Desperately Seeking Answers

[susannajon]

maryc,

Glad to help! Merry Christmas to you.

Susanna

[momoflacrosse]

my two cents worth

Hi:

I can relate to your story - I am 51 was diagnosed at 14 by the top orthopedist in Canada and had no treatment other than observation. At 40 I started to fall apart. My curves were 37 and 28 in 1995 and now less than 10 yrs later they are 60 and 40. My CT scan shows no stenosis or other major issues except degeneration. I am in pain 24/7 and the 2 surgeons I have seen consider my issues to be nothing more than normal. The last one only was concerned that I have a drug dependency issue. I have one more surgeon to see and at this point am at least hoping to like this one. I do not have my heart set on surgery but would at least like to be taken seriously by the dr's. My thoracic curve has a big twist as well and my rib cage causes me quite significant pain. Lately my hip has been terrible and at 1st my GP thought it was bursitis but my physiotherapist feels it is due to problems in my lower back. As you can tell I am very frustrated by this whole thing but have not given up i will continue to haunt the specialists till I find one that listens and takes me seriously. My next stop is to the pysiatrist who is also an orthopedic specialist but treats on the rehab side of things. I hope he has some ideas. Up until 10 yrs ago I worked full time at a great paying job, downhill skied, did synchronize swimming and led a very active life - now I can't do much of anything , am on disability have been bankrupt and generally lead a life of nothing. I would just like to be able to do some of the things from before and not hurt all the time - sorry for whining but sometimes that helps too lol. I wish you the best of luck in your search for a solution and please feel free to keep in touch if you need someone to listen, n.howe@sympatico.ca
All the best

Nancy