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  1. #1
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,973

    Ti-Ed 3 yrs

    3 years ago today, was the day I had to go in and get things done....and boy, did I ever get things done!

    I would never ever reverse my decision and nobody can tell Iím fused....

    Dr Menmuir saved my life. No doubt. I still cant believe it. It totally changed my life.

    Of course I have to add my skiing video in case any of you missed it!
    http://www.youtube.com/watch?v=4tEyp...&feature=email
    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  2. #2
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,185
    Congratulations all over the place, Ti Ed!

    Yours was a major overhaul and you had a great result.

    The skiing is amazing and so are the photos of you twisting. Those go a long way to dispel fears about range of motion in long fusions I think.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  3. #3
    Join Date
    Jun 2009
    Posts
    312
    Happy Anniv!!!!!!

    Great video! (Your cameraman had his work cut out for him!)

  4. #4
    Join Date
    Mar 2010
    Location
    Lansing, MI
    Posts
    187
    Congratulations! You are an inspiration every time I read your posts.
    Shari - 55 years old
    Pre-Surgery 62 degree thorasic curve with shifting.
    Post op 13 degree curve.
    Successful surgery 4/15/10, T3-L2 fused.
    2nd surgery to reopen incision 10" to diagnose infection, 5/18/10
    Beaumont Hospital, Royal Oak, MI - the late Dr. Harry Herkowitz
    www.scoliosisthejourney.com

  5. #5
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
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    Sharon
    Thx

    Yes, those range of motion pics help quite a bit... I hope people look at those, they are in my threads.

    My surgeon really didnít want to do my surgeries and painted a grim picture. It was only after my blood work that he saw that I really was in great shape from all the skiing. After all the exploratory that my vascular surgeon did, my guts were raw! He also checked me out up high when he removed my gall bladder. I think that with all my metals and toxin exposure all these years, they wanted to look at things...they were looking for cancers. Hey, I passed the test! No problemo! I think that exercise and diet play a big part and being funky about toxins at the plant. I wont allow certain things to happen...Cutting Berylliumís, no leads, no solvents, things like that. I was warned by engineers at Lawrence Livermore about this many years ago.....

    Iím funky about chemicals, toxins and medications. I wont use insecticides....I will use baby powder.

    mgs
    Yes, my cameraman was boarding that day, and he is pretty good. I hope that people realize that we are experts who do this stuff often. There are rules that we follow, and are pretty safe. There are people that die out here about 1 per month, there are searches that happen often. Backcountry skiing takes training.

    Sonny Bono was skiing on painkillers, in flat light, at 4pm on the 3rd day after a storm with above freezing temps, alone. He broke many rules.
    When the snow setís up, we stay out of the trees or far from trees. We also spot one another. If a person doesnít show up at the bottom, we will go back up the lift and ski the exact same line again. I donít ski alone anymore.
    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  6. #6
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,185
    Quote Originally Posted by titaniumed View Post
    Yes, those range of motion pics help quite a bit... I hope people look at those, they are in my threads.
    I think they are important enough for you to consider putting them in your sig file. I think they have quelled fears about fusion to the pelvis. They are among the most counterintuitive photos on this forum in my opinion. That is, I never would have thought you could have that much ROM with a T2-pelvis fusion but of course I wasn't basing that opinion on anything real world.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  7. #7
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,185
    Quote Originally Posted by titaniumed View Post
    Sonny Bono was skiing on painkillers, in flat light, at 4pm on the 3rd day after a storm with above freezing temps, alone. He broke many rules.
    When the snow setís up, we stay out of the trees or far from trees. We also spot one another. If a person doesnít show up at the bottom, we will go back up the lift and ski the exact same line again. I donít ski alone anymore.
    Ed
    Was Michael Kennedy breaking any rules (besides playing football that is)?
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  8. #8
    Join Date
    Dec 2010
    Location
    Pa
    Posts
    31

    Thumbs up

    Ed,
    Ther's nothing I can add but thankyou for your posts, you helped get me thru some really bad days
    Donna
    51 yo
    dx 13 never braced
    DJD and osteoporosis ,Fx ribs 10/09(from osteo) downhill since,vertebral slippage w/ nerve damage and rotation
    Surgery 08/09/10 T1-S1 decomp,fusion w/ instrumentaion
    Sacral/pelvic fixation + 4 osteotomies and dura repair
    C 20 degrees to 4 degrees
    T 57 degrees to 15 degrees
    L 38 degrees to 5 degrees

  9. #9
    Join Date
    Apr 2010
    Location
    Easton PA
    Posts
    182

    Ed,

    I totally agree with everyone's sentiments. I think it is amazing that you still take the time, 3 years post-op, to continue lending support/inspiration to those of us who need it. I think it is human nature, after going through such a traumatic life event, to want to put it behind you, and move on. I will be forever grateful, that you did not. I know that reading your posts, and looking at your pictures, really gave me the courage to go ahead and schedule my surgery. Of course, having done so, I am second guessing my decision daily. When I start doubting, I come to the forum, and read your, and everyone's posts, and remember why I am doing this. Thank you . When you fly down those powdery slopes, know that you are carrying many of us with you! Sincerely, Lori
    Lori in PA, 52 yrs. old
    T54/L72
    Surgery 6/7/11, T3-S1, all posterior, with pelvic anchors
    Gained 2 inches!
    Dr. Boachie, HSS, NYC
    12/10/13 Hardware Removal for infection
    Lost 2", gained PJK!

  10. #10
    Join Date
    Mar 2005
    Location
    Ukiah CA
    Posts
    891
    happy annivery Ed your doing a great job
    Kara
    25
    Brace 4-15-05-5-25-06
    Posterior Spinal Fusion 3-10-10
    T4-L2
    Before 50T
    After 20T

  11. #11
    Join Date
    Oct 2010
    Location
    Bend, Oregon
    Posts
    265
    A website? That would be freakin' awesome!!! You would have a built-in fan club, right out of the gate. Keep us posted.
    Jenee'-52
    Bend, Oregon

    Braced 3 years in high school
    Lumbar 70'+ Thoracic 70'+
    I had 3" shrinkage in 6 months...

    Surgery Jan 10, 2011
    9 hours
    T3 to S1 with pelvic fixation
    Both curves now 35'

    Possible revison for Flatback Syndrome
    Non-fusion
    Loose/broken hardware-awaiting CT results

    Here is the link to my before and after pics..
    http://www.scoliosis.org/forum/showt......&highlight=

  12. #12
    Join Date
    Jul 2009
    Posts
    9
    Very impressive. Personally, I've been a little disappointed (if that's the right word even?) about the loss of flexibility in my back. But I think that perhaps I was hyper-elastic before surgery and therefore, the loss of flexibility is more obvious now?? I don't know... Your video was inspirational - the twisting, turning, manoeuvring.... And GREAT snowfields BTW.... Where can I get me some of those???

  13. #13
    Join Date
    Oct 2007
    Location
    Indiana
    Posts
    1,978

    Scuba Steve

    Scuba Steve-- don't want to hijack Ed's thread, but he won't care... Ed is right (of course) in what he said. It is still really early for you. Some of us had long recoveries. Are you having outright unbearable PAIN, or is it unrelenting discomfort? Maybe I am odd, but to me there is a difference. I took pain meds for 5-6 months, and needed them. With the pain meds, it was more like unrelenting discomfort. My surgeon's nurse had said they want you to be able to function well enough to think straight and do things, but comfortable enough to get along ok. I figured that meant you couldn't have your cake and eat it too. If you were too doped up, you wouldn't have the pain, but you would be in la-la land, brain-wise. It's just a major reconstruction to the foundation of your body that you've had, and it's going to take time to recover. If you push it too hard, too fast, and your body isn't ready, it will rebel. I don't know why some people can do it sooner than others, but not everyone can.

    My suggestion, for what it's worth, is to check with your surgeon and see what he thinks. A pain management doctor sounds like good advice. As far as taking out your hardware-- I don't think that would solve any problems at all and would destroy the whole purpose of what you've been through. This surgery is hard work. The recovery is even harder. It builds us into strong people. We scoli surgery people are SURVIVORS... with the scars to prove it. Inside, outside, physically, mentally, emotionally... And one thing many of have had no choice in learning is patience. Best wishes as you continue to recover. (I am home from my job at a school-- snow day in this blizzard!-- so I have a little time to be on the forum)
    Last edited by Susie*Bee; 02-02-2011 at 08:16 AM.
    67 and plugging along...
    2007 52į w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
    5/4/07 posterior spinal fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
    Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

    Corrected to 15į
    CMT (type 2) DX in 2014, progressing
    NEW 10/2018 x-rays show spondylolisthesis at L4/L5 - Dr. DeWald is monitoring

    Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

  14. #14
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,973
    Kiki

    Loss of flexibility in our backs is something we have to live with. Maybe you were very flexible, but you know that when you age with scoliosis, things really get stiff....I did as much stretching as possible, and by the time I was in my mid 40s, it was pretty much a losing proposition from there on. Sometimes we donít have much choice in the matter, and you do the best with what you have. Things get easier as time passes, it always works out. Never look back, always forward.

    Great snowfields? The closest for you in would be in Southern New Zealand..... Northern Japan is another hot spot. Utah, has the best snow on earth, I skied there quite a bit through the years...

    Glad you enjoyed the video.

    I have added the link to my rotational and bending flexibility pictures to my sig.
    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

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