on the front, and then 3 (!) incisions on my back. There is the large back midline incision as well as two, smaller diagonal incisions that are about 3-4" each, arranged like an arrow. Dr Hart said there was so much scar tissue that he had trouble getting down to everything he needed.
    .
    Gayle: Sounds like you lost a knife fight! I am glad that you are finally getting a handle on fluid intake, nausea, food intake, and pain management. No matter what you do, it is probably at best a craps shot. Once you figure it out, your body has changed and you need to find another solution. It would also be easier if recovery were linear, but of course, it is not.

    Continue to take good care of yourself. I am impressed with your walking. Fresh air always helps. Have you tried sitting outside or better yet, laying down outside on a lounger???

    Sending healing messages south, Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  9. #189
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    Glad that you are feeling slightly better. Continue the walking

    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  10. #190
    Join Date
    Oct 2007
    Location
    Indiana
    Posts
    1,974
    Quote Originally Posted by susancook View Post
    Gayle: Sounds like you lost a knife fight!
    I like the way Susan put that! Too many battles! On to recovery! You are a trooper! So sorry for the problems of going home too soon and subsequent consequences. That's the pits. How on earth did Ed find a scoli pug x-ray??? (big smile!) Perfect for you! (But so glad Lulu doesn't have that problem!) Yes, it does sound like you are being very pro-active with your recovery efforts. Rest up and mend. Keep us informed. And know that you are in our hearts and (for those who are so inclined) prayers.
    66 and still heartbroken...
    2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
    5/4/07 posterior spinal fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
    Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

    Corrected to 15°
    2014 DXd w/CMT (type 2)

    Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

  11. #191
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,160

    Bouts of anxiety/depression

    Hi all, I am about 4 weeks now.

    I have a friend coming over this morning to see me. Have others had a struggle after surgery with the blues? Any suggestions? Please help with any suggestions. I feel so isolated.
    Last edited by leahdragonfly; 03-13-2017 at 07:53 PM.
    Gayle, age 49
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    5/10 VBS Dr Luhmann Shriners St Louis
    5/16 6 yrs post-op, 24*T/ 22* L, mild increase in curves, watching

    also mom of Torrey, 12 y/o son, 16* T, stable

  12. #192
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    Gayle,

    I feel so sorry for you. I do remember feeling the way that you described after one or more of my surgeries. If it was not a Sunday, I would suggest that you call your Doctor, who ever is dealing with the pain meds , and talk to them. If you can hold on, then I would wait until the first thing tomorrow AM and call.

    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  13. #193
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,794
    Quote Originally Posted by leahdragonfly View Post
    Hi all, I am about 4 weeks out now and have really been struggling with anxiety and depression these last few weeks. It seems like it was brought on or made worse by suddenly cutting my oxycodone dose from 10 mg three times per day to 5 mg three times per day. This seemed to trigger a severe 10+day episode of continuous nausea, poor appetite, extreme exhaustion and fatigue, anxiety, sweats alternating with extreme coldness, poor sleep, and I'm prone to tearfulness with crying several times per day. Now I'm stable on my dose by these troubling symptoms are still cropping up, and I wonder if it's a touch of depression.

    I have a friend coming over this morning to see me. Have others had this type of struggle after surgery? Any suggestions? Do I need to run out and find a therapist or ????? Please help with any suggestions. I feel so isolated.
    Hi Gayle...

    I had a very similar experience after my last spine surgery. When I cut down from 2 doses of oxycontin to 1, I had all the same symptoms for a month. As they finally cleared, I stopped taking the drug altogether, and started another month of the same symptoms. The depression was, at times, pretty overwhelming. I started taking a small dose of a mild anti-depressant, and that did help.

    Hang in there. It will get better.

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  14. #194
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,525
    Gayle, maybe cut down on the oxycodone slower. Instead of going from 10 TID to 5 TID, maybe something like 10 once/day and 7.5 the other 2 doses, then lowering the 10 to 7.5. Wait a while and lower similarly to a 7.5/5/7.5, etc.

    I think that we underappreciate the effect that opiods have on our body.

    Meanwhile, be kind to yourself and consider a mild anti-depressant at low dose. Maybe call TanNia and talk with her about a perscription for a mild anti-depressant low dose.

    Hugs, Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  15. #195
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    Yes, it happened to me. Along with other symptoms. It was when I was cutting back on my Oxy. I became very tearful and I had bouts of dizziness and nausea as well. I remember ringing my surgeon and as he was unavailable, I cried on the phone to his nurse. She told me that her own mother was recovering from surgery and had had the same symptoms when cutting out her Oxy. Strangely, it made me feel better, just knowing it was normal. It didn't last very long. Hang in there.

    Having said that though, if it doesn't improve, definitely see your GP.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

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