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Thread: Ti-Ed 3 yrs

  1. #16
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,707
    Congratulations on 3 years. You are such an inspiration and give such good advice to all of us.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  2. #17
    Join Date
    Jun 2009
    Location
    Los angeles
    Posts
    122

    Red face

    ED,
    you are my personal hero and truly an inspiration... I can't wait to feel better and not be aware of my back all the time.
    Thanks so much for your words and constant support to all of us!!!
    Pilar

  3. #18
    Join Date
    Jan 2011
    Posts
    197
    Ed, thank you and congratulations on a 3 yr anniversary! I hope I have similar success.

    As my PT told me two days ago, "Even if it does bother you to wear your stilettos, you're stubborn enough to strap them on and go on anyway." Here's to my lifelong stubbornness finally paying off...
    Female, age 38
    4 years of bracing, concluded at 42*upper/38*lower
    currently 64*upper/40*lower
    Fused T3-L4 on Feb 23 2011
    now 32*upper/18* lower

  4. #19
    Join Date
    Dec 2010
    Location
    Pa
    Posts
    31

    Thumbs up

    Ed,
    Ther's nothing I can add but thankyou for your posts, you helped get me thru some really bad days
    Donna
    51 yo
    dx 13 never braced
    DJD and osteoporosis ,Fx ribs 10/09(from osteo) downhill since,vertebral slippage w/ nerve damage and rotation
    Surgery 08/09/10 T1-S1 decomp,fusion w/ instrumentaion
    Sacral/pelvic fixation + 4 osteotomies and dura repair
    C 20 degrees to 4 degrees
    T 57 degrees to 15 degrees
    L 38 degrees to 5 degrees

  5. #20
    Join Date
    Apr 2010
    Location
    Easton PA
    Posts
    182

    Ed,

    I totally agree with everyone's sentiments. I think it is amazing that you still take the time, 3 years post-op, to continue lending support/inspiration to those of us who need it. I think it is human nature, after going through such a traumatic life event, to want to put it behind you, and move on. I will be forever grateful, that you did not. I know that reading your posts, and looking at your pictures, really gave me the courage to go ahead and schedule my surgery. Of course, having done so, I am second guessing my decision daily. When I start doubting, I come to the forum, and read your, and everyone's posts, and remember why I am doing this. Thank you . When you fly down those powdery slopes, know that you are carrying many of us with you! Sincerely, Lori
    Lori in PA, 52 yrs. old
    T54/L72
    Surgery 6/7/11, T3-S1, all posterior, with pelvic anchors
    Gained 2 inches!
    Dr. Boachie, HSS, NYC
    12/10/13 Hardware Removal for infection
    Lost 2", gained PJK!

  6. #21
    Join Date
    Jun 2009
    Posts
    312
    What Lorz said.

  7. #22
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,978
    Thanks everyone. After all the years of living with scoliosis, thinking I was the only one with bad curves, and not knowing any other people with scoliosis, makes me feel like I need to offer what I can offer. I always wondered when I was going to have my big day, scared to death, all I could do was forge on and continue with life.

    I knew when the pedicle screw came out in 1983, that that was a great idea, and that was the method of attachment that would be used on me. It was 25 years after this introduction, that my day came. I walked the yellow brick road for all those years. I was fortunate to have completed that walk when I did, because the pain was completely out of control at the end.

    I am amazed at how many of you out there have such large curves, and also how many of you that are around my age are out there. You were walking the yellow brick road with me, only I couldn’t see you. For those just behind me, I hope your wizard will come through for you!

    Today’s trivia. Did you know that Judy Garland was discovered at the Cal-Neva lodge on the north shore of Lake Tahoe? That happened in 1935, when she was 13, singing with the Gumm sisters, an MGM scout, convinced Louis Mayer to sign her without an audition. The Cal-Neva lodge was the first casino in the US, and was owned by Frank Sinatra at one point. The rat-pack, Kennedy’s, and Marylyn Monroe hung out there often.

    Time to hit the slopes.
    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  8. #23
    Join Date
    Oct 2007
    Location
    Indiana
    Posts
    1,978
    Hey Ed-- congrats on the anniversary! I was off celebrating with my kids-- hit the big 6-0. I guess I'll have to change my signature. Thanks for your friendship over the past few years. It's so good to keep getting stronger and better, isn't it?!
    67 and plugging along...
    2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
    5/4/07 posterior spinal fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
    Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

    Corrected to 15°
    CMT (type 2) DX in 2014, progressing
    NEW 10/2018 x-rays show spondylolisthesis at L4/L5 - Dr. DeWald is monitoring

    Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

  9. #24
    Join Date
    Feb 2010
    Posts
    140
    Hey Ed, congrats on the 3 year mark!! You have been an inspiration to all of us and for that I can't thank you enough!

    Nitram
    Pre-Surgery Lumbar 65 degrees
    A/P Fusion T10-Pelvis by Dr. Christopher Good
    Virginia Spine Institute, Reston, VA 3/17/10, 3/18/10
    Post-Surgery Lumbar 19 degrees, and 2" in height

  10. #25
    Join Date
    Jan 2011
    Location
    Texas
    Posts
    5

    Post-Op Powder!

    Thanks for sharing your video and story. I have been told fusion is in my future....as an avid skier, I was concerned that the surgeon would take that away from me. After watching your video, I think....maybe not. I had lumbar spinal decompression surgery 4 months ago and spent MLK weekend skiing Park City. I skied very conservatively, but enjoyed every minute of it. Thanks for sharing!
    Julie

  11. #26
    Join Date
    Jul 2010
    Posts
    74
    3 years! Wow, that's great Ed. Thanks so much for your continued support on the Forum. It means so much. I am another T2 to pelvis with 3 neck vertebrae fused. I am amazed at the flexibility that I have 3 months post op. I am not a skier, but it sure looks like fun! Maybe someday......
    Chris, Austin, TX
    age:58
    80 degree thoracic/36 degree lumbar curves
    Surgery 8/2/10, Anterior Cervical Decompression/Fusion
    C4/5, C5/6, C6/7
    New Surgery date 10/25/2010, T-2 to Pelvis, posterior
    Dr. Matthew Geck, Seton Spine and Scoliosis Center

  12. #27
    Join Date
    Mar 2009
    Location
    Sacramento, CA area
    Posts
    189
    Happy anniversary Ed! Like others before me have already remarked, you are a true inspiration to us who have just had the surgery or are about to, especially at our age. Watching your video kind of makes me think that I may give skiing another try when I am able. I never got the ski bug because I really don't like the cold. I enjoy Tahoe in the summer months.

    Have fun on the slopes!
    Laurie
    Age 57
    Posterior fusion w/thoracoplasty T2-L3 Oct 1, 2010
    Thoracic curve corrected from 61* to 16*
    Lumbar curve, unknown measurement
    Disfiguring back hump GONE!!
    Dr Munish Gupta
    UC Davis Medical Center, Sacramento, CA

  13. #28
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,978
    All right! We have Laurie and Chris willing to join the NSF “downhill” exhibition ski team. And with Chris being one of our longest, or most fused, I’m sure I could get us in skiing magazine....He he. We just have to group up, make some noise. lol

    Actually, I must say that it was not easy for me and had issues I had to overcome with skiing. But then again, it was never easy for us anyway, what’s a little more work right? I just kept at it, and wouldn’t give up. Karen, remember this when you start golfing.

    Suzie Bee, Happy B-day. Yes, its easier as the days pass by.
    Julie, I have pics here in my threads skiing at Park City. Here is that thread.
    http://www.scoliosis.org/forum/showt...ing&highlight=

    Pilar, You keep hanging in there. Never ever look back! always forward....you will get there.

    Lily and Lori and those waiting... here is a thread to read
    http://www.scoliosis.org/forum/showt...sed&highlight=

    Sharon, You are right. But I need to start a website. It will happen soon...and will include all sorts of things. Can you imagine that? I’ve been thinking about this for awhile....

    So hard to respond to everyone...
    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  14. #29
    Join Date
    Aug 2010
    Posts
    42

    Scuba Steve update

    Hey Ed, Scuba Steve here.
    Man what a bad week. I mean i am really getting burnt out on this pain thing.
    Not feeling any better and i have cut my work load down alot.
    What is the word on the site about removing hardware??
    i know i am opening a can of worms here.
    Soooo sick of this pain, and breaking down mentally now.

  15. #30
    Join Date
    Jun 2009
    Posts
    312
    Scuba Steve, I know where you're coming from. But, this forum is THE place to be when you (we) need encouragement and hope. No matter how much family and friends love us, and do their best to support us, there is nothing like the cameraderie of fellow scoli surgery veterans.
    Hardware removal? I'm not the best person to ask. Good luck!
    Last edited by mgs; 02-01-2011 at 06:20 PM.

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