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Thread: Anyones child had or having growing rods put in

  1. #1
    Join Date
    Jun 2010
    Posts
    23

    Anyones child had or having growing rods put in

    Hi
    It looks as though my 8 year old child needs growing rods put in for her scoliosis.
    I am looking for anyones child who has had or is going to have these put in.
    I would love to hear about your experiences.
    I am a little freaked out about it all.

  2. #2
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,162
    Hi Mommycat,

    I am very sorry to hear this is becoming a possibility for you daughter. As I recall she was being braced for 28 degrees thoracic last you had posted. Did her curve have a large increase to prompt the surgery recommendation?

    There have been a few other families here in the past whose child has had growing rods...you could try doing a search for titles of posts with growing rods and growth rods. and see if you can find them.

    Good luck, and please do let us know how things are going.
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  3. #3
    Join Date
    Jun 2010
    Posts
    23
    Yes we just had an out of brace xray yesterday and her curve has progressed to 42 degrees even being in her brace 22 hrs a day.
    Seems every time we get an xray its always going up.
    The one before this was at 34 degrees, that one was 6 mths ago.
    So as you can see it seems bracing is no longer a good choice, mind you surgery isn,t great either.

  4. #4
    Join Date
    Mar 2005
    Location
    Ukiah CA
    Posts
    891
    i'm really sorry that your daugther might need surgery. i don't have growing rods but I do now about them
    Kara
    25
    Brace 4-15-05-5-25-06
    Posterior Spinal Fusion 3-10-10
    T4-L2
    Before 50T
    After 20T

  5. #5
    Join Date
    Jul 2011
    Posts
    3

    Me too

    Hi, I would be interested too. My 2.5 year old is soon to have this surgery and I'm trying to find information on the different surgical options available.
    Louise

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