Hi! My daughter Sabrina is 9 1/2 so technically in the Juvenile category but the doctors have labelled her as Adolescent. She was diagnosed at the end of February and since that time we have seen 3 different doctors and have an appointment with a fourth in Houston next week.
We have taken the Scolioscore test but do not have results yet. I have not made up my mind how I feel about that test.
For now the consensus among the doctors we have seen is to put her in a Charleston brace overnight. We will check her again in 3 months to see if her curves have held. If not, we will re-evaulate that decision and explore other options (VBS, TSLO, etc).
She went to get measured today for the brace and it will come in about 2-3 weeks from now. In the interim, I am trying to figure out how to make this as comfortable as possible for her.
Does anyone have experience on what I can do to help her through this transition into a nighttime brace? I read somewhere about Under Armor. Is this the best kind of "nightgown"? How about body pillows? Mattress toppers? Any suggestions?
I am not sure where our journey will take us long term but it is definitely going to be a journey.
Thanks again for your help and my apologies if I posted on the wrong forum.
Mati
We have taken the Scolioscore test but do not have results yet. I have not made up my mind how I feel about that test.
For now the consensus among the doctors we have seen is to put her in a Charleston brace overnight. We will check her again in 3 months to see if her curves have held. If not, we will re-evaulate that decision and explore other options (VBS, TSLO, etc).
She went to get measured today for the brace and it will come in about 2-3 weeks from now. In the interim, I am trying to figure out how to make this as comfortable as possible for her.
Does anyone have experience on what I can do to help her through this transition into a nighttime brace? I read somewhere about Under Armor. Is this the best kind of "nightgown"? How about body pillows? Mattress toppers? Any suggestions?
I am not sure where our journey will take us long term but it is definitely going to be a journey.
Thanks again for your help and my apologies if I posted on the wrong forum.
Mati
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