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Ti-Ed 3 yrs

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  • #16
    Congratulations on 3 years. You are such an inspiration and give such good advice to all of us.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

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    • #17
      ED,
      you are my personal hero and truly an inspiration... I can't wait to feel better and not be aware of my back all the time.
      Thanks so much for your words and constant support to all of us!!!
      Pilar
      Scoliosis Diagnosed at age 12. Wore Milwaukee brace for 2 years.
      Now age 32
      Pre-op curves: C86-T98-L37
      Surgery date: 12/6/2010 (anterior) 12/10/2010 (posterior)
      Fused T2 to L5 with thoracoplasty.
      Post-op curves: C48-T47-L17
      Dr. Robert Pashman
      Cedars Sinai, Los Angeles, CA
      Before and after xrays :
      http://www.scoliosis.org/forum/attac...5&d=1292969215

      Comment


      • #18
        Ed, thank you and congratulations on a 3 yr anniversary! I hope I have similar success.

        As my PT told me two days ago, "Even if it does bother you to wear your stilettos, you're stubborn enough to strap them on and go on anyway." Here's to my lifelong stubbornness finally paying off...
        Female, age 38
        4 years of bracing, concluded at 42*upper/38*lower
        currently 64*upper/40*lower
        Fused T3-L4 on Feb 23 2011
        now 32*upper/18* lower

        Comment


        • #19
          Ed,
          Ther's nothing I can add but thankyou for your posts, you helped get me thru some really bad days
          Donna
          51 yo
          dx 13 never braced
          DJD and osteoporosis ,Fx ribs 10/09(from osteo) downhill since,vertebral slippage w/ nerve damage and rotation
          Surgery 08/09/10 T1-S1 decomp,fusion w/ instrumentaion
          Sacral/pelvic fixation + 4 osteotomies and dura repair
          C 20 degrees to 4 degrees
          T 57 degrees to 15 degrees
          L 38 degrees to 5 degrees

          Comment


          • #20
            Ed,

            I totally agree with everyone's sentiments. I think it is amazing that you still take the time, 3 years post-op, to continue lending support/inspiration to those of us who need it. I think it is human nature, after going through such a traumatic life event, to want to put it behind you, and move on. I will be forever grateful, that you did not. I know that reading your posts, and looking at your pictures, really gave me the courage to go ahead and schedule my surgery. Of course, having done so, I am second guessing my decision daily. When I start doubting, I come to the forum, and read your, and everyone's posts, and remember why I am doing this. Thank you . When you fly down those powdery slopes, know that you are carrying many of us with you! Sincerely, Lori
            Lori in PA, 52 yrs. old
            T54/L72
            Surgery 6/7/11, T3-S1, all posterior, with pelvic anchors
            Gained 2 inches!
            Dr. Boachie, HSS, NYC
            12/10/13 Hardware Removal for infection
            Lost 2", gained PJK!

            Comment


            • #21
              What Lorz said.
              Fused T-3 to L-3, Aug 25
              Hardware removal surgery, Nov 2, 2010
              Fused T-10 to L-2, osteotomy, Feb 22, 2011

              Comment


              • #22
                Thanks everyone. After all the years of living with scoliosis, thinking I was the only one with bad curves, and not knowing any other people with scoliosis, makes me feel like I need to offer what I can offer. I always wondered when I was going to have my big day, scared to death, all I could do was forge on and continue with life.

                I knew when the pedicle screw came out in 1983, that that was a great idea, and that was the method of attachment that would be used on me. It was 25 years after this introduction, that my day came. I walked the yellow brick road for all those years. I was fortunate to have completed that walk when I did, because the pain was completely out of control at the end.

                I am amazed at how many of you out there have such large curves, and also how many of you that are around my age are out there. You were walking the yellow brick road with me, only I couldn’t see you. For those just behind me, I hope your wizard will come through for you!

                Today’s trivia. Did you know that Judy Garland was discovered at the Cal-Neva lodge on the north shore of Lake Tahoe? That happened in 1935, when she was 13, singing with the Gumm sisters, an MGM scout, convinced Louis Mayer to sign her without an audition. The Cal-Neva lodge was the first casino in the US, and was owned by Frank Sinatra at one point. The rat-pack, Kennedy’s, and Marylyn Monroe hung out there often.

                Time to hit the slopes.
                Ed
                49 yr old male, now 63, the new 64...
                Pre surgery curves T70,L70
                ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                Dr Brett Menmuir St Marys Hospital Reno,Nevada

                Bending and twisting pics after full fusion
                http://www.scoliosis.org/forum/showt...on.&highlight=

                My x-rays
                http://www.scoliosis.org/forum/attac...2&d=1228779214

                http://www.scoliosis.org/forum/attac...3&d=1228779258

                Comment


                • #23
                  Hey Ed-- congrats on the anniversary! I was off celebrating with my kids-- hit the big 6-0. I guess I'll have to change my signature. Thanks for your friendship over the past few years. It's so good to keep getting stronger and better, isn't it?!
                  71 and plugging along... but having some problems
                  2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
                  5/4/07 posterior fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
                  Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

                  Corrected to 15°
                  CMT (type 2) DX in 2014, progressing
                  10/2018 x-rays - spondylolisthesis at L4/L5 - Dr. DeWald is monitoring

                  Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

                  Comment


                  • #24
                    Hey Ed, congrats on the 3 year mark!! You have been an inspiration to all of us and for that I can't thank you enough!

                    Nitram
                    Pre-Surgery Lumbar 65 degrees
                    A/P Fusion T10-Pelvis by Dr. Christopher Good
                    Virginia Spine Institute, Reston, VA 3/17/10, 3/18/10
                    Post-Surgery Lumbar 19 degrees, and 2" in height

                    Comment


                    • #25
                      Post-Op Powder!

                      Thanks for sharing your video and story. I have been told fusion is in my future....as an avid skier, I was concerned that the surgeon would take that away from me. After watching your video, I think....maybe not. I had lumbar spinal decompression surgery 4 months ago and spent MLK weekend skiing Park City. I skied very conservatively, but enjoyed every minute of it. Thanks for sharing!
                      Julie

                      Comment


                      • #26
                        3 years! Wow, that's great Ed. Thanks so much for your continued support on the Forum. It means so much. I am another T2 to pelvis with 3 neck vertebrae fused. I am amazed at the flexibility that I have 3 months post op. I am not a skier, but it sure looks like fun! Maybe someday......
                        Chris, Austin, TX
                        age:58
                        80 degree thoracic/36 degree lumbar curves
                        Surgery 8/2/10, Anterior Cervical Decompression/Fusion
                        C4/5, C5/6, C6/7
                        New Surgery date 10/25/2010, T-2 to Pelvis, posterior
                        Dr. Matthew Geck, Seton Spine and Scoliosis Center

                        Comment


                        • #27
                          Happy anniversary Ed! Like others before me have already remarked, you are a true inspiration to us who have just had the surgery or are about to, especially at our age. Watching your video kind of makes me think that I may give skiing another try when I am able. I never got the ski bug because I really don't like the cold. I enjoy Tahoe in the summer months.

                          Have fun on the slopes!
                          Laurie
                          Age 57
                          Posterior fusion w/thoracoplasty T2-L3 Oct 1, 2010
                          Thoracic curve corrected from 61* to 16*
                          Lumbar curve, unknown measurement
                          Disfiguring back hump GONE!!
                          Dr Munish Gupta
                          UC Davis Medical Center, Sacramento, CA

                          Comment


                          • #28
                            All right! We have Laurie and Chris willing to join the NSF “downhill” exhibition ski team. And with Chris being one of our longest, or most fused, I’m sure I could get us in skiing magazine....He he. We just have to group up, make some noise. lol

                            Actually, I must say that it was not easy for me and had issues I had to overcome with skiing. But then again, it was never easy for us anyway, what’s a little more work right? I just kept at it, and wouldn’t give up. Karen, remember this when you start golfing.

                            Suzie Bee, Happy B-day. Yes, its easier as the days pass by.
                            Julie, I have pics here in my threads skiing at Park City. Here is that thread.
                            http://www.scoliosis.org/forum/showt...ing&highlight=

                            Pilar, You keep hanging in there. Never ever look back! always forward....you will get there.

                            Lily and Lori and those waiting... here is a thread to read
                            http://www.scoliosis.org/forum/showt...sed&highlight=

                            Sharon, You are right. But I need to start a website. It will happen soon...and will include all sorts of things. Can you imagine that? I’ve been thinking about this for awhile....

                            So hard to respond to everyone...
                            Ed
                            49 yr old male, now 63, the new 64...
                            Pre surgery curves T70,L70
                            ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                            Dr Brett Menmuir St Marys Hospital Reno,Nevada

                            Bending and twisting pics after full fusion
                            http://www.scoliosis.org/forum/showt...on.&highlight=

                            My x-rays
                            http://www.scoliosis.org/forum/attac...2&d=1228779214

                            http://www.scoliosis.org/forum/attac...3&d=1228779258

                            Comment


                            • #29
                              Scuba Steve update

                              Hey Ed, Scuba Steve here.
                              Man what a bad week. I mean i am really getting burnt out on this pain thing.
                              Not feeling any better and i have cut my work load down alot.
                              What is the word on the site about removing hardware??
                              i know i am opening a can of worms here.
                              Soooo sick of this pain, and breaking down mentally now.

                              Comment


                              • #30
                                Scuba Steve, I know where you're coming from. But, this forum is THE place to be when you (we) need encouragement and hope. No matter how much family and friends love us, and do their best to support us, there is nothing like the cameraderie of fellow scoli surgery veterans.
                                Hardware removal? I'm not the best person to ask. Good luck!
                                Last edited by mgs; 02-01-2011, 06:20 PM.
                                Fused T-3 to L-3, Aug 25
                                Hardware removal surgery, Nov 2, 2010
                                Fused T-10 to L-2, osteotomy, Feb 22, 2011

                                Comment

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