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Thread: Scoliosis & Heavy Metal Allergy

  1. #16
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    i had a friend who had all his fillings removed...made no difference to his health...

    my spine started curving before i ever had a filling in my mouth!
    maybe i should blame the braces i had in my teens...
    funny, my nephew had braces a lot longer than i did..no scoli!
    i've heard all kinds of things blamed on mercury poisoning...but never seen it proven!

    jess

  2. #17
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    If this is true, we would see a decrease in incidence of scoliosis as alternatives to amalgam have become more popular. I bet there are young mothers with no metal fillings who have children with scoliosis who also have no metal fillings.

    My mother has a mouth full of metal. My dad did too but has recently had it all replaced. All my fillings and my sister's are composite. And yet I am the only one in my family with scoliosis.
    1993, Age 13, 53* Right T Curve w/ Left L compensatory
    2010, Age 30, 63* or 68* (depending on the doc) Right T Curve w/ Left L compensatory

    http://livingtwisted.wordpress.com/

  3. #18
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    I don't think it is being claimed that al cases of Scoliosis are due to heavy metal allergy but if some are and the toxicity is treated in time, is that not still worth something?

    Neither have I been 'scared' into anything - I'm too long in the tooth for that! However, I have been very poorly for many years and want to feel as well as is possible for whatever time remains. I also have a daughter in her mid-teens and I want to know I have done my best for her if she is unfortunate enough to develop Scoliosis too.

    I agree with you that the professor cannot state emphatically that my Scoliosis is due to metal allergy but I am of the opinion that there is enough evidence to make it worthwhile being tested. Believe me, no-one talks me into any procedure and I take all my own risks and decisions based on whatever knowledge and information is available to me at the time. There are a lot of people out there making exaggerated claims about 'cures' or 'tests' and I am not so naive as to be taken in by them all. However, now and again something comes to your notice which deserves further investigation and I feel this is one such case. It may come to nothing but I intend to satisfy myself that I have not missed out on a considerable improvement to my quality of life by throwing the baby out with the bath water.

  4. #19
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    Agreed, it is worth investigating.

  5. #20
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    Quote Originally Posted by AndreaM View Post
    You may ridicule but can they really all be wrong?
    Yes of course they can all be wrong. In fact that is the most likely scenario.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  6. #21
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    That whack job chiro from that site you used as a reference is definitely wrong, not to mention dangerous and no doubt a money grabber as well but that I'm just guessing at. By all means I think you should continue to investigate the possibility of allergies to heavy metal but that particular site is a total turn off for me personally.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  7. #22
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    If I might...

    When dealing with medicine and when interested in the highest quality information possible, look for .gov and .org sites. Don't waste time with .com sites.

    Now among the .gov and .org sites, there is still going to be counterfactual material. The thing is there is likely less of it on those sites compared to .com sites.

    Last, check Quackwatch for listings of known nonsense.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  8. #23
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    Hypocritical Standards

    Wow, I am really shocked at the negative and hurtful comments that have been posted in reply to your first comments! A fair amount of people on here seem to poo-poo any idea that is not set in granite instead of from the ancient, official ones, many-of-which frankly are also unresearched, or researched very suspectly or inconclusively or provide inconsistent results. It seems like that is their only purpose, to cut down any alternatives or new ideas. Well, it is only new ideas and hypotheses that give birth to the new theories and "facts" that they are so eager to defend. It is called research.

    And this is not-to-mention that it is hurtful to the person sharing their ideas with other victims. You're right, it is ridicule. Is their point to ridicule you? If their point is to expose fraud, then they should send their comments to either the alternative practitioners themselves, or to a federal medical fraud agency.

    Every medical drug and non-medical treatment ALL make the disclaimer that the information provided does not constitute or replace medical advice. They all say that only a medical doctor can give you medical advice. Does that automatically invalidate their legitimacy? Then do these commenters not believe in medical drugs?

    What about all the medicines that are originally approved by the FDA as being safe, and then later are recalled because of the dangers to health they cause?

    Just because everyone with fillings doesn't get scoliosis does NOT PROVE that no one will because of them, or that the idea it is "bogus"!! Just because everyone who wears (dental) braces doesn't get scoliosis does NOT prove that, therefore, no one will. It does not logically follow.

    What about all the hundreds (or thousands) of patients who wear a scoliosis brace diligently and uncomfortably (if not worse) for years only to find out that they have to have surgery anyway? This forum is loaded with them. Does that mean that because the braces didn't work for every single patient the use of a brace is a sham or a hoax? Then doesn't that make the medical doctors "quacks"? Making false promises? Getting parents' hopes up unrealistically, only to be crushed later? And the doctors can't predict which cases the brace will help, (if any), and which it won't.

    Doctors say that heredity plays a role. How come everyone with scoliosis in their family histories doesn't get scoliosis? Can they predict which child will get it and which ones won't? No they cannot. Why not? Does that mean that their entire theory of genetics being a causative factor is false?

    What about the different answers you get from orthopedic scoliosis specialists and surgeons, experts in their fields? We have gotten very different answers depending on which one we go to.

    When you look at the success rates of bracing and surgery, or the predictive values of Risser scores, growth plates, or onset of menses, you find that a lot of it is pure guesswork, a crapshoot. None of those offer definitive answers or accurate success rates.

    I could go on and on. As I read these posts I am always finding yet more and more examples of conventional medical treatments and advice not working, and yet they are not held up to the same level of scrutiny and perfection that some demand from alternative therapies. That is not rational.


    My whole point is I think that those people who poo-poo other therapies should HOLD THE MEDICAL COMMUNITY TO THE SAME STANDARDS that they criticize alternative treatments for! I can't emphasize that enough! That is my whole point.

    Whew!
    Mother of 14 yr old daughter with scoliosis
    Diagnosed at 12th birthday 1/09: 17T 13L
    6/09: 18T 14L Oh God she's increasing
    4/10: 27T 16L My worst nightmare
    7/10: 33T 18L Oh help God!
    7/10: off to CLEAR Institute: We'll see
    10/10: 33T 16L What?
    1/11: 31T 16L 6 months after CLEAR... hhmmm...

    "What a long, strange trip it's been..."

  9. #24
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    I don't think I ridiculed the original poster and I told her I found one of her links an interesting read as well as said that she should go ahead and research more regarding the heavy metal allergy thing. It was one of the other sites she used as a reference that I found to be very misleading and personally didn't appreciate the scare tactics used in it. Horrible site imo.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  10. #25
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    Quote Originally Posted by Still Hoping View Post
    What about the different answers you get from orthopedic scoliosis specialists and surgeons, experts in their fields? We have gotten very different answers depending on which one we go to.
    If "orthopedic scoliosis specialists" = chiros then the question answers itself.

    Only orthopedic surgeons have the necessary training to treat scoliosis. Chiros should not be treating kids FULL STOP.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  11. #26
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    I'm not putting Andrea down, either. I'm not upset with her professor's idea of heavy metal poisoning/allergy. What I do find fault with is the professor telling her that the metal is the cause of her scoliosis. It sounded as if it were without basis. And, Andrea, I have read enough of your posts to know that you aren't a stupid or niave person, so please don't take it personal. You seriously have suffered enough! This forum is to share ideas and that is what you were doing. I think the attack came from how this professor came to her conclusion based on nothing more than her knowledge about metals/immunology, etc. It's not insane to believe that heavy metal poisoning or allergy can cause horrible effects in people. That's why they test babies for lead poisoning. It IS irresponsible to come to a conclusion about someone's illness without knowing all the facts, i.e. running appropriate tests to determine metal toxicity/allergy, then being able to link that to the scoliosis based on onset of scoliosis vs. onset of poisoning. I think maybe the way some things come across are the target of attacks on the forum and not the person (hopefully). Hey, we all post things that get criticized, including me. That's the nature of the beast, I'm afraid. I apologize if I came across rude. I didn't intend to.

  12. #27
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    Quote Originally Posted by Pooka1 View Post
    If "orthopedic scoliosis specialists" = chiros then the question answers itself.

    Only orthopedic surgeons have the necessary training to treat scoliosis. Chiros should not be treating kids FULL STOP.

    I mean very highly recommended and credentialed orthopedic surgeons, not chiros or anything else.
    Mother of 14 yr old daughter with scoliosis
    Diagnosed at 12th birthday 1/09: 17T 13L
    6/09: 18T 14L Oh God she's increasing
    4/10: 27T 16L My worst nightmare
    7/10: 33T 18L Oh help God!
    7/10: off to CLEAR Institute: We'll see
    10/10: 33T 16L What?
    1/11: 31T 16L 6 months after CLEAR... hhmmm...

    "What a long, strange trip it's been..."

  13. #28
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    Illinois
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    Medical doctors, too, sometimes charge even more exorbitantly with no guarantees.
    Mother of 14 yr old daughter with scoliosis
    Diagnosed at 12th birthday 1/09: 17T 13L
    6/09: 18T 14L Oh God she's increasing
    4/10: 27T 16L My worst nightmare
    7/10: 33T 18L Oh help God!
    7/10: off to CLEAR Institute: We'll see
    10/10: 33T 16L What?
    1/11: 31T 16L 6 months after CLEAR... hhmmm...

    "What a long, strange trip it's been..."

  14. #29
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    Quote Originally Posted by Still Hoping View Post
    Medical doctors, too, sometimes charge even more exorbitantly with no guarantees.
    Yes but they are the only game in town.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  15. #30
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    Quote Originally Posted by Still Hoping View Post
    I mean very highly recommended and credentialed orthopedic surgeons, not chiros or anything else.
    Yes the jury is out on some things including bracing. So you have surgeons all over the map about whether they THINK it works. Nothing wrong with that and in fact it is to be expected when the evidence case is not made. But you won't find a surgeon claiming to have evidence it work. Very key difference that is no fault of the surgeons.

    There is this constant undercurrent of folks wanting to get blood from a stone and blaming the stone when it isn't forthcoming. None of that changes that surgeons are the only game in town who are evidence based.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

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