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Thread: Ti-Ed 3 yrs

  1. #31
    Join Date
    Mar 2005
    Location
    Ukiah CA
    Posts
    891
    happy annivery Ed your doing a great job
    Kara
    25
    Brace 4-15-05-5-25-06
    Posterior Spinal Fusion 3-10-10
    T4-L2
    Before 50T
    After 20T

  2. #32
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,972
    Steve

    Oh man!

    Have you addressed this with your surgeon? This of course, is the first thing you should do. You should have had some healing and some improvement in the last 10 weeks.

    If you are only 10 weeks, chances are that any surgeon would want to wait for more time to pass.... Pulling hardware out is something that you really need to think about long and hard. Bone remodels itself, and curves can return right back to where you started. Yes, you are opening a can of worms, let your surgeon make the call without any input. Let him make the decisions.

    If you have built up an immunity to your meds, then a drug management specialist should be seen. Weaning takes effort and can be an unpleasant thing.....

    I was hoping that you were doing better, so sorry about your pain.
    Hang in there, things should improve.
    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  3. #33
    Join Date
    Oct 2010
    Location
    Bend, Oregon
    Posts
    265
    A website? That would be freakin' awesome!!! You would have a built-in fan club, right out of the gate. Keep us posted.
    Jenee'-52
    Bend, Oregon

    Braced 3 years in high school
    Lumbar 70'+ Thoracic 70'+
    I had 3" shrinkage in 6 months...

    Surgery Jan 10, 2011
    9 hours
    T3 to S1 with pelvic fixation
    Both curves now 35'

    Possible revison for Flatback Syndrome
    Non-fusion
    Loose/broken hardware-awaiting CT results

    Here is the link to my before and after pics..
    http://www.scoliosis.org/forum/showt......&highlight=

  4. #34
    Join Date
    Jul 2009
    Posts
    9
    Very impressive. Personally, I've been a little disappointed (if that's the right word even?) about the loss of flexibility in my back. But I think that perhaps I was hyper-elastic before surgery and therefore, the loss of flexibility is more obvious now?? I don't know... Your video was inspirational - the twisting, turning, manoeuvring.... And GREAT snowfields BTW.... Where can I get me some of those???

  5. #35
    Join Date
    Oct 2007
    Location
    Indiana
    Posts
    1,978

    Scuba Steve

    Scuba Steve-- don't want to hijack Ed's thread, but he won't care... Ed is right (of course) in what he said. It is still really early for you. Some of us had long recoveries. Are you having outright unbearable PAIN, or is it unrelenting discomfort? Maybe I am odd, but to me there is a difference. I took pain meds for 5-6 months, and needed them. With the pain meds, it was more like unrelenting discomfort. My surgeon's nurse had said they want you to be able to function well enough to think straight and do things, but comfortable enough to get along ok. I figured that meant you couldn't have your cake and eat it too. If you were too doped up, you wouldn't have the pain, but you would be in la-la land, brain-wise. It's just a major reconstruction to the foundation of your body that you've had, and it's going to take time to recover. If you push it too hard, too fast, and your body isn't ready, it will rebel. I don't know why some people can do it sooner than others, but not everyone can.

    My suggestion, for what it's worth, is to check with your surgeon and see what he thinks. A pain management doctor sounds like good advice. As far as taking out your hardware-- I don't think that would solve any problems at all and would destroy the whole purpose of what you've been through. This surgery is hard work. The recovery is even harder. It builds us into strong people. We scoli surgery people are SURVIVORS... with the scars to prove it. Inside, outside, physically, mentally, emotionally... And one thing many of have had no choice in learning is patience. Best wishes as you continue to recover. (I am home from my job at a school-- snow day in this blizzard!-- so I have a little time to be on the forum)
    Last edited by Susie*Bee; 02-02-2011 at 08:16 AM.
    67 and plugging along...
    2007 52 w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
    5/4/07 posterior spinal fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
    Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

    Corrected to 15
    CMT (type 2) DX in 2014, progressing
    NEW 10/2018 x-rays show spondylolisthesis at L4/L5 - Dr. DeWald is monitoring

    Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

  6. #36
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,972
    Kiki

    Loss of flexibility in our backs is something we have to live with. Maybe you were very flexible, but you know that when you age with scoliosis, things really get stiff....I did as much stretching as possible, and by the time I was in my mid 40s, it was pretty much a losing proposition from there on. Sometimes we dont have much choice in the matter, and you do the best with what you have. Things get easier as time passes, it always works out. Never look back, always forward.

    Great snowfields? The closest for you in would be in Southern New Zealand..... Northern Japan is another hot spot. Utah, has the best snow on earth, I skied there quite a bit through the years...

    Glad you enjoyed the video.

    I have added the link to my rotational and bending flexibility pictures to my sig.
    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  7. #37
    Join Date
    Dec 2008
    Location
    Huxley, Iowa
    Posts
    190
    Wow Ed! Congratulations on 3 years! I am so glad that you had such a fantastic outcome! I would love to learn to ski, but I'd imagine it will be a while for me. You are truly an inspiration, and you give me hope that I'll get back to that pain free place I had for exactly one week
    25 years old
    double 70+ degree curves before surgery
    Anterior on 11/11/08
    Posterior on 12/2/08 with titanium rods
    nearly perfect correction
    fused t-10 to pelvis
    with a hemi-vertebral osteotomy at L4

    Broke right rod at L4-L5 on 06/26/09
    Broke left rod on 10/24/09
    Revision surgery on 11/5/09 with vitallium rods
    Broke both rods again

    Had posterior than anterior revisions on 03/11 at the Twin Cities Spine Center
    Declared "FUSED" on 12/6/11

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