I'm feeling your pain......
Krystal vent away.....you've got to be able to do it somewhere!
I'm glad I stumbled across this part of the forum to "vent" I think I may be beyond venting. Screaming, yes that might be a better word. I was diagnosed when I was 11 if memory serves and braced with the Boston Brace from 12 -14 and fought it the whole way. I didn't have trouble with my back until I was 32. I was a personal trainer and competitive body builder and was 3 weeks out from stepping on stage to compete when my first disc herniated and it went downhill from there. I did see a neurosurgeon was but he said contrary to what my PCM told me that the herniated disc was from the rotation in my spine. I made the decision not to have surgery because I knew that there would be more herniated discs to follow and boy was I ever right.
I am 2 years post op and had a great correction and no post op problem other than taking a full two years to really heal. My problem now is that all my discs are degenerating in my neck and I have constant muscles spasms in my neck, shoulders and traps and lats and of course like many of you I'm told that my fusion and rods look beautiful and I should have no pain. I have been treated with various anti depresants because the docs wouldn't prescribe stronger meds. I take Tramadol which doesn't do much and I do take Valium which does help some but not enough with my spasms. One doc recently tried to take the Valium away and I'm fighting that one. So far there has been no other muscle relaxer that works for me. I'm also on Celebrex which definitely helps. When I don't take it I can barely move.
I'm going in tomorrow morning for an epidural steriod shot in my neck which I feel that I'm being forced to have.....should it not work only then will they prescribe stronger pain meds. I don't even expect stronger meds for everyday use. I need them maybe a couple of times a week. I have a three year old to take care of, a husband who is underway in the Coast Guard and two older boys who play hockey(one is a travel hockey player) sitting in the rink 6 nights a week DEFINITELY doesn't help. Thank heavens I LOVE to watch them play :O)
I can handle the pain. What has caused me so much grief and anxiety is dealing with doctors who feel there shouldn't be pain anymore and I'm treated like it's all in my head. I know many of you can understand this one! I would love to see them have to take care of baby after having discs removed, rods and screws and cages and wires put in. I cannot count the number of times I have left appointments in tears because I get no where. I even brought my husband one time only to sit there for an hour while he and the doc spoke over each other. My husband finally understood my frustrations.
My surgeon was WONDERFUL. However, when I called in to get refills last summer I was told he had retired from the military and was gone and I had to wait to meet the new doc before I got any meds. So not only was I not given any meds on the 4th of July weekend and couldn't function through the holiday for the kids and the doc was an asshole (sorry but he was) to me when I finally saw him. I've never met such an abrasive human being in my life. I never did go back for my final follow up appointment because I just didn't want to deal with this man. I am going to work on getting a referal to my original surgeon who is practicing in the area. Hopefully the pain clinic will do that for me tomorrow. We shall see.
I'm also very scared that I will have to have my neck fused and I can't even begin to think about another surgery and recovering and worry about the loss of flexibility if the do fuse it. Right now my fusion is from L5-T2.....I do think the older the baby gets the better some of this pain will get but the long history in my family with back problems I'd say the prognosis isn't looking like it's in my favor.
Ok, I'm done with my pity party. On to tomorrow and this shot and heaven help them if they cause more headaches as I've had enough of those too!!!!!!!
Diagnosed at 10, Boston brace from 11-13 yrs old.
50* Lumbar w/ 5 centimeter shift to the left and slight rib hump...
Surgery Date: April 15 and April 22, 2009
X-LIF approach for disc repair L5,L4,L3,L2
Posterior Approach for fusions L5-T5
Dr. Fox @ Naval Medical Center Portsmouth
Nice and straight now!!!!!