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Doreen--
Your x-rays look just great! I can't believe how well you are doing at just 3 months! Wonderful. Janet
Janet
61 years old--57 for surgery
Diagnosed in 1965 at age of 13--no brace
Thoracic Curve: 96 degrees to 35 degrees
Lumbar Curve: 63 degrees to 5 degrees
Surgery with Dr. Lenke in St. Louis--March 30, 2009
T-2 to Pelvis, and hopefully all posterior procedure.
All was posterior along with 2 cages and 6 osteotomies.
Thanks, everyone!
I'm wondering what people consider "feeling normal" once they are post op? For me, I wasn't feeling normal for years preop so I'm curious to know when I will feel a new normalcy with my body? Because my upper thighs are still numb (the left thigh more so than the right) I feel as if my steps are not solid when I walk. I know for a fact my gait is much slower because my daughter tells me how slow I walk now. A good portion of my chest is still numb along with my glutes and middle of my back.
I forgot to mention, I think Dr. Lenke may have "crossed some wires" because if someone touches the hair on top of my head, I feel it in my back! LOL!
Warmly,
Doreen
44 years old at time of surgery, Atlanta GA
Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
Post-Surgery curves ~10 degrees, regained 4 inches of height
Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!
Doreen, it took me about a year before I felt like I walked the way I did before my surgery. I emailed Lindy (Dr. Boachie's nurse) a few times concerned that I walk with a bit of a swagger and that I could not walk fast. Her response was that I shouldn't try to walk any faster then I am, and that I have to get used to my new back, straight posture, etc. I'm 14 months post-op and I am walking like I did pre-surgery. It takes time.... you'll get there. Take care, Lynn
1981 Surgery with Harrington Rod; fused from T2 to L3 - Dr.Keim (at 26 years old)
2000 Partial Rod Removal
2001 Right Scapular Resection
12/07/2010 Surgical stabilization L3 through sacrum with revision harrington rod instrumentation, interbody fusion and pre-sacral fusion L5-S1 - Dr. Boachie (at 56 years old)
06/11/14 - Posterior cervical fusion C3 - T3 (Mountaineer System) due to severely arthritic joints - Dr. Patrick O'Leary (at age 59)
I obviously don't have the answers to your questions, as I have not had surgery. I do not feel a sense of normalcy in my body right now, either. You are walking farther than I can. I stiffen up at about 2-1/2 miles, so it seems you are doing great!
I must apologize. I've been kind of out of the loop for awhile due to some personal issues of my own. I wanted to say how sorry I am about your mom. I lost my dad in March and we were very close, too. Your mom was able to be there for you in your hour of need. That's very important to a mom, as you yourself know. So she was able to do this last "big" thing for you as I'm sure you would also do for your own child/ren regardless of how you yourself felt. So you always have that comfort with you.
I was looking at all of your before and after photos and x-rays, including your 12 week ones. I must say that I noticed something that gave me encouragement. You are by no means a "heavy" woman. But if you look at your befores, even in the x-rays, you can see what the scoliosis has done to your skin by mushing it all together giving you folds and creases that are now completely GONE in your after photos and x-rays. Many women are self-conscious about these skin creases, I think mostly due to advertizing false conceptions of what a woman's body should look like.
The only reason I even bring this up is because I am an extremely thin woman, 5'7" and about 117#. When I look in the mirror at my back, I can see that I have these skin folds around and near my rib humps as well. The first time I noticed it, I was in shock simply because of my already overly thin state. Now when I see photos of the before and afters, I am totally amazed. I don't want you to think I'm implying in any way that this phenomenon is unique to you, because I've seen it on other people as well. I also know that we don't have a surgery this dangerous for cosmetic reasons, but it is a perk. You look so amazing! I hope this isn't coming off as shallow, since I'm aware that beauty comes from within and I know you were just as beautiful before as you are after. I'm just amazed at the difference is all.
If I'm not coming off as my usual self, it's because I'm having a hard time gathering my thoughts and typing them out. I just had an unrelated surgery on Friday. This was actually a wake-up call to me as to why I'm not ready for scoliosis surgery. They had a hard time getting my pain under control because of my tolerance to opiod medications. There's an excellent reason right there to get OFF of them if at all possible, which I already knew. I don't like being on them anyway because even though they keep my scoli pain down, how will I respond to anesthesia and pain control AFTER? I could ramble on and on about this, but it gave me a new perspective on things. My pain still isn't well controlled and my tummy is having a hard time coming to life again.
I just want to thank you for sharing this whole thing with us and wish you the very best. I'm falling asleep, so I'd better go. Keep up the good work and I hope your recovery continues to be smooth and you are strong.
Sincerely,
Rohrer01
Be happy!
We don't know what tomorrow brings,
but we are alive today!
I stopped taking pain meds!!!!! I talked with Dr. Lenke's physical therapist yesterday (who I'll meet in May) and she is sending me some exercises that I can incorporate with my daily walking. She said walking is so crucial during the first year to help with fusion. She also said that patients who regularly exercised preop are always eager to resume some sort of exercise in addition to walking. I'm excited to see what she sends me.
Evelyn, I'm scheduled to see Dr. Lenke May 16 but we'll arrive on the 15th. That will be great if you are in town at the same time. Keep me posted.
Rohrer01 - Thank you for your condolences. For years I thought I was getting "fat" because of the rolls I'd see on my back despite my weight not increasing. It really messed with my mind because no matter how hard I worked out, the rolls of fat became more prominent. Little did I know that my collapsing spine was the culprit. Praying for your recovery. :-)
Warmly,
Doreen
44 years old at time of surgery, Atlanta GA
Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
Post-Surgery curves ~10 degrees, regained 4 inches of height
Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!
hi Doreen
are you only 3 months out..that is what it looks like by your surgery date in your signature....
is it not too early to be "normal" yet...?
major surgery causes so many changes in the body....it takes a while to get back to any kind of normal...
if you break a bone, any doctor tells you it takes at least a year to really knit back...
so imagine how long your poor spine will take, and the rest of your body!
congratulations on getting off meds...
please take one if you hit a bad day, or the weather gets funky....
please do not try to "tough it out"
it costs the body too much....
Congratulations on getting off your pain meds. I still took Tylenol after I got off the heavy stuff and started feeling so much better. If you are like me and enjoy exercising, you might expect more than what Janet will give you. At least, I felt like I could gain strength withbnew exercises in areas that i didn't hit with walking and I knew that Janet was conservative so that I didn't do anything that would detrimental.
Karen
Surgery-Jan. 5, 2011-Dr. Lenke
Fusion T-4-sacrum-2 cages/5 osteotomies
70 degree thoracolumbar corrected to 25
Rib Hump-GONE!
Age-60 at the time of surgery
Now 66
Avid Golfer & Tap Dancer
Retired Kdgn. Teacher
See photobucket link for:
Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
Before and After Picture of back 1/7/11
tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right. http://s1119.photobucket.com/albums/k630/pottoff2/
Since our trip to Paris this spring was postponed because of my surgery/recovery, we are planning the trip for the end of the year. For those who are postop, has anyone traveled on a long flight ~9 hours? How was that experience?
Warmly,
Doreen
44 years old at time of surgery, Atlanta GA
Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
Post-Surgery curves ~10 degrees, regained 4 inches of height
Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!
We flew to Seattle from Providence, RI at about 8 months post-op, and although it wasn't 9 hours, it still was a long flight with a layover in Chicago. I had no problems what-so-ever. My doctor told me to take an aspirin before getting on the flight to prevent blood clots and to get up and move around as much as possible. You might be flying at night and might even sleep most of the time. You should be fine. Have a great trip and don't worry.
Sally
Diagnosed with severe lumbar scoliosis at age 65.
Posterior Fusion L2-S1 on 12/4/2007. age 67
Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
New England Baptist Hospital, Boston, MA
Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/
"In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.
Paris?? Sweet!!! I'd be interested to hear about this as well. We are traveling to DC in April and it will be my first trip on a plane since my surgery. Although the flight is only an hour and a half, I wonder about the seat. Our next long trip will be when I'm 2 years post op and I'm sure by then I'll be completely back to normal.
50 years old!!!!!
Wore Milwaulkee Brace 1976-77
Original curve 36 degrees ( measured in the 70s)
Advanced to 61 degrees 01/2011
Surgery 07/11/2011
Fused T1-L2 (curve now in the 20s!)
Leak in basement hubby on plane heading home from Seattle
Sheesh
44 years old at time of surgery, Atlanta GA
Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
Post-Surgery curves ~10 degrees, regained 4 inches of height
Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!
Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
Post-Surgery curves ~10 degrees, regained 4 inches of height
Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!
I have been wearing high heels for some time now and I am a lot older than you. No problem!
Karen
Surgery-Jan. 5, 2011-Dr. Lenke
Fusion T-4-sacrum-2 cages/5 osteotomies
70 degree thoracolumbar corrected to 25
Rib Hump-GONE!
Age-60 at the time of surgery
Now 66
Avid Golfer & Tap Dancer
Retired Kdgn. Teacher
See photobucket link for:
Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
Before and After Picture of back 1/7/11
tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right. http://s1119.photobucket.com/albums/k630/pottoff2/
Karen,
As always, I smile in amazement at your accomplishments...tap dancing, golf and heels, too! Can I ask how high the heels are? I've been ""strutting" my 1.5 inchers (Hahah) but feeling pretty envious of those in higher heels.
Kathy
Kathy 46 yrs at surgery, now 50
71 degree thoracolumbar curve corrected to 34 degrees
8/2/2010 surgery with Dr. Lenke
posterior T9 to sacrum with pelvic fixation 4 osteotomies and 1 cage http://s1066.photobucket.com/albums/...athK_08022010/
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