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Thread: Not the news we were hoping for or expecting

  1. #61
    Join Date
    Mar 2011
    Posts
    52
    Getting ready to load wife's 'burb up for her and the kids to leave for SC in the morning. Son has his pre surgery on Tuesday then family is going to Charlotte NC for two days. I fly up on Friday of next week and then the surgery is on Monday the 8th.

  2. #62
    Join Date
    Aug 2007
    Posts
    388
    Good Luck - I'm glad it's finally here. Keep us updated!
    daughter, 12, diagnosed 8/07 with 19T/13L
    -Braced in spinecor 10/07 - 8/12 with excellent in brace correction and stable/slightly decreased out of brace curves.
    -Introduced Providence brace as adjunct at night in 11/2011 in anticipation of growth spurt. Curves still stable.
    -Currently in Boston Brace. Growth spurt is here and curves (and rotation) have increased to 23T/17L

  3. #63
    Join Date
    Mar 2011
    Posts
    52

    Wife still at Pre op

    Called to tell me they are saying fusion of either T2 or T3 to L2 or L3. So basically we are saying he will have great posture but will not be able to duck well.

  4. #64
    Join Date
    Mar 2011
    Posts
    52

    Surgery as started

    Will be in until somewhere around 2PM eastern time. Last update (10:30) everything was going well.

    I hate waiting, not being able to do anything.

  5. #65
    Join Date
    Jul 2011
    Posts
    535
    We're praying...

    Warmly,
    Doreen
    44 years old at time of surgery, Atlanta GA

    Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
    Post-Surgery curves ~10 degrees, regained 4 inches of height

    Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
    2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!

    http://thebionicachronicles.blogspot.com/

  6. #66
    Join Date
    Mar 2011
    Posts
    52

    Out of surgery

    33 hrs for actual surgery. Dr says better than 50% correction. He is in a lot of pain, but the pump helps. Sleeping right now.

  7. #67
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,245
    Quote Originally Posted by LokanasDad View Post
    33 hrs for actual surgery. Dr says better than 50% correction. He is in a lot of pain, but the pump helps. Sleeping right now.

    Was that done as one surgery? 33 hours. Mine was 15 hours

    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  8. #68
    Join Date
    Mar 2011
    Posts
    52
    sorry, typo. 3 hrs. i cannot imagine 33 hr surgery

  9. #69
    Join Date
    May 2009
    Posts
    3,745
    hi Lokana's Dad
    congratulations on getting the surgery done at Shriner's...i think, considering the screw ups at home with the MRI, etc, you made a great choice! i am sure your son will recover well...the young kids heal faster and easier, it seems...

    just a note about school..please do not let anyone there bully you...your son now qualifies...temporarily...as needing special attention...special ed can be used for children who have temporary problems, like from surgery....there is a lot he will be entitled to...with a doctor's letter...and there are lawyers who specialize in this field....
    no child has to be in school when a doctor or surgeon says they cannot be!!!
    and your son may well be a candidate for home instruction.... temporarily
    refer to the Disabilities Act...your son can be classified as disabled by your doctor..and taken out of that category when he has healed...also by your doctor's authority...
    you have enough to worry about now without the school making it harder for you!!

    best of luck
    jess
    Last edited by jrnyc; 08-09-2011 at 09:21 PM.

  10. #70
    Join Date
    Mar 2005
    Location
    Ukiah CA
    Posts
    891
    congrads on your son surgery at shriner's. like jess said don't let his school bully you
    Kara
    25
    Brace 4-15-05-5-25-06
    Posterior Spinal Fusion 3-10-10
    T4-L2
    Before 50T
    After 20T

  11. #71
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,809
    So glad the surgery is over!

    Maybe I missed it somewhere, but which Shriners hospital did you end up going to? (Not that you can go wrong with any of them, just curious)!

    Best of luck,
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  12. #72
    Join Date
    Mar 2011
    Posts
    52
    Greenville SC. Rough night. Morphine makes him nauseous will with to oral today if we can get him to eat & hold down. Did great getting into chair. Abt 2 in taller.

  13. #73
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,187
    Quote Originally Posted by LokanasDad View Post
    Greenville SC. Rough night. Morphine makes him nauseous will with to oral today if we can get him to eat & hold down. Did great getting into chair. Abt 2 in taller.
    Congratulations on getting thru surgery.

    Did the surgeon clear him for eating and drinking? If his intestines aren't "awake" he might have horrible pain. Our surgeon restricted all food and drink until gut sounds were heard which happened on day 3 for both kids. Pain from eating and drinking too soon is predictable and it is a mystery why more surgeons aren't completey strict about this. It sounds lime a huge quandry if your son has to have food and drink just to get off morphine.

    Good luck.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  14. #74
    Join Date
    Mar 2011
    Posts
    52
    What a day (and it is not over yet). It is definitely the morphine. He had a nap after they switched meds and it was like a different person. He is bound and determined that it is not still Tuesday. Hit the morphine between pills got sick again (no food that time). Feels better now and eating chicken. He took 5 steps forward and 5 back moving from chair to bed earlier. He was in tears that he will have to face the chair again today.

  15. #75
    Join Date
    Mar 2011
    Posts
    52
    Not such a good night last night. Got to the hospital this AM and he and Momma were sleeping with a do not disturb on the door. Apparently he had shallow breathing which kept setting the alarms off last night. Final chair last night went well. They kept him in the chair for an hour and a half. He asked for the chair at 7, said he wanted to get it over with and go to sleep. They put him in at 7:30 and put him to bed at 9. He laid down himself and pulled his feet up into bed himself.

    When I got there this AM, nurse went in to check on him. He was in pain in his back and asked for a pillow under it. They said that doesn't usually help but let him put one under it. He liked it and has been sleeping almost an hour straight. I am going to try to get Momma to go to her Mom's house tonight and I stay at the hospital, but I do not know how successful I will be. Our two youngest are missing her. I leave to go back to FL tomorrow afternoon.

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