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Thread: Feel like crying

  1. #1
    Join Date
    Aug 2008
    Location
    Indianapolis, IN
    Posts
    416

    Unhappy Feel like crying

    Things have been going so well for me since my revision in March 2010...no pain, back to work, living my life...
    Then on Thanksgiving morning, I woke up and my left arm and thumb were numb. I thought I had slept on it wrong, but no. It's been 12 days and no change. My thumb has gotten number in fact. My whole arm isn't numb, just feels numb along the inner aspect of my forearm.
    Then...I was in bed a few days later, stretching like we all do in the morning, and I hear and feel a big CRACK. At first I thought it was my bones, but a couple of days later, I started feeling my rod(s) move when I was walking. Very disconcerting. So I called my surgeon's office and will be evaluated tomorrow morning along with xrays. Throughout the day today at work, my back has become painful, and I am having alot of trouble doing any lifting at all. My purse even feels heavy to me. I feel so discouraged because I thought I was done with all this. Ugh.
    Last edited by naptown78; 12-12-2011 at 09:48 PM.
    May 2008 Fusion T4 - S1, Pre-op Curves T45, L70 (age 48). Unsuccessful surgery.

    March 18, 2010 (age 50). Revision with L3 Osteotomy, Replacement of hardware T11 - S1 , addition of bilateral pelvic fixation. Correction of sagittal imbalance and kyphosis.

    January 24, 2012 (age 52) Revision to repair pseudoarthrosis and 2 broken rods at L3/L4.

  2. #2
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    I am so sorry to hear of your problems. Please keep us informed
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  3. #3
    Join Date
    Nov 2011
    Location
    Utah
    Posts
    59
    I'm so sorry honey. Please keep us posted. I'll be thinking about you

  4. #4
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    I could cry for you Kristy. Thank goodness you don't have to wait long for evaluation. Good luck!
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  5. #5
    Join Date
    Mar 2010
    Posts
    2,755
    I'm really sorry about all this. Is your back hurting up high? I only ask because I wonder if it is related to your arm/thumb. I hope you can find out soon. I probably don't dare say (broken rod) as that is the last thing you want to hear. Let's hope it's not and is something easier to deal with. Gentle (((hugs)))

  6. #6
    Join Date
    Aug 2011
    Location
    Indiana
    Posts
    104
    Kristy,
    Oh no, I hope that you will get some answers to your sudden downturn. Hopefully it will be something that can be easily resolved.
    Donna
    Female - 49 yrs old at surgery
    Surgery 5/5/11 - Dr. Bridwell, St. Louis
    Fused T3-L3
    60 degree thoracic curve corrected to 30 degrees
    Tennis player & returning to the courts!
    http://s1050.photobucket.com/profile/walkingmom1/index

  7. #7
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,797
    Hi Kristy...

    Sorry to hear this. Hopefully, you'll require a fairly simple revision, from which recovery should be faster than your last surgery. Looking forward to hearing what the surgeon says.

    Regards,
    Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  8. #8
    Join Date
    May 2010
    Posts
    345

    I 'm so sorry!

    Hi, I know you are scared , but it could be the upper discs. My daughter-in-law just had surgery to correct a disc in her neck that was causing her thumb and arm to go numb. Mostly her thumb. Anyway, I'm certainly not trying to diagnose you, but just saying that's what her problem was. I know you must be scared, but lets hope it is something easy to take care of. I'm still working on getting my third revision surgery. It will be done in Minniapolis by Dr. Perra. I have to take Forteo for a while first to strengthen my bones. I am still in a bad saggital imbalance with flatback syndrome. I sruggle from day to day. I will keep you in my thoughts and prayers~~~Linda
    Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
    Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
    This started adult onset scoliosis
    July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
    Oct.20th 2010, extended rods to T4 / did osteotomy at L3
    Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
    May 30th 2013 revision
    May 8th cervicle surgery 2016
    May 31st Dr. Gupta revision 2017

  9. #9
    Join Date
    May 2008
    Location
    Central NJ
    Posts
    1,956
    Oh Kristy honey I am so sorry this happened. I'm praying it's something simple. ((Hugs)) and let us know what the Dr. says.
    __________________________________________
    Debbe - 50 yrs old

    Milwalkee Brace 1976 - 79
    Told by Dr. my curve would never progress

    Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
    Pre-Surgury Thorasic: 66 degrees
    Pre-Surgery Lumbar: 66 degrees

    Post-Surgery Thorasic: 34 degrees
    Post-Surgery Lumbar: 22 degrees

  10. #10
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445
    Hi Kristy,
    I am so sorry that this is happening to you. You have been through so much. I hope you can get whatever it is fixed soon and be back to your life. Take care, Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  11. #11
    Join Date
    Aug 2008
    Location
    Indianapolis, IN
    Posts
    416

    Angry I am in the Broken Rod Club

    I have 2 separate issues going on apparently...
    I went to my doctor's office to get the numbness in my left arm/thumb evaluated. He isn't sure if it is coming from the cervical discs or peripheral
    in carpel tunnel (I don't think that's it). So I am scheduled for an EMG in a few weeks. While I was there, I got a full set of xrays which were sent
    to my surgeon.
    Since that day, my back has felt more painful in the lumbar and sacral area. I feel like my back is clunking and loose everywhere. My gait has slowed
    and I can't lift my arms over my head.
    Well, I got the bad news today that my right rod has broken at the L3 screw where the osteotomy was done. Apparently there is a spot that hasn't
    healed in that area.
    Dr. T wants me to start wearing my brace again for 3 months. Then get a CT scan in March.
    Ohhhhhhhhhhhhhhhhh.......................I thought I was done with that horrible thing! I hate the thought of wearing it to work. Makes me look like a
    linebacker!
    I can deal with the numbness...but the broken rod has me so frustrated and unhappy. I feel like I am slipping backward.
    May 2008 Fusion T4 - S1, Pre-op Curves T45, L70 (age 48). Unsuccessful surgery.

    March 18, 2010 (age 50). Revision with L3 Osteotomy, Replacement of hardware T11 - S1 , addition of bilateral pelvic fixation. Correction of sagittal imbalance and kyphosis.

    January 24, 2012 (age 52) Revision to repair pseudoarthrosis and 2 broken rods at L3/L4.

  12. #12
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    I'm so sorry Kristy. What bad news for you.

    I'm sure there must be a good reason, but what good can come of wearing a brace for 3 months? (I'm bamboozled.)
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  13. #13
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    That is so not good news. I hope you get everything sorted out soon. Is it possible that one of your rods broke b/c you didn't fuse properly in an area? I guess your surgeon will have all the details for you.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  14. #14
    Join Date
    May 2009
    Posts
    3,745
    so sorry to hear this, Kristy...
    are they thinking eventual surgery to fix or replace the broken rod...?
    is the brace for temporary support...?

    i hope the pain eases soon....
    you have my total sympathy!

    jess

  15. #15
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,552
    Kristy

    I’m so sorry this happened. The brace is for your protection since you have a non-union and didn’t fuse on that level. 3 months seems like an awfully long time, why would they want to delay this?

    The “broken rod” club is not a club any of us want to join.....

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

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