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Originally posted by jrnyc
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Not sure. It definitely puts stress on the knee.Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
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Surgery 2/10/93 A/P fusion T4-L3
Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation -
Side effects?
has anyone had a side effect from steroid injections of low cortisol in
their blood?
i got lab results back....done twice to be sure...very very low cortisol
levels....
wondering if anyone suspects they had same result...caused by steroid
shots....?????
jessComment
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I have not had that problem Jess but I do have a friend who had many injections over a period of years and she now has a disease called Addisions. Her adrenal glands no longer provide cortisol .Originally posted by jrnyc View PostMelissa
Fused from C2 - sacrum 7/2011
April 21, 2020- another broken rod surgeryComment
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hi Melissa
thanks for the info...
my GP, hormone doctor, and doc who does the SI joint shots all said they
thought it wasn't from the shots, because the shots go straight into the joints...
but you are not the first person to tell me the cause of low cortisol
could be coming from steroid injections...
am being sent to endocrinologist after i see my GP Monday...
and....i guess i'll have to stop my SI joint shots for a while at least....
it is just that the pain in hips and lower spine gets so bad, i cannot walk a block!
jessComment
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Good luck.Hope you find some answersOriginally posted by jrnyc View PostMelissa
Fused from C2 - sacrum 7/2011
April 21, 2020- another broken rod surgeryComment
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Melissa, i hope the pain doc you see tomorrow has some answers for you
as well....they have lots of things in their arsenal to address pain...
i hope they figure it out quickly for you....
you have suffered far too long!
my appointment tomorrow is at 3 pm east coast time...
i'll be thinking of you while i wait for my GP
jessComment
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Jess, My appt is at 3pm PT and yours is at 3pm ET. only 3 hours apart. Thanks Jess I 'll be thinking of you as wellOriginally posted by jrnyc View PostMelissa
Fused from C2 - sacrum 7/2011
April 21, 2020- another broken rod surgeryComment
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Melissa, let's compare notes later today....
i hope the pain doc gives you solutions and hope for days of
less pain!
jessComment
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Oh Jess I so hope that you are right. I will post as soon as I canOriginally posted by jrnyc View PostMelissa
Fused from C2 - sacrum 7/2011
April 21, 2020- another broken rod surgeryComment
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Cannot have scoli surgery
for now, the scoli surgery decision is out of my hands...
according to my GP, no major surgery with low cortifol levels...
and mine are super low...causing severe exhaustion...
i saw GP today...
she ordered more blood work, referred me to a good endocrinologist (appt March 9th)
and ordered an MRI of pituitary (March 5th)
she is betting this is from pituitary problem...
i am betting it is from steroid shots i have been getting last 9 months or so....
we shall see...
i am suspending SI joint injections for now....
they give me a lot of pain relief...but i have to find out if they are causing this problem...
wondering how you made out today, Melissa....?
jessComment
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Jess,
I'm sorry to hear of this new medical problem. I hope that they figure it out ASAP! I'll be thinking of you.
Rohrer01Be happy!
We don't know what tomorrow brings,
but we are alive today!Comment
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Sorry to hear of your problems. Hope you get them solved
For me, today was not good. Look for my answer on the September 9th threadMelissa
Fused from C2 - sacrum 7/2011
April 21, 2020- another broken rod surgeryComment
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so sorry to hear it didnt go well, Melissa....
jessComment
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Jess,Originally posted by jrnyc View Post
I'm so sorry you are having problems with your cortisol level. I was under the impression that too many cortisone shots could cause what you are experiencing. I thought that was the reason you could only have three shots a year, at least in your spine. Cortisone from the shots does get into the blood stream according to my Ortho Doc I had back in Massachusetts. That is why I get the flushing reaction when I get a shot. At any rate, I am sure your Doctors will get to the bottom of this and get you back to normal.
Take care, SallyDiagnosed with severe lumbar scoliosis at age 65.
Posterior Fusion L2-S1 on 12/4/2007. age 67
Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
New England Baptist Hospital, Boston, MA
Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/
"In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.Comment
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This is a problem that I was not aware of. I thought the risks of too many steroid injections were damage to the surrounding tissues. I get trigger point injections, so it concerns me a little. I think he uses triamcinolone. I'm not sure which category of steroid that falls into. I should be looking it up! It will be just aweful for you, Jess, if you have to discontinue your injections due to this complication. They have helped you so much. Hopefully your adrenal glands will kick back into gear and start producing like they should.
If you do have Addison's disease, why does this disqualify you for surgery? I know someone with Addison's and he's had at least two surgeries since his diagnosis and a bunch before. He has bad joints and the two since diagnosis are for rotator cuff repairs. Actually, he's had three, because they had to redo one shoulder.
Please keep us informed. They have actually mentioned treating my muscle dystonia at an appointment not too long ago when we were talking about botox. I don't know if they will use it for that here or not. Are you still able to get those?
Take Care,
Rohrer01Be happy!
We don't know what tomorrow brings,
but we are alive today!Comment
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