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Thread: CA bound

  1. #31
    Join Date
    May 2009
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    3,745
    CA has extremely capable surgeons, second perhaps to NYC in regard by other doctors and surgeons...not to negate the middle of the country, but CA docs take a back seat to no one!

    mind you, the docs asked about CA vs. NYC were New Yorkers, as is this writer...so you may assume a tiny bit of slight favoritism...but all doctors i consulted said i should be on one coast or the other for my scoli surgery if i had a choice!
    i'd put my money on almost any scoli surgeon in CA on SRS list, or at Cedars Sinai for openers (& aren't you in southern CA, Melissa?)

    jess

  2. #32
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,691
    Melissa,
    I feel bad for all that you have gone through but think that you have a good surgeon and that eventually your pain issues will be resolved. You have to be tough if you have scoliosis. You have been tested more than most!!! Good luck.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  3. #33
    Join Date
    Dec 2009
    Location
    NC
    Posts
    791
    Thanks everyone for your replies. This is the explanation from Dr B.


    As for your situation -- the lumbar nonunion is a smaller problem although it probably accounts for the majority of your pain. It appears that your spinal cord has some damage to it which accounts for your weakness and abnormal reflexes. There is also some ongoing compression which is making things worse. It is difficult to know how much recovery (better strength in your left arm and leg) is possible. Part of the reason for this is that you have a significant curve near the junction of the cervical and thoracic spines that was uncorrected and that the location of the surgery in your neck was at an unstable area where you normally bend to straighten up your head.
    In your lumbar spine you will need a revision to get the fusion to take and replace the broken hardware. For your neck, you will need a correction of the curve between C7 and T3 and stabilization past your cervical fusion above C5. Depending on what type of hardware you have in place it may make more sense to replace everything and use different material.
    In order to better understand what happened with your neck surgery and to determine what implants were used I will need all of your operative reports.
    The CT myelogram will show us in more detail where the fusion is not taking place (both lumbar and cervical) and better detail of where there is ongoing spinal cord or nerve compression.
    Once we have the myelogram and OR notes, we can then make a decision in more detail about what needs to be done.
    Let me know if this makes any more sense.



    Melissa

  4. #34
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,801
    Hi Melissa...

    You might want to ask Dr. B. what he means by "stabilization past your cervical fusion above C5".

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  5. #35
    Join Date
    Dec 2009
    Location
    NC
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    791
    Quote Originally Posted by LindaRacine View Post
    Hi Melissa...

    You might want to ask Dr. B. what he means by "stabilization past your cervical fusion above C5".

    --Linda
    I will do that
    Thanks
    Melissa

  6. #36
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    I think you're at last on the right path Melissa. I am wondering if it's ethical to state your first surgeon's name...I'm thinking future patients in NC may need to know...to avoid. I know that I would want to know if I lived in NC and was considering spinal fusion surgery.

    I hope you can get the information to Dr. Bederman that he needs to expedite this for you. Thinking of you. I come here every day to get news, and it seems since you've seen Dr. Bederman, things have moved quite quickly, including getting the all important reason for your pain. Hang in there Melissa, things are going to improve!
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  7. #37
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445
    Hi Melissa,
    At least, now it sounds like Dr. B has a plan for you. Hang in there. We are all pulling for you.
    Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  8. #38
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Dr. B does sounds very articulate and I have a good feeling about him and if Linda personally recommended him to you, I would definitely listen to what he has to say. I hope he sorts everything out for you Melissa.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  9. #39
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,555
    [QUOTE=Ballet Mom;120779]My own thinking is to get the non-fusion fixed immediately and hopefully get relief from that pain. Then spend quite a bit of time getting these other opinions from the best doctors you can afford. I would NOT be in a rush to get any part of Dr. Bederman's plan done other than fixing the non-fusion. Make sure at the consults the doctors describe to you what your quality of life will be after such a procedure. They should be upfront with you. You are the one who will be living with anything done, after all.
    QUOTE]

    I agree with this. Fix the bottom first, then wait. One thing at a time.
    Hang in there Melissa
    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  10. #40
    Join Date
    Dec 2009
    Location
    NC
    Posts
    791
    Quote Originally Posted by LindaRacine View Post
    Hi Melissa...

    You might want to ask Dr. B. what he means by "stabilization past your cervical fusion above C5".

    --Linda
    Probably best to go up to C2. Anything below that has a high risk of failure. C2 keeps 50 percent of your neck motion.

  11. #41
    Join Date
    Dec 2009
    Location
    NC
    Posts
    791
    Thanks everyone for your good wishes

    Melissa

  12. #42
    Join Date
    Mar 2009
    Posts
    1,090
    Hi Melissa,

    Did you call Dr. Lenke's office and try to get an appointment? It is really important that you get at least a second and probably a third opinion on what Dr. Bederman is proposing to do.

    Here is Dr. Lenke's number in case you can't find it:

    http://wuphysicians.wustl.edu/physic...px?PhysNum=845


    And personally, I would call Dr. Johnson also:

    http://www.spineexperts.com/md-jpatrickjohnson.htm


    Please get additional opinions before committing to anything.

  13. #43
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,801
    Quote Originally Posted by Ballet Mom View Post
    Hi Melissa,

    Did you call Dr. Lenke's office and try to get an appointment? It is really important that you get at least a second and probably a third opinion on what Dr. Bederman is proposing to do.

    Here is Dr. Lenke's number in case you can't find it:

    http://wuphysicians.wustl.edu/physic...px?PhysNum=845


    And personally, I would call Dr. Johnson also:

    http://www.spineexperts.com/md-jpatrickjohnson.htm


    Please get additional opinions before committing to anything.
    Did you think you Melissa didn't hear you the first time you said it? It's one thing to encourage and recommend, it's another thing to harrass someone with one's opinion.
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  14. #44
    Join Date
    Mar 2009
    Posts
    1,090
    Quote Originally Posted by LindaRacine View Post
    Did you think you Melissa didn't hear you the first time you said it? It's one thing to encourage and recommend, it's another thing to harrass someone with one's opinion.
    That's ridiculous. Really.

  15. #45
    Join Date
    Jun 2009
    Posts
    311
    Quote Originally Posted by mbeckoff View Post
    Probably best to go up to C2. Anything below that has a high risk of failure. C2 keeps 50 percent of your neck motion.
    That's really good to know. . .and (I think) very encouraging, too.

    I'm anxious to hear what the plan is, as it unfolds. I take it that you are going to have one heck of a long fusion, but if it's what's needed to live a decent life, then it's a good thing. (No one can say that I won't end up similarly, and if that should happen, I will look at you as an inspiration.)
    I totally get how much pain the non-union causes (3 of my 12 levels didn't fuse, and after about a month post my hardware removal, the pain was indescribable until my next surgery. . .I swear, I think I would have preferred to spend those 10 or so weeks in labor w/a breech 10 pounder!) The first time that I stood up after my last surgery, even though I was in the pain we expect, I was keenly and gratefully aware that the pain I had been in was totally gone. I hope that you have that same happy experience.

    I'm very happy for you that, even if it can't get here quickly enough, it sounds like relief is on the way.
    Fused T-3 to L-3, Aug 25
    Hardware removal surgery, Nov 2, 2010
    Fused T-10 to L-2, osteotomy, Feb 22, 2011

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