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Thread: The "I'm Sorry I Made the Decision to Have Surgery" Sticky Thread

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  1. #1
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,797

    The "I'm Sorry I Made the Decision to Have Surgery" Sticky Thread

    This thread is for anyone who wants to post details about their bad surgical outcomes. Please post your details, including the approximate date of your surgery, your age at the time, the name of your surgeon, and the levels that were fused. No debates or discussions will be allowed. If you have a question about a poster, please send them a private message.
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  2. #2
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,797
    Wonder if people are afraid to name names. If you tell the truth, you should not be afraid to post information about a bad outcome. If I take out the request to include your surgeon's name, will it encourage people to post?
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  3. #3
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    Actually, the reason that I have not posted is that I cannot decide to post here or not
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  4. #4
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,797
    I think it's way too early for you to know if you're going to be happy with your outcome.
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  5. #5
    Join Date
    Feb 2011
    Location
    Lilburn, GA
    Posts
    201

    Happy or not

    Me too! Even though my recovery is going well, I'm still not in that "happy I did this" place. I'm getting there, I think. Because I wasn't in any major pain before, and feel worse now, I'm not convinced I did the right thing. I guess my curve would have continued to progress, but who knows?

    Getting there.......slowly : )
    50 years old!!!!!
    Wore Milwaulkee Brace 1976-77
    Original curve 36 degrees ( measured in the 70s)
    Advanced to 61 degrees 01/2011
    Surgery 07/11/2011
    Fused T1-L2 (curve now in the 20s!)

  6. #6
    Join Date
    Aug 2007
    Location
    florida
    Posts
    9

    bad decision

    I was fused from T9-S1 in 2005 by Dr. Castellvi at Florida Orthopedic Institute-I had a severe rotated scoliosis approximately 60 degrees-I went from occasional pain to daily severe pain, sciatica that made me scream and fecal incontinence-I did find Dr. McMillan at Shands who fixed some of it in 2008 but by the end I had to learn to walk again, potty train myself. This and getting married are the two worst mistakes of my life LSH

  7. #7
    Join Date
    Mar 2010
    Location
    Oklahoma City, OK
    Posts
    71

    A little of both

    Hello everyone! I was diagnosed with mild scoliosis at 13 years old. I had no pain or issues (really never gave it much thought) until my mid-thirties when I hit pre-menopause. My curves began increasing as did my pain albeit slowly. By the time I reached my early 40's, I decided I'd had enough. I had my first fusion surgery (fused T-10 thru L-5) in June 2008 with Dr. A. L'Heureux at the Spine Hospital in Oklahoma City. The surgery went fine, as did the days I was at the Spine Hospital. After 4 days, I was transfered to Valir Rehab Hospital in OKC for 7 days. As great as the nurses, care, facility and food were at the Spine Hospital, everything was just as HORRIBLE at Valir. By the time I was 9ish months post-op, I began telling Dr. L something wasn't quite right. This continued until I was about 16 month's post-op and had a severe forward sagittal imbalance, flat back and junctional kyphosis at the T-9/T-10 level. He just would not listen or acknowledge my concerns. RESULT-UNHAPPY I HAD SURGERY.
    I began getting other opinions, and after 3 wonderful scoliosis specialists giving me the same information, I decided to have revision surgery at Baylor Hospital in Plano, Tx. My revision surgery was done June 27, 2011 (T-4 thru S-1 with pelvic anchor screws). The sagittal imbalance has been corrected as have the flat back and junctional kyphosis. However, I am still taking a significant amount of narcotic pain medication, much more than I should be at this point. Also, my back is incredibly sensitive to touch, to the point I won't let anyone touch it, and my pain level hovers around a 6 most days. If I still have this much of an issue with pain at the 12 month post-op mark, I will have a CT Scan done and try to find the cause of the pain. An additional surgery is not out of the question if the pain does not subside by 12 months post-op. RESULT-VERY VERY HAPPY I HAD SURGERY! My surgeon was able to fix 3 significant issues which did improve my quality of life somewhat. I believe I just drew the short straw when drawing for spines.
    And there you have it!
    Last edited by allycat; 10-16-2012 at 04:33 PM.
    Becky
    51 years old
    Married 28 years
    3 kids ages 23, 21 and 17
    Fused T-10 through L-5 June, 2008
    Developed junctional kyphosis, flat-back and sagittal imbalance
    Revision Surgery June 27, 2011
    Fused T-4 thru S-1 with pelvic anchor screws
    Take 2 revision October 15, 2013 to locate source of continued pain
    Pseudoarthrosis at L-3, 2 screws removed

  8. #8
    Join Date
    Jul 2016
    Posts
    9
    Quote Originally Posted by Marina63 View Post
    Me too! Even though my recovery is going well, I'm still not in that "happy I did this" place. I'm getting there, I think. Because I wasn't in any major pain before, and feel worse now, I'm not convinced I did the right thing. I guess my curve would have continued to progress, but who knows?

    Getting there.......slowly : )


    Wow! This was an old post right? Surgery was in 2011? Are you glad you had the surgery now? I hope so!

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