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  1. #1
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918

    Halo Traction

    So as some of you know, my 14 y/o son's spine has progressed to a curve of 110* in a relatively short time and b/c he we were not able to have him seen by a spine specialist until the other day, the surgeon feels he needs to do halo traction before he can even attempt to surgically correct his spine. I'd love to hear from anyone who has gone through halo-traction, what their experience was as well as what we should/could do to keep him occupied while he's confined to this contraption. Appreciate all input. Thanks so much.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  2. #2
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,809
    Hi Elisa,

    I have been following your posts all along and cannot put into words how inspired I have been by your strength and positive attitude. That goes for your amazing son as well.

    I am a big supporter and fan of Shriners also. But the reason I am posting is really to share this link with you - don't let the name fool you, it is a group called the Halo Club - so you should be able to find many parents to chat with. I also have a few other contacts and will reach out to see if I can get you the contact of other parents who have experience with this.

    Best of luck and please continue to keep us posted.

    www.cervicalfusionfamilynetwork.org

    p.s. Elisa - If you can e-mail me at mariaf305@yahoo.com that would be great - this way if I get any contact information for you of other parents I can share it with you privately since I would not post their information publicly, of course :-)
    Last edited by mariaf; 01-24-2011 at 08:34 AM.
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  3. #3
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Thanks a lot Maria, I will look into that link and will email you later on today; appreciate it.

    I have to stay strong and positive b/c life goes on and you never know what's around the corner that you might have to deal with. My son's scoliosis is not the worst thing that could happen to him/us and there are so many other people out their including children that are dealing with much much more serious and life threatening issues. Just spending a day at three different hospitals the other day and seeing all the adults and kids with health issues does make one much more appreciative of their own relatively good health. The worst part of this whole thing is that my son has slipped through the cracks and the frustration and worry seeing him get worse and worse and NO ONE was even looking at him. That's taking this 'watch and wait' thing to the extreme. Yeah, let's watch this kid's spine collapse until his lungs and heart get crushed. That helpless feeling a parent has is so sickening. Definitely the worst feeling ever.
    Last edited by Elisa; 01-24-2011 at 11:05 AM.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  4. #4
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    This is very similar to the halo that was shown to us at Shriners. At least he won't have to wear the type with the vest and four poles and if I remember right, the nurse said it's open at the back so it is more comfortable to sleep with.

    http://www.methodisthealth.org/lebon...+Jasmine+Brown
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  5. #5
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,160

    article by Shriners nurses

    Hi Elisa,

    here is a write-up with a link to the article I mentioned to you, which is written by the Shriners Portland nurses. It is mostly geared toward nurses, but it has a section about halo traction as it is done in Portland. http://support.shrinershospitals.org..._Article_Oct09

    When we were at Shriners St Louis for Leah's surgery they had about half a dozen young children in portable halos. There was also an older boy who was perhaps 13. These kids were in longer-term traction (over 6 months), so they lived at Shriners, where they had daily school and a recreation therapy program that the halo kids participated in. It was shocking at first to see all these kids zipping around in halos, but they all seemed to be coping well, and the nursing staff was superlative with them.

    Take care,

    Gayle
    Gayle, age 49
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    5/10 VBS Dr Luhmann Shriners St Louis
    5/16 6 yrs post-op, 24*T/ 22* L, mild increase in curves, watching

    also mom of Torrey, 12 y/o son, 16* T, stable

  6. #6
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Gayle, I'd love to read the article but I can't seem to access it.

    http://www.aornjournal.org/%20articl...05511/fulltext

    The video below made me laugh. I honestly could see myself wanting to hang and spin around like this little girl; she seems weightless. Actually a nurse was joking with me and said some of the little kids get so weightless that they have to tie them down to their chair, lol.

    http://eightisenoughfornow.blogspot....otobucket.html

    I hope someone calls me today with the results of the MRI b/c I really am anxious to find out what they're seeing or not seeing and until I hear from them, I'm going to keep thinking he's got a tumour or something even more serious than what he already has. How long do you guys think I should wait before I call them? We didn't get done with the MRI until about 8:30 pm last Friday night.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

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