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Second Opinion Scheduled with Dr. Lenke Sep 21

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  • #1

    Second Opinion Scheduled with Dr. Lenke Sep 21

    Hi Everyone,

    I reached out to Dr. Lenke's office today and was able to schedule an appointment for Sep 21. This shocked me since I wasn't expecting to get in to see him until next year. His office explained, "... he only takes on the most severe of the severe cases... starting at 70+ degree curves..."

    I explained how Atlanta surgeon cancelled surgery because bone density results not being good. I also explained how I have Aug 24 appointment with endocrinologist to start bone stimulating meds. I specifically asked, knowing about the density results and that I am pursuing help to boost bone density, will Lenke see me. The woman said yes, as long as I am taking steps to improve density, he will see me.

    Can anyone recommend some neighborhoods/hotels to stay that are close to Lenke's office at Parkview Place? We plan to stay an extra day to celebrate hubby's birthday.

    Warmly,
    Doreen
    44 years old at time of surgery, Atlanta GA

    Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
    Post-Surgery curves ~10 degrees, regained 4 inches of height

    Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
    2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!

    http://thebionicachronicles.blogspot.com/
    Tags: None
  • #2
    Doreen-- that's so very exciting that you have an appt. for so soon! Yay!
    71 and plugging along... but having some problems
    2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
    5/4/07 posterior fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
    Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago
    Corrected to 15°
    CMT (type 2) DX in 2014, progressing
    10/2018 x-rays - spondylolisthesis at L4/L5 - Dr. DeWald is monitoring

    Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

    Comment

    • #3
      What great news that you have a appointment so quickly . How many hours drive is it for you from GA?


      Melissa
      Melissa

      Fused from C2 - sacrum 7/2011

      April 21, 2020- another broken rod surgery

      Comment

      • #4
        It's 8 hour drive. We plan to fly.

        How was your day today, Melissa?

        Warmly,
        Doreen
        44 years old at time of surgery, Atlanta GA

        Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
        Post-Surgery curves ~10 degrees, regained 4 inches of height

        Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
        2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!

        http://thebionicachronicles.blogspot.com/

        Comment

        • #5
          Doreen,
          I am so happy that you have an appointment with Dr. Lenke. He's my hero!!! I can't believe you got in to see him so soon. Fantastic!
          Karen

          Surgery-Jan. 5, 2011-Dr. Lenke
          Fusion T-4-sacrum-2 cages/5 osteotomies
          70 degree thoracolumbar corrected to 25
          Rib Hump-GONE!
          Age-60 at the time of surgery
          Now 66
          Avid Golfer & Tap Dancer
          Retired Kdgn. Teacher

          See photobucket link for:
          Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
          Before and After Picture of back 1/7/11
          tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
          http://s1119.photobucket.com/albums/k630/pottoff2/

          Comment

          • #6
            I stayed at the Parkway Hotel, www.theparkwayhotel.com, after my surgery and for my 3 month follow up appointment. It is connected to the Center for Advanced Medicine (CAM) via an elevated walkway. Dr. Lenke's office is in the CAM. This region of St. Louis is called the Central West End if you want to search for other hotels. LisaB stayed in a different nearby hotel. Do try to visit Forrest Park while in town. It is right across the highway from the Barnes-Jewish complex.

            I'd be happy to talk with you. I have a 10 year old (9 at the time of my surgery), so I I understand your concerns. I'll send you a pm with my contact info.
            Kathy
            46 yrs at surgery, now 50
            71 degree thoracolumbar curve corrected to 34 degrees
            8/2/2010 surgery with Dr. Lenke
            posterior T9 to sacrum with pelvic fixation
            4 osteotomies and 1 cage
            http://s1066.photobucket.com/albums/...athK_08022010/

            Comment

            • #7
              Originally posted by Doreen1 View Post
              It's 8 hour drive. We plan to fly.

              How was your day today, Melissa?

              Warmly,
              Doreen
              My day went OK. I called the visiting nurse to come back because I have a very bad rash under my breasts because of the brace and the warmth. While she was here, she looked at my neck and she feels that I have a stitch left in my neck. I have to go to Dr bederman to get it out. I am trying to see if I can find someone to drive me as my husband has taken off some much time already from work

              Melissa
              Melissa

              Fused from C2 - sacrum 7/2011

              April 21, 2020- another broken rod surgery

              Comment

              • #8
                I am so glad to hear you're getting in to see him!!!! Whatever the result, I'm sure it will help you feel more informed about your options.
                Rebecca
                Age: 28
                Dx w/ scoli @ age 12 S curves T-40* L-42*
                wore night bending brace as teenager
                Curves changed to 50's plus or minus
                herniated disc L2-3, Discectomy October 2007
                fusion L2-3 November 2008
                Revision L2-3 Fusion, Removal of hardware August 2009
                Curves measuring 52 T&L September 2010
                Fused T4-L4, all posterior December 27th 2010
                gained almost two inches in height
                Before and After Exterior
                Before and After X-rays
                My blog: http://herscoliosisjourney.blogspot.com/

                Comment

                • #9
                  good for you, so glad you got the appointment. Prior to my surgery, I had a bone density test, and some dummy from a local orthopedic's office called to say I had bad results (not my surgeon's office.) Anyway, they were misinterpreted and not bad at all. Hopefully Dr. L can figure out something to do for you.

                  Good luck,
                  __________________________________________
                  Debbe - 50 yrs old

                  Milwalkee Brace 1976 - 79
                  Told by Dr. my curve would never progress

                  Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
                  Pre-Surgury Thorasic: 66 degrees
                  Pre-Surgery Lumbar: 66 degrees

                  Post-Surgery Thorasic: 34 degrees
                  Post-Surgery Lumbar: 22 degrees

                  Comment

                  • #10
                    Hello Doreen,

                    I just saw Dr. Lenke on July 20th, we stayed at the Hampton Inn & Suites St. Louis at Forest Park...it is on Oakland Avenue and was very close to Barnes Jewish Hosp. Nice Hotel, and if you mention that you are coming for an appt at the hospital you will get a discounted rate (a nice one). I now have a surgery date scheduled and just found out my bone scan was bad as well .....once you meet him I believe you will know he is the one.

                    Take care
                    Spring
                    42 yrs old
                    Milwaukee braced 1983 to 1989
                    was told my curves would never progress
                    at 19yrs old 1991, T30-L38
                    2010, T38-L56--progression in one year 2011, T40-L67
                    new diagnosis-kyphoscoliosis, DDD, Arthritis, Osteoporosis, 73 degree Kyphosis
                    Surgery 1-09-12....10 hrs all posterior T4-sacrum & 2 cages
                    Dr. Lenke-St. Louis Mo.
                    Surgery to clean out infection 2-10-12
                    Revision for broken rods 1-23-14

                    Comment

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