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Thread: The pop that was hear around the world

  1. #136
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,163
    Hi Ed,

    I really like your quotes, and they are extremely appropriate and timely right now. My favorites are Chekhov and Rowling's.

    Like it or not I am being forced to be extremely patient as I wait for a surgery date. I am currently living in a lot of daily pain, and having to struggle to go to work so I don't lose my job and my mind. I am getting tired of people asking me "how do you manage to work?" So far I have no prospective date, which is very frustrating. Apparently it is quite a trick to schedule an all day surgery that requires 2 surgeons onto a fully booked schedule.

    So dear Ed, I will go take a whole bunch more deep breaths, and read over your quotes and link while channeling inner calm.
    Last edited by leahdragonfly; 09-05-2015 at 10:50 AM.
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  2. #137
    Join Date
    Apr 2012
    Location
    San Jose, CA
    Posts
    571
    I am so sorry, Gayle. Don't know what to say, just wanted to let you know that my thoughts are with you...
    I am stronger than scoliosis, and won't let it rule my life!
    45 years old - diagnosed at age 7
    A/P surgery on March 5/7, 2013 - UCSF

  3. #138
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,981
    I also don’t really know what to say Gayle. I posted the Dr Marsh article since I knew you would understand...and see what these surgeons can be up against. Maybe its best not to influence or even say anything since they have such a heavy load....Sometimes I wonder how they do it? Even they need that occasional cigarette. It makes it hard when you are in agony waiting and wondering. You want it done but you don’t want to rush these guys.......you just want it all to come out perfectly.

    They know what to do. They think about it all the time.

    As a skier for many years, I would traverse through the woods and find a perfect spot to take a break.....no, I never did it in the lodge, hard core skiers don’t really do that. Many times those spots offered fantastic views, or pockets of pines in the forest which are great spots to stop and think and reflect. Almost like a mountain goat, up there all alone on the cliff. I came to realize that these mountain goats have the right idea.

    Ed
    Last edited by titaniumed; 09-05-2015 at 10:16 AM.
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  4. #139
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,163
    Ed, you are very wise, calm, and right as usual. I am trying to channel that. I had a tough day yesterday, all the pain/exhaustion/frustration bubbled up and I had a good cry. The effort required to work through the pain is exhausting, and I haven't been sleeping well because I am uncomfortable in bed. Everybody gets to feel a little sorry for themselves and have a little pity party once in a while in this situation, right?

    Dr Hart cleared September 25th for me, but they are having a hard time finding the second surgeon to do the anterior exposure, but I hope to know something early next week. I trust Dr Hart to work this out, and like you say, I want it to be in the right circumstances so everything goes perfectly.

    I have a 3 day weekend now, so maybe I will take my kids into the woods and try to find that quiet, sweet spot to regain my inner calm.

    Irina, thanks also for your well-wishes. That means a lot to me.
    Last edited by leahdragonfly; 09-05-2015 at 11:19 AM.
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  5. #140
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,245
    Gayle,

    I really do not have anything to add except my wishes for a good result

    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  6. #141
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,163
    Thank you so much, Melissa. As a fellow survivor of multiple broken rods, you have a firsthand idea of what I'm going through.

    Take care,

    Gayle
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  7. #142
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,163

    Revision September 23rd

    Hi all,

    Everything worked out and I am scheduled for my revision surgery on September 23rd---I am so relieved that it will be here soon. I go next Tuesday for my pre-op testing and appointment and will find out all the surgical details. Dr Hart now sends all of his patients who are having "bigger surgeries" (as his scheduler put it) for a pre-op consultation for pain management during the inpatient post-surgical period. All of the post-op pain is managed by the comprehensive pain service, which sounds like a great idea to me!

    I am so ready to get this done and get on the road to recovery.
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  8. #143
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,208
    So happy for you, Gayle. I hope this will be the last op for you. :-)
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  9. #144
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,245
    I am glad that you have a surgical date. I hope that this is the last one for you.

    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  10. #145
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    Not long now. Best of luck and as others have said, I hope it's the last!
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  11. #146
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,577
    The end is in sight. Grit and bear it. In many ways, this surgery and recovery will be easier. You know what to expect.
    I know that you will do well.
    Let me know if I can help you or your family in any way.
    Susan

    Wonder if a slow growing infection could be the problem. Why did Dr. Hart say that he thought that the rods broke?
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal Spinal Cord Injury T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
    2018: Removal L4,5 screw

  12. #147
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,981
    Quote Originally Posted by leahdragonfly View Post
    All of the post-op pain is managed by the comprehensive pain service, which sounds like a great idea to me!
    Yes, it is. I never did meet my Dr Feelgood but had many appointments with him....(smiley face) and he did a fantastic job. I had no PCA, and was totally dependent on the laptop at the end of my bed. My shots were every 4 hours.

    Hang in there....

    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  13. #148
    Join Date
    Jun 2013
    Location
    Muskoka, ON Canada
    Posts
    98
    Gayle I would like to add my good wishes to you. And also hope this will be your last revision.
    Marianne
    rotoscoliosis, subluxation and spinal stenosis
    Surgery April 15, 2015 at age 67
    T11-L5
    Decompression with multiple discectomies
    Concord cages @ L2-3, L3-4, L4-5
    Osteotomies and local bone grafting
    Revision Feb.22, 2018
    Replaced rods
    Took out L5 disk to free up nerves
    Used BPM to help with fusing
    Fused T10-S1 with screws in pelvis

  14. #149
    Join Date
    Aug 2015
    Posts
    27
    Leaha, do they know why your rods break? Are they always breaking at the same level? Just wondering if there is a problem with an area of fusing in one part of your spine? Of course we are all fearful of the same situation. I am one who has been through multiple spine surgeries so I send you armfuls of support. I will be thinking about you and praying for a successful recovery.

  15. #150
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,163
    I met with Dr Hart during my various pre-op appts today. He really does not think I have an infection but they will check for it. He feels this rod break, which is several levels lower than last time, is from a pseudoarthrosis. Apparently L5-S1 is the hardest joint to fuse. The combined anterior/posterior approach should do the trick. It sounds like the ALIF is no treat to recover from though. Dr Hart estimated 7.5 hours of surgery with the first night in ICU.

    Thanks for all the well-wishes...I am ready to get this done!
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

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