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I'm sure people are sick of hearing about my problems. I honestly have come to believe I am just probably the surgery gone wrong story. The auto-immiune problem is still very difficult in my legs and so far still no answers as to whats causing it. After we asked my last RA questions on why she put me on a chemo drug and prednisone tabs for over 2 mosm as well as Pred 3 injections without having a diagnosis-and she still doesnt, and then upped my methorexate dosage, she has completely thrown me under the bus. My tongue was burnt, had a hard time talking, my hair was falling out, everything smelled burnt to me only, and everything tasted bad. These drugs side effects are bad, besides slowing healing and osteoporosis. She now stated in my recent med report from my last visit that she never saw any symptoms, and also falsely stated in my med report that (at my last visit when we asked the questions ) she feels "there is a psychiatric componant" and that she "suggested a psychiatrist but the patient feels she doesnt need it." She never said anything of the sort at this or any office visit. How can a dr get away with saying something like this when its completely untrue ? We were just devastated when we read this. Can a dr LIE and say whatever they want in your med report and get away with it? The visit was straight forward and polite but we asked questions she did not like. In turn she has worded her report of this visit so oddly that it sounds like I came to her ON the meds already, and she doesnt even acknowkege she put me on them. The report has other false statements. But what does a person do or make of this? I have had the WORST luck with drs I could ever imagine.
The pain I had from the prior Shingles seemed to subside, but Ive still hd terrible pain where this bump Ive mentioned before is near my incision in the upper back area. From the CT I was told it appears it could be the screw irritating. This dr was a 2nd opinion. He said removal of the hardware at 6 mos might be a good idea if i have fusion. At 4 1/2 mos that appeared just 50% some areas not, and Im waiting on a bone growth stimulator if my ins approves it. This pain is so intense still and it feels like the screw, if thats what it is there, is tearing me apart with every move. I still have a phobia that its another unabsorbed suture. Every dr avoids that question and doesnt even mention it in my med reports that it was discussed.The only relief I have is laying down and I prop my left side up with a towel. It stings so bad. Laying on my sides is also very painful. Now in the past week and a half, the middle of my back feels like dagger is in me. It feels like the wind is kicked out of me all the time when Im up. I am having a very hard time standing up straight anymore. I measured 5' 5" at my last few other dr apts and after my scoli surgery I was 5' 7". I feel like I' going crazy. Am I ? Maybe the RA dr is right..My dr looked at me like I was probably imagining it, and didnt even measure me..He said my pain is probably nerve damage from the Shingles I had. That does make sense for some of it. The screw sticking out, nt shingles pain. The mid back pain is no where near where the shingles was. Its about where the end of the rod is. I feel like the hardware is hanging in me.. like somethings wrong. My surgeon said to just go to pain managment. My friend who comes with me to all my apts intervened and spoke up this time and now I'm getting another CT. ( Had one 3/18, but didnt have this new pain).My surgeon is a genius at talking without literally saying anything at all. I leave there absolutely lost..I think he feels its all in my head, or its like he has this ego and wont admit there could be ANYthing wrong after the surgery. Even the suture he told me to ignore for 7 weeks until it nearly popped out of my skin. I need a another surgeon. If you have a great surgeon from the SRS in Mn PLEASE let me know. I am a good person, I am honest, I do have pain, and I need help. I have had not so good drs, I am not crazy. I really want to get better and LIVE again.
The pain I had from the prior Shingles seemed to subside, but Ive still hd terrible pain where this bump Ive mentioned before is near my incision in the upper back area. From the CT I was told it appears it could be the screw irritating. This dr was a 2nd opinion. He said removal of the hardware at 6 mos might be a good idea if i have fusion. At 4 1/2 mos that appeared just 50% some areas not, and Im waiting on a bone growth stimulator if my ins approves it. This pain is so intense still and it feels like the screw, if thats what it is there, is tearing me apart with every move. I still have a phobia that its another unabsorbed suture. Every dr avoids that question and doesnt even mention it in my med reports that it was discussed.The only relief I have is laying down and I prop my left side up with a towel. It stings so bad. Laying on my sides is also very painful. Now in the past week and a half, the middle of my back feels like dagger is in me. It feels like the wind is kicked out of me all the time when Im up. I am having a very hard time standing up straight anymore. I measured 5' 5" at my last few other dr apts and after my scoli surgery I was 5' 7". I feel like I' going crazy. Am I ? Maybe the RA dr is right..My dr looked at me like I was probably imagining it, and didnt even measure me..He said my pain is probably nerve damage from the Shingles I had. That does make sense for some of it. The screw sticking out, nt shingles pain. The mid back pain is no where near where the shingles was. Its about where the end of the rod is. I feel like the hardware is hanging in me.. like somethings wrong. My surgeon said to just go to pain managment. My friend who comes with me to all my apts intervened and spoke up this time and now I'm getting another CT. ( Had one 3/18, but didnt have this new pain).My surgeon is a genius at talking without literally saying anything at all. I leave there absolutely lost..I think he feels its all in my head, or its like he has this ego and wont admit there could be ANYthing wrong after the surgery. Even the suture he told me to ignore for 7 weeks until it nearly popped out of my skin. I need a another surgeon. If you have a great surgeon from the SRS in Mn PLEASE let me know. I am a good person, I am honest, I do have pain, and I need help. I have had not so good drs, I am not crazy. I really want to get better and LIVE again.
) I am praying.
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