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  • Curve getting worse and painful...

    My daughter has been in pain the past few days, her back has been hurting her to the point of tears... I don't know what to do and I don't know how she is feeling. It is VERY obvious that her back is getting worse, her back and front looks much different than it did a few weeks ago, she's looking more sunk in from the front on one side. Normally her back doesn't look too bad because she is never out of the brace long enough to see the true curve but right now I can see more than I ever have before. We will find out on Tuesday at her Pre op what her curve is now.

    Her brace is too small for her now, or maybe because of the change in her curve and we can't even get it done up fully anymore, we can't pull the straps as far as they are supposed to go, I guess we will have to get another adjustment but I don't know that it's going to help at this point.

    Her surgery is in 4 1/2 weeks, I really hope these weeks pass quickly, even though I hate that she will have to have surgery and I am dreading it.
    Marlowe mom to Halle (age 11)
    Diagnosed January 11/08
    In Spinecor Brace for 2 1/2 years

    In the Cheneau Brace for 10 months
    Being treated at Sick Kids Hospital - Dr. Reinhard Zeller

    Surgery Scheduled at Sick Kids for May 16, 2011


    http://hallesscoliosis.blogspot.com/

  • #2
    My son's back pain got really bad about a month or so before his first surgery on March 22nd. (second on Tuesday) and I talked to the pharmacist about it and he suggested Tylenol with a built-in muscle relaxer. It seemed to work fairly well as it eased the pain and relaxed his super tense back muscles.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

    Comment


    • #3
      Good idea, I should look into something like that for her. I gave her some children's advil before bed and a back rub. I wonder if she would be allowed to take something with a muscle relaxer in it being only 11 years old. I will have to look into it! Thanks Elisa!
      Marlowe mom to Halle (age 11)
      Diagnosed January 11/08
      In Spinecor Brace for 2 1/2 years

      In the Cheneau Brace for 10 months
      Being treated at Sick Kids Hospital - Dr. Reinhard Zeller

      Surgery Scheduled at Sick Kids for May 16, 2011


      http://hallesscoliosis.blogspot.com/

      Comment


      • #4
        I was told that one week before his surgery he had to stop taking any Advil, Ibuprofen and anything else that thins the blood. Not sure about the Tylenol but maybe someone else will know. I played it safe and stopped all over-the-counter medication and he toughed it out with deep heat rub (A535 type topicals) as well as back massages, heated up corn bags in the microwave and a plug-in heating pad. March 22nd. could not come fast enough!
        Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
        Halo Traction & 1st. surgery on March 22nd. 2011
        Spinal Fusion on April 19th. 2011

        Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



        http://tinyurl.com/Elias-Before
        http://tinyurl.com/Elias-After

        Comment


        • #5
          Great to know, I didn't even think about the fact that Advil thins the blood!
          Marlowe mom to Halle (age 11)
          Diagnosed January 11/08
          In Spinecor Brace for 2 1/2 years

          In the Cheneau Brace for 10 months
          Being treated at Sick Kids Hospital - Dr. Reinhard Zeller

          Surgery Scheduled at Sick Kids for May 16, 2011


          http://hallesscoliosis.blogspot.com/

          Comment


          • #6
            Originally posted by MJB View Post
            Great to know, I didn't even think about the fact that Advil thins the blood!
            I wasn't thinking about that either, it was when I spoke to admissions a few weeks before his surgery, the fellow on the phone told me. He also said to make sure I did my best to keep him healthy otherwise they'd probably have to reschedule. I was a nervous wreck anytime anyone was around and sneezed. I even decided to take him out of school a couple of days earlier b/c I did not want him getting a cold/flu and getting all congested. It was a pretty stressful time for me and was so relieved when the actual surgery date came and he was healthy.
            Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
            Halo Traction & 1st. surgery on March 22nd. 2011
            Spinal Fusion on April 19th. 2011

            Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



            http://tinyurl.com/Elias-Before
            http://tinyurl.com/Elias-After

            Comment


            • #7
              wow, that's a good point... I wonder if I should keep her home the week before too, I don't want her to get sick! I mean she is already missing 6 weeks of school, what's another week gonna do?
              Marlowe mom to Halle (age 11)
              Diagnosed January 11/08
              In Spinecor Brace for 2 1/2 years

              In the Cheneau Brace for 10 months
              Being treated at Sick Kids Hospital - Dr. Reinhard Zeller

              Surgery Scheduled at Sick Kids for May 16, 2011


              http://hallesscoliosis.blogspot.com/

              Comment


              • #8
                MJB,
                Sorry your daughter's pain is getting worse. I tried to PM you, but your inbox is full.
                CAmomof2

                July 07 - T 26*
                Aug 08 - curve now 22*
                Sept 08 - SpineCor Brace (in brace 17*) Ste. Justine
                March 09 - in brace 14*
                Aug 09 - in brace 14* / MRI normal
                Feb 10 - in brace 18* - had an oob xray - now 35*
                June 10 Considered VBS T 32*, L 27* , Stopped SpineCor brace
                Sept 10 T 38*, L 26*
                April 11 T 45*, L 31*
                July 11 T 51*, L 37*
                MIS SURGERY - NOV 28, 2011 / Age 12 / Fused T4 - T12

                Comment


                • #9
                  Hi Marlowe,

                  I'm sorry to hear your daughter's pain is increasing and that the curve seems to be progressing rapidly.

                  I would call your daughter's orthopedist, I suspect he wouldn't insist she try to wear her brace at this point, it is obviously not doing any good. And it sounds really horribly uncomfortable for her to try and wear. Poor thing. You could ask about pain relief at the same time.

                  Comment


                  • #10
                    Originally posted by CAmomof2 View Post
                    MJB,
                    Sorry your daughter's pain is getting worse. I tried to PM you, but your inbox is full.
                    Thank you! I deleted messages in my inbox!
                    Marlowe mom to Halle (age 11)
                    Diagnosed January 11/08
                    In Spinecor Brace for 2 1/2 years

                    In the Cheneau Brace for 10 months
                    Being treated at Sick Kids Hospital - Dr. Reinhard Zeller

                    Surgery Scheduled at Sick Kids for May 16, 2011


                    http://hallesscoliosis.blogspot.com/

                    Comment


                    • #11
                      Originally posted by Ballet Mom View Post
                      Hi Marlowe,

                      I'm sorry to hear your daughter's pain is increasing and that the curve seems to be progressing rapidly.

                      I would call your daughter's orthopedist, I suspect he wouldn't insist she try to wear her brace at this point, it is obviously not doing any good. And it sounds really horribly uncomfortable for her to try and wear. Poor thing. You could ask about pain relief at the same time.
                      Thank you! We are going for her pre-op on tuesday, I don't know if we see her orthopaedic surgeon or not, I just can't see him saying she can stay out of the brace until surgery, I would worry that in those 4 weeks she will get much worse.
                      Marlowe mom to Halle (age 11)
                      Diagnosed January 11/08
                      In Spinecor Brace for 2 1/2 years

                      In the Cheneau Brace for 10 months
                      Being treated at Sick Kids Hospital - Dr. Reinhard Zeller

                      Surgery Scheduled at Sick Kids for May 16, 2011


                      http://hallesscoliosis.blogspot.com/

                      Comment

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