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Thread: September 9th surgery

  1. #46
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,152
    Best of luck with the testsMelissa. Let us know how you go. I hope there are no further problems. Glad they are taking good care of you and not taking any chances.

    We've been following the 9/11 commemorations, so sad. Still can't quite believe my eyes when I see that plane go into the tower. Everyone here talks about what they were doing/where they were, when it happened, much like we used to, for events such as the assassination of John F Kennedy and the landing of man on the moon.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  2. #47
    Join Date
    May 2009
    Posts
    3,637
    hope the tests go OK and that they answer all the questions for the doctors...
    and i hope you get better every day....and that any complications are solved quickly!

    born & raised in NYC, i lived in Manhattan at the time of 9/11...
    it was unbelievably sad...and on every lamp post, for days and days, were pix of
    missing loved ones...people hoping against hope that their family members would be
    found somehow...
    the burning smell lingered in the air for days....
    and New Yorkers displayed such kindness...
    we were all heart broken for each other....

    feel better soon, Melissa....
    thoughts and prayers are with you....

    jess

  3. #48
    Join Date
    Jun 2011
    Location
    So. Calif., near Palm Springs
    Posts
    64
    Hi Melissa,

    I've been following along on the boards but haven't had time to post lately. I was so glad to see you were able to have this latest surgery as scheduled. I was afraid with that huge power outage we had the day before that they might have to reschedule your surgery the next day.

    I hope the Doppler u/s and echo show no problems, and you continue to get better. Hang in there!

    Lisa
    Age 44 (now 48). "Mild" curve (and pain) at age 16.
    No x-ray, brace or followup as a teen.
    Told curve wouldn't progress or need treatment.
    Chiropractor said I had a 22-degree TL curve, at age 20.
    Non-SRS surgeon said curve is 46 to 51 degrees, at age 44.
    SRS surgeon thinks curve is 42-degrees thoracic, 39-degrees lumbar, age 44.
    Also have bilateral pars defect at L5.
    Considering surgery due to pain.

  4. #49
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,249
    Melissa--
    Hope tests all come back OK and you continue healing. Yes, the 911 stories on tv are almost too hard to watch. Can't imagine having been in NYC at the time. All so painful and sad. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  5. #50
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,107
    I was living in Puerto Rico at the time but am from NYC. I knew my brother worked two blocks from the WTC. Fortunately he was doing a deposition uptown and was not near the towers. As I recall, he had to walk from upper Manhattan to Queens to be able to get home eventually. His boss lost her daughter that day. She was in one of the towers working.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  6. #51
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,435
    Hi Melissa,
    I'm glad your surgery is finally over and I hope all of your issues will soon be resolved. On 9/11, I spent the day is a small room interviewing prospective blood donors. As it turned out, blood was not needed in NYC, so it went in our blood bank refrigerator and the blood was used in our own hospital. I loved your story about the resident checking out your feet.
    Take care, You are in my prayers.
    Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  7. #52
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    2,819
    I lived 5 miles away in New Jersey when they built the towers, they took about 6 years to complete. I did go up to the observatory once, and they sure did sway in the wind. I remember looking straight down on the buses, and people, which were miniscule. The towers were a directional landmark for southern Manhattan.

    Last year, I went to Ellis Island and the Statue of Liberty and looked over and the towers are missing. It was like a void, a gap, a terrible emptiness. Looking at my grandfathers name on the wall at Ellis who escaped tyranny in Europe, and seeing the skyline from some of the largest symbols of freedom in the world, had a profound effect on me.

    Although it is possible for me to forget that my whole spine is fused, I donít think that 9/11 is something that I will ever forget.

    Ed
    49 yr old male, now 55, the new 45...
    Pre surgery curves C12,T70,L70
    A/P T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  8. #53
    Join Date
    Jun 2011
    Posts
    1,934
    Good morning. It is 6:10am here in CA and I have just gotten up for the day. I still have the ECHO to have done today. They did not find anything with the dobbler ultrasound. My feet are better due to the Lasix.I have some fluid in my lungs that we are keeping a look at. . My left leg is still in much pain and I am quite dizzy as well. My right shoulder hurts and the pain goes down to my fingers. Dr Bederman will be here today so hopefully, I will be given some answers

    Hope everyone has a good day

    Melissa
    Melissa

    All surgeries are on hold right now

  9. #54
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,152
    It sounds miserable Melissa. I hope Dr. Bederman will have the answers you need.

    I'm on jury duty today, I have four weeks of it. I will check to see what Dr. Bederman says tonight when I get home. (I was called up for jury duty just prior to my surgery, but got out of it on medical grounds so I'm happy to do my "bit" now.)
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  10. #55
    Join Date
    Jun 2011
    Posts
    1,934
    Well, this is the 4:05pm update
    Dr Bederman wants to increase my Lyricia . The internal medicine doctor says no and wants to put me on Tylenol around the clock and double my Oxycontin . Dr Bederman wants a ECHO but internal medicine does not. They were going to discuss today. The only item that they agreed on was the Lasix. So not much excitement going on here in Southern CA today

    Melissa
    Melissa

    All surgeries are on hold right now

  11. #56
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,267
    Hi Melissa...

    Tell Sam that I asked if it might be lymphedema.

    And, don't worry too much about the pain and swelling, etc. It's all extremely common, and will hopefully resolve soon.

    Regards,
    Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  12. #57
    Join Date
    Jun 2011
    Posts
    1,934
    Quote Originally Posted by LindaRacine View Post
    Hi Melissa...

    Tell Sam that I asked if it might be lymphedema.

    And, don't worry too much about the pain and swelling, etc. It's all extremely common, and will hopefully resolve soon.

    Regards,
    Linda
    I will talk to him tomorrow about Lymphedema and thanks for the words of comfort

    Melissa
    Melissa

    All surgeries are on hold right now

  13. #58
    Join Date
    Jun 2011
    Posts
    1,934
    It is 6:15 am here in CA and I am up . I am very confused about this pain situation. I am not getting my Lyricia increased now . According to pain management, they are putting me on Tynelol every 6 hours around the clock and this is supposed to replace my pump medicine. I only found this out last night at 11pm. My left
    leg hurts so much that I cannot walk on it.

    Melissa
    Melissa

    All surgeries are on hold right now

  14. #59
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,267
    Quote Originally Posted by mabeckoff View Post
    It is 6:15 am here in CA and I am up . I am very confused about this pain situation. I am not getting my Lyricia increased now . According to pain management, they are putting me on Tynelol every 6 hours around the clock and this is supposed to replace my pump medicine. I only found this out last night at 11pm. My left
    leg hurts so much that I cannot walk on it.

    Melissa
    Hi Melissa...

    Hang in there. It will all get sorted out. Hopefully, whoever told you that you would not be getting an increased dosage of Lyrica misread orders or something. If your leg pain is neurologic (which I think it probably is), narcotics probably don't help anyway.

    Regards,
    Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  15. #60
    Join Date
    Jun 2011
    Posts
    1,934
    Quote Originally Posted by LindaRacine View Post
    Hi Melissa...

    Hang in there. It will all get sorted out. Hopefully, whoever told you that you would not be getting an increased dosage of Lyrica misread orders or something. If your leg pain is neurologic (which I think it probably is), narcotics probably don't help anyway.

    Regards,
    Linda

    Hurray !! I got my increased dosage of Lyrica this morning

    Let's see if it works

    Melissa
    Melissa

    All surgeries are on hold right now

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