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  1. #1
    Join Date
    Apr 2011
    Location
    UK
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    18

    Red face Advice needed for a newbie considering her first surgery!

    Hi everyone,

    I'm new here! This is my first post! So to introduce myself quickly- I've just turned 21 and I'm about to graduate Uni over here in England. I was diagnosed with scoliosis aged 15 and its always been a little curve (about 15*) but my kyphosis wasn't a worry until I had a growth spurt between about 16-19 years old. My kyphosis is now at 65 -70 I think.
    Basically I've been told to consider surgery as I have a lot of pain (although I would recommend memory mattress toppers to EVERYONE they're amazing!) so I am thinking about that. I do pilates and have physio to help with the pain but my physio has been stopped because of our national health service budget cuts.

    Anyway...long build up! I went back to my consultant this year because I noticed that my rib cage on my left side had moved forward so much that my underwear and tops fit funny. The hump is on my breastbone level where the gap in your ribs meet (i don't know what thats called sorry!!) I've also noticed a real change in the heights of my shoulders and hips. The appearance of my rib cage is one of the factors that makes me want surgery, all pain aside, but my surgeon said that the hump wouldnt move back.

    I'm still holding out hope that it will, has anyone had kyphosis correction that had protruding ribs/breastbone that were also corrected as a result of surgery.

    Thanks for reading!

    Kate

  2. #2
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,556
    Kate

    It would seem that there would be some (hump) improvement with surgery. Some surgeons don’t want their patients to expect too much.... My surgeon had no guarantees and I was told that I could be fused “as is”. After I was done, it was a big “positive” surprise for me. I had no kyphosis or lordosis issues. The main goals are stopping the curves, and coming out pain free.

    Please remember that older patients are harder to correct. At your age, you have the advantage of your youth going for you.

    If you feel your shoulders and ribs are moving at a fast pace, and have not seen your surgeon in a year, it might not be a bad idea to go and shoot more x-rays to see what’s going on with things.

    There are a few kypho’s here...maybe a few will chime in.

    Welcome to the forum
    Ed
    49 yr old male, now 59, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  3. #3
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,801
    Hi Kate...

    The rib asymmetry would be from your scoliosis as opposed to your kyphosis.

    Hopefully, Toni will comment on this thread, because I don't know if U.K. surgeons are using the same sort of de-rotation techniques that are used here in the U.S.

    Regards,
    Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
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    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
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  4. #4
    Join Date
    Apr 2011
    Location
    UK
    Posts
    18

    Smile

    Hi all,

    Thank you very much for your replies. I saw my surgeon in January '11 and March '11, which is when we discussed surgery. My initial surgeon always seemed very positive about surgery but my last consultation was to try and make a decision and my parents came with me. My usual surgeon was there (Dr James Wilson-Macdonald) but another surgeon too, who seemed to want to discourage surgery, which I can understand but he only looked at my xrays and not my notes (as they were lost...long story!).
    I also found out that the chance of complications is a lot higher than I had originally thought. This has left me a bit confused and my parents now have a really negative attitude towards the surgery, which is bad because they would be caring for me if I had it.

    Thanks for clearing up that rib hump would be from scoli not kypho! Would really appreciate any input from fellow kyphos!

    Kate

  5. #5
    Join Date
    Apr 2011
    Location
    UK
    Posts
    18
    Oh forgot to add that they've left me to make the decision, and from when or if I say 'lets do it' there will be a 6 month wait (as it's the NHS). I have an appointment for more xrays in a years time but I think that I would push for xrays sooner because things to seem to be progressing quite fast and I know my last progressions happened after I stopped growing- which can't be good.

    I was told that the more my curve increases, the greater the risk of the surgery. Sorry for waffling on, I'm just so happy to find people that will know what I'm feeling!

    Kate

  6. #6
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,903
    At some point, one of these surgeons should be telling you what the progression rate is for the scoliosis and the kyphosis. It sounds like you have radiographs over time so they can do this.

    I don't see how you can decide without those pieces of information although the pain may make the decision for you.

    Good luck.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

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