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Thread: 2-Year Check

  1. #1
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250

    2-Year Check

    Hi all--
    Just wanted to share my appt. info. I am completely fused so that is great! As soon as I looked at the x-ray I could see that my lean to the left had increased since my last check. That metal "ladder" leaned more. Dr. Lenke said it was over somewhat and that there is often "settling." My rib hump had never been measured until my one-year when it measured at a 12 degrees. It is now at 14. I don't like it but can live with it if it won't get worse. He said since I am totally fused now it shouldn't change. Is that the experience of others?? He reminded me that with all the rotation I had, etc. the spine was straightened but awfully hard to change the rest that much. Therefore, some twisting remains.
    I asked about yoga, and he said go for it. Do whatever. His p.t. person was showing me a couple exercises for various sore spots I deal with. She said no way to yoga! Also thought Zumba was out of the question and that I shouldn't do anything that causes you to twist back, wiggle hips any direction, or kick back legs. Kelly said she's super conservative and Kelly seemed to side more with Dr. Lenke. All of that gets confusing.

    Laura (radio girl)--I don't think I found your friend. (As they called me in someone came in who could have been but didn't get a chance to ask.) I asked one lovely lady in the office if she might be your friend. She wasn't but I found out she reads us all the time and is still contemplating surgery. Didn't get to see her after but sure hope she got some answers. And...hope she might join us & tell us how her appt. was.
    Overall, I think it was pretty good. As Kelly said after back surgery & at my age you are probably just going to have a lot of extra aches and pains. I'm still so much better than some so I'm very grateful for that! Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  2. #2
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    Thanks for the update Janet - it's great to know you're fully fused! Congratulations! Have you been discharged, or are you going back in a year?
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  3. #3
    Join Date
    Apr 2011
    Location
    Northern Virginia
    Posts
    213

    Congratulations on the two year mark

    Congratulations on being fully fused. Interesting the differences in opinions in what different medical personnel said you could do. I would wonder about yoga in that it is bending and stretching--and wouldn't that put a strain on the hardware in the back?

    Just a newbie to the start of the progress and trying to equate putting scews in your back to what happens when you use scews in other building materials. Okay, probably a weird analogy...

    Anyway, congratulations! Also thank you-your many posts are very helpful.

  4. #4
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Thank you both. And I am cleared until 3 years from now! Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  5. #5
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445
    Janet,
    So glad to hear you are doing well. There certainly are more aches and pains as we age, but it is better than the alternative.
    Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  6. #6
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,690
    Janet,
    I am sure that is is reassuring to know you are totally fused. I am assuming that the PT that you talked to was Janet. I saw her before my surgery and then again at 3 months. She is very conservative, but I'd rather be safe than sorry. Did you ask about Pilates? I would think that would be easier on your back.
    Congratulations!
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  7. #7
    Join Date
    Jun 2009
    Location
    Los angeles
    Posts
    122
    Congrats Janet!!!
    2 post-op! I cannot wait! hahaha!
    2 degrees is nothing compare to what we used to have. Enjoy your accomplishment!.
    Pilar
    Scoliosis Diagnosed at age 12. Wore Milwaukee brace for 2 years.
    Now age 32
    Pre-op curves: C86-T98-L37
    Surgery date: 12/6/2010 (anterior) 12/10/2010 (posterior)
    Fused T2 to L5 with thoracoplasty.
    Post-op curves: C48-T47-L17
    Dr. Robert Pashman
    Cedars Sinai, Los Angeles, CA
    Before and after xrays :
    http://www.scoliosis.org/forum/attac...5&d=1292969215

  8. #8
    Join Date
    May 2010
    Location
    Indianapolis area
    Posts
    966
    Complete fusion! That's wonderful, Janet!!

    A couple of questions:
    Do you know what your rotation was before surgery? (Just curious--mine is severe.)
    Also, do you know if you were completely fused at year one? I'm just wondering if fusion continued into the second year?

    Congrats again!
    Evelyn
    age 44
    80* thoracolumbar; 40* thoracic
    Reduced to ~16* thoracolumbar; ~0* thoracic
    Surgery 3/14/12 with Dr. Lenke, T4 to S1 with pelvic fixation
    Not "confused" anymore, but don't know how to change my username.

  9. #9
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Golfnut--Yes, it was Janet the pt lady. I didn't mention pilates but I have done it pre-surgery. I think it would be somewhat similar.
    Confusedmom--I had never had the rotation measured before or after surgery. When I went for my one year and was concerned that it had gotten worse since surgery is when they measured it at 12; now it is 14. I have no idea what it was pre-surgery or what most people would have with a 96 degree upper curve. At one year he said I was fusing and now at 2 said I was completely fused so it must have still been ongoing. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  10. #10
    Join Date
    Feb 2010
    Location
    Ohio
    Posts
    200
    Congratulations on the fusion, Janet! Could Dr. L. determine from your x-ray that you were fully fused?

    I've been chuckling to myself ever since I read this post...all I can think about are boxes of cereal, and the like, with those warnings that read "contents may shift...some settling may occur"!!! So for us, life is like a box of cereal, not a box of chocolates? (smiles)
    Kathy
    46 yrs at surgery, now 50
    71 degree thoracolumbar curve corrected to 34 degrees
    8/2/2010 surgery with Dr. Lenke

    posterior T9 to sacrum with pelvic fixation

    4 osteotomies and 1 cage
    http://s1066.photobucket.com/albums/...athK_08022010/

  11. #11
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Good one, Kathy. I think I'm a box of Fruit Loops. I even had him point out the "fusion" stuff which he said showed I was totally fused. To my untrained eye, I really couldn't tell much. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

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