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Thread: CA bound

  1. #91
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    Sounds good Melissa. Sounds like you're on the right track at last. Best of luck with the move.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  2. #92
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    I have made it to CA. Trying to get unpacked enough so when i get home i will be comfortable.

  3. #93
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    Have been wondering how/where you are - I'm glad the move is over, it can't have been easy.

    When is your surgery scheduled Melissa?
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  4. #94
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    My surgery is scheduled for July 18, Next week, I have to have a MRI and a EMG . Then the following week, I have my Pre-op testing and my last appt with my surgeon before my surgery. The move is OK. What ever we need in the rental is unpacked. My problem is that since I know no one here, I do not know what I am going to do when I get home from the hospital . I will not be able to drive and here in Southern CA , you must drive to get any where

    Thanks for the good wishes

  5. #95
    Join Date
    Oct 2010
    Location
    Houston
    Posts
    14

    Hi Melissa,

    Hi Melissa,
    I really feel for your circumstances. I would like to suggest for you to get a referral for a home care agency and set up for post-op nursing, PT, OT and a homehealth aide. I am guessing you will probably go to rehab after the hospital. The time in rehab really helped me come home in better condition. You will also need to have a primary care physician. They often have agencies they prefer or your surgeon may. I am a home care OT and after my scoliosis revision I referred myself to my own agency. You may even be able to start before surgery. All agencies are different, I don't know if you have any experience with them. They also should have a social worker who could help you plan for additional services not covered by home health, ie. meals, shopping, transportation etc. Wish I lived closer, I'd be glad to help. There is help out there. Maybe someone in CA can connect you with an agency or help they liked. So sorry you are alone with all this.
    Take care, Cyndi

  6. #96
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    I had such a really bad day today. I have been in so much pain the last week or two that I cannot wait for July 18. Today, however, I had a MRI and an EMG. Both of which caused my pain levels to escalate. I thought that during the EMG I was going to pass out because of the pain.It was that bad. It is the third time that I have had that test and it never hurt so much


    Melissa

  7. #97
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    I'm sorry to hear that Melissa. I hope you still have the medication to bring down those pain levels quickly. It's July 8 here, only 10 days to go and you'll be on your way to your well-deserved, long-awaited new, better, happier life. Keep that goal in mind. Not long now.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  8. #98
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    Quote Originally Posted by JenniferG View Post
    I'm sorry to hear that Melissa. I hope you still have the medication to bring down those pain levels quickly. It's July 8 here, only 10 days to go and you'll be on your way to your well-deserved, long-awaited new, better, happier life. Keep that goal in mind. Not long now.
    I know it is not long now. I keep counting the days
    Thanks. No pain medicine is helping.

    Melissa

  9. #99
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Melissa--
    I know you must be counting the seconds. You so deserve the relief which will come soon. Hang in there--deep calming breaths and positive thoughts. So hard, I know. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  10. #100
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Just thought of something. Did you ever do the Peggy Huddleston tapes or read her book. I found it was somewhat helpful before surgery. When pain meds aren't working, you try everything.
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  11. #101
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    Quote Originally Posted by Doodles View Post
    Just thought of something. Did you ever do the Peggy Huddleston tapes or read her book. I found it was somewhat helpful before surgery. When pain meds aren't working, you try everything.
    I never did but just requested it from my library

    My daughter and I were in Ames IA last summer. Lovely place

    Melissa

  12. #102
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Thanks, Melissa. It is a great place to live. Moved here in '98. Nice little university town. I hope the book can help you some. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

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