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Thread: Feel like crying

  1. #31
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,162
    Hi Kristy,

    I am so sorry to hear of this--I truly understand the pressure to work. But please, tell your husband and your family! This is not your fault, and you will get through this rough patch, too. You should call and notify your surgeon, too, in case he wants different imaging.

    Your scoliosis family here is thinking of you and we are all here to listen.
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  2. #32
    Join Date
    May 2008
    Location
    Central NJ
    Posts
    1,956
    Kristy,

    I am so sorry this happened. I wish you would at least tell your husband.

    ((Hugs))
    __________________________________________
    Debbe - 50 yrs old

    Milwalkee Brace 1976 - 79
    Told by Dr. my curve would never progress

    Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
    Pre-Surgury Thorasic: 66 degrees
    Pre-Surgery Lumbar: 66 degrees

    Post-Surgery Thorasic: 34 degrees
    Post-Surgery Lumbar: 22 degrees

  3. #33
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    I know that it is hard to do but I think that you should tell your husband
    Last edited by mabeckoff; 12-23-2011 at 03:00 PM.
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  4. #34
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445
    Kristy,
    I am so sorry also. You have lots of friends here all pulling for you. I will be thinking of you and wish you the best. Try to enjoy the holidays. I know it's hard with all of this hanging over you.
    Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  5. #35
    Join Date
    May 2009
    Posts
    3,745
    i am so sorry to read that it seems the other rod has broken too...
    i understand having to work...but i am so worried about you doing your job
    with broken rods...and i fear the pain will just be too much!

    am wondering if you could apply for disability....??
    IF that is an option, the sooner the better...
    the process can take a while....
    do you have any friends or relatives who are lawyers, who check it out for you?
    what about a union rep at work?...it could be looked into confidentially...
    i am just trying to think of worst case possibilities...

    are you taking meds for the pain...?

    hope it feels a little better when you are resting....
    jess

  6. #36
    Join Date
    Aug 2008
    Location
    Indianapolis, IN
    Posts
    416
    I got through work today, luckily it was a light day and I didn't do much. But upon going home, I quickly deteriorated and I now can hardly stand or
    walk. My stability is very weak. When I bend in the slightest, my spine wants to collapse. I did notify my surgeon's office. I'm not sure I will be
    able to work next week...I work in a very busy clinic and I can barely move. Thank you all for your support and wise words...I've been in tears
    since I got home and feel a little scared. If both of the rods are broken, which I believe they are, and there is an area of non-fusion, could my
    backbone actually break?
    May 2008 Fusion T4 - S1, Pre-op Curves T45, L70 (age 48). Unsuccessful surgery.

    March 18, 2010 (age 50). Revision with L3 Osteotomy, Replacement of hardware T11 - S1 , addition of bilateral pelvic fixation. Correction of sagittal imbalance and kyphosis.

    January 24, 2012 (age 52) Revision to repair pseudoarthrosis and 2 broken rods at L3/L4.

  7. #37
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,162
    Hi Kristy,

    I am so sorry for you. Your backbone will not break. Fusion is meant to eliminate the moveable joints between the vertebrae and fuse that area into one solid, immoveable piece of bone. Non-union means that instead of that one area fusing over with bone, instead it healed over with just scar tissue, which allows some movement there (where there used to be movement, at the disc, if it wasn't removed).

    I am so sorry this is happening right now, over the holidays, when it is probably difficult to reach the surgeon. I would strongly suggest that you plan to stay home for at least a few days next week, if you are still in such pain. I understand how difficult it is, and the pressures to go to work, but right now what your body needs is to rest and get your pain under control until a plan is formed to fix and stabilize that area. How is your husband taking the news?

    Hugs to you, please keep us posted. We are here for you.
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  8. #38
    Join Date
    Aug 2008
    Location
    Indianapolis, IN
    Posts
    416
    Well I had an appt with my surgeon today...and its confirmed. I now have 2 broken rods. It's a little eery looking at the xray, I am already tipping to the right. I've lost my balancing ability. He thinks there is an area of non-
    fusion but will need a CT next week to examine the area more closely. He wants to schedule surgery to repair
    the rods, and fuse the non-fused area. Hopefully there won't be anything else broken in there. Right now I
    am wearing my brace 24/7 because it helps with pain, and I feel so unstable. And have gone back to using
    a cane. I can't believe how fast this has happened. Just a month ago, I was traveling alone to Florida on
    Thanksgiving and lugging suitcases around in the airport.
    May 2008 Fusion T4 - S1, Pre-op Curves T45, L70 (age 48). Unsuccessful surgery.

    March 18, 2010 (age 50). Revision with L3 Osteotomy, Replacement of hardware T11 - S1 , addition of bilateral pelvic fixation. Correction of sagittal imbalance and kyphosis.

    January 24, 2012 (age 52) Revision to repair pseudoarthrosis and 2 broken rods at L3/L4.

  9. #39
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    No doubt it's a shock and a huge disappointment. But it sounds like he's not going to waste time getting you fixed Kristy. Sorry you have to go through this.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  10. #40
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    Kristy,


    You are in my prayers

    At least, your surgeon is quickly moving ahead to get you fixed. Did he give you anything for your pain? Did you stop working?
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  11. #41
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Kristy--
    I'm so sorry to hear this. I was wondering the same ?'s Melissa had. I hope this is taken care of for you as soon as possible. It has to be so discouraging but realizing you have to get it fixed you have to just go forward. Sure thinking of you and praying for a rapid fix and recovery. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  12. #42
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,691
    Kristy,
    Like everyone else, I am so sorry to hear of this. I am hoping that you can get the rods repaired soon and have a quick recovery.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  13. #43
    Join Date
    Jul 2011
    Location
    Australia
    Posts
    44

    Thinking of you from Australia

    Hi Naptown,

    Hang in there, at least you know now what you are dealing with. You have probably been through the worst now and you know you can get better. Unfortunately you have had to be even more patient than most of us. Look after yourself, you don't deserve this. I think it's hard that life isn't fair, but it will get better because your surgeon can see what the problem is.
    Kelly
    Progress 1 hr Nth of Sydney, Australia
    49 yrs
    55 deg thorocolumbar
    Fused T9 to L3, Aug 11th 2011

  14. #44
    Join Date
    May 2010
    Posts
    345

    Keeping you in my thoughts and prayers!

    Hi,
    I just needed to stop by on here and tell you that I'm thinking of you. I hated to read of the problem you are having. I can only imagine how scared you are right now. (especially when you noticed the problem) You have been through too much already and have felt how good it is to be free to live your life without all the suffering to deal with. I guess you just have to stay strong and have faith that this will just be a small bump in the road of huge pot holes you've had to deal with in the past. I am looking at a third revision as soon as I get through with a few months of Forteo.(bone building drug). I know how bad I want my life back. And I know how worried you must be, as you have had a taste of GOOD quality of life. And it has to feel so good~~you'll get it back! Hang in there~~~ and keep us posted. boomer
    Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
    Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
    This started adult onset scoliosis
    July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
    Oct.20th 2010, extended rods to T4 / did osteotomy at L3
    Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
    May 30th 2013 revision
    May 8th cervicle surgery 2016
    May 31st Dr. Gupta revision 2017

  15. #45
    Join Date
    May 2008
    Location
    Central NJ
    Posts
    1,956
    Kristy,

    At least you know what the problem is. You are in my thoughts and prayers.
    __________________________________________
    Debbe - 50 yrs old

    Milwalkee Brace 1976 - 79
    Told by Dr. my curve would never progress

    Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
    Pre-Surgury Thorasic: 66 degrees
    Pre-Surgery Lumbar: 66 degrees

    Post-Surgery Thorasic: 34 degrees
    Post-Surgery Lumbar: 22 degrees

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