Hi! I was referred to this forum as a resource for some questions I have. My son Zach (15) is severely physically impaired. He is diagnosed with severe spastic cerebral palsy. He had a Selective Dorsal Rhizotomy in 96. The Neurologist opened the spine in the lumbar area and cut selected sensory nerves to reduce the spasticity. Then in 97 he had a g-tube placed to facilitate weight gain. In 2000 he had a Baclofen Pump placed. This pump is in his lower right abdomen with a catheter that feeds through his spinal cord. This delivers medicine that reduces spasticity. Due to have the pump and g-tube he was unable to wear a brace for his progressive scoliosis and now faces rod placement.
His scoliosis is now at 66 degrees and the doctors want to place rods that will run from his pelvis to his upper shoulder blades. He will have anchors into the pelvis from the rod.
Has anyone else had a child with these type of challenges need rod placement and if so would you share your experience, advice, etc. with me?
I understand that weight loss frequently accompanies this surgery?
Thank you so much!
Susan Mahserjian-Smith
His scoliosis is now at 66 degrees and the doctors want to place rods that will run from his pelvis to his upper shoulder blades. He will have anchors into the pelvis from the rod.
Has anyone else had a child with these type of challenges need rod placement and if so would you share your experience, advice, etc. with me?
I understand that weight loss frequently accompanies this surgery?
Thank you so much!
Susan Mahserjian-Smith
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