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  • #46
    [QUOTE=so_shy;135642]Yes as I explained in another thread and I think in this one too earlier, I saw specialists and they all said I was between mild and moderate and not a candidate for surgery, despite the physical disfigurement. I pleaded with some of them but they said they can't and any qualified doctor would not do such drastic surgery (the rod surgery that some on here have had) to help me overcome the emotional/psychological damage. They made it very clear, a patient's emotional/psychological damage is not a criterion for performing such surgery. They go be severity, by how many degrees the curves are, and if there is progression of the curvature.

    Do you know your cob angle? Do you have pain? Were the "specialists" actual scoliosis surgeons or just orthopedic surgeons? I would normally agree that having surgery on a mild curve for emotional reasons, is probably not wise, but I think when the problem is severe, and a cosmetic improvement would result in regained confidence, in conjunction with counselling, I think it would have to improve your life dramatically. Afterall, I know of cases where stomach stapling procedures were done in order to relieve severe anxiety about self-image, in conjunction with counselling. The reason I ask about scoli surgeons as opposed to orthopedic surgeons, is that I've read some very odd advice regarding scoliosis, given by orthopedic surgeons. I wouldn't waste my time on anyone other than a scoliosis surgeon.

    Meantime, best of luck in your search for some wide-necked t-shirts.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

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    • #47
      i would strongly recommend seeing a top scoli surgeon NOW...
      a decade is a long time...
      how do you know your curves have not worsened....?
      no matter what, it is good to have a scoli surgeon follow you...
      spinal problems often get worse as the years pass...

      just my opinion...it is time to find out what your curves are now, in terms of degrees...
      scoli surgeons are usually the MOST sympathetic of any...so there would be no need
      to be nervous going to see one....


      jess
      Last edited by jrnyc; 02-18-2012, 06:35 AM.

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      • #48
        My son has an obvious right side rib hump especially when he bends and his wardrobe lately has been loose t-shirts with a long sleeve flannel shirt over top that is buttoned/snapped from the bottom to about 2/3 up to the top where his t-shirt shows. I think it looks really good on him and since he is so tall and thin, the extra shirt on top fills him out a bit. I'm thinking that when the weather gets nicer he'll switch from flannel to a light cotton and will wear short sleeves.
        Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
        Halo Traction & 1st. surgery on March 22nd. 2011
        Spinal Fusion on April 19th. 2011

        Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



        http://tinyurl.com/Elias-Before
        http://tinyurl.com/Elias-After

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        • #49
          OK, I hope this picture is more helpful.

          It's four pics in one. First, on the left-hand side, me with my right arm NOT extended and you'll notice I'm "merely" roundbacked.

          But on the right-hand side of the picture, you can see how my hump comes out when my right arm is extended. And you can see how the shirt "hugs my hump."



          http://s1188.photobucket.com/albums/...00001zzzzz.jpg



          I need shirts that won't hug the hump, that are somehow loose and won't outline the hump.

          (When my arm is down at my side, my shirt doesn't look so bad. Again, it's when I use my right arm, the hump comes out. And then I look just hideous in the shirt. If I could go through life with my arms always at my side, I would. But obviously a person can't live like that. Once that arm comes up and is extended, out flies the HUMP.)

          Thank you and I hope I'm not driving people nuts by repeating the same thing over and over. I just am struggling with this, I have been for so long and I'm so frustrated and sad and filled with self-loathing.
          Last edited by so_shy; 02-20-2012, 09:01 PM.

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          • #50
            So_shy,
            Like I mentioned before. I think a nice well fitting men's dress shirt would do the trick. You can have the collar as loose as you want it and the shoulders are generally made wide. You can get them with narrower waists. My son is built with VERY broad shoulders and no hips. He finds shirts to fit his physique. I really think you would be impressed with how that would look. If you want the wider collar, just leave a few buttons undone and wear a tank top or nice t-shirt underneath. I wish you the best. It would be nice if you could take maybe a family member along shopping with you. Take Care.
            Be happy!
            We don't know what tomorrow brings,
            but we are alive today!

            Comment


            • #51
              Originally posted by rohrer01 View Post
              So_shy,
              Like I mentioned before. I think a nice well fitting men's dress shirt would do the trick. You can have the collar as loose as you want it and the shoulders are generally made wide. You can get them with narrower waists. My son is built with VERY broad shoulders and no hips. He finds shirts to fit his physique. I really think you would be impressed with how that would look. If you want the wider collar, just leave a few buttons undone and wear a tank top or nice t-shirt underneath. I wish you the best. It would be nice if you could take maybe a family member along shopping with you. Take Care.
              Yes, I've had better luck with certain kinds of shirts: hooded shirts/hooded sweat jackets and collar shirts. But those are fine for cold weather. It's the spring and summer, when it's hot, over 80 degrees, when I want to be able to wear a T-shirt like most people wear.

              T-shirts like Fruit of the Loom and Hanes, and many T-shirts you find in department stores, "hug" my hump. They accentuate my hump. (again, as seen in picture of me below)

              http://i1188.photobucket.com/albums/...00001zzzzz.jpg

              I'm trying to find:

              (a) wide neck T-shirts that are

              (b) loose in the back, that don't cling to the back but have room, that hang loosely, so as not to highlight my hump.


              If you or anyone know of any such kind of T-shirts, could you please post links to such shirts, the brand name of such shirts, and/or tell me what stores sell them (Macys? Sears? JC Pennys, etc.)
              Last edited by so_shy; 02-27-2012, 05:35 PM.

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