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Thread: Is this true? DNA spit test springs girl, 12, from scoliosis brace

  1. #16
    Join Date
    Mar 2009
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    Quote Originally Posted by Pooka1 View Post
    I think they raised it to 50 because it was still 100%, yes?
    No, don't think so.

  2. #17
    Join Date
    Jan 2008
    Location
    NC
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    8,901
    Quote Originally Posted by Pooka1 View Post
    I think they raised it to 50 because it was still 100%, yes?
    Okay I just re-read the abstract. Using 50 as the cutoff means a >99% risk of not reaching surgical range if I understand their wording. So almost 100%.

    I'm going to try to get t he paper.
    Last edited by Pooka1; 12-06-2010 at 02:07 PM.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  3. #18
    Join Date
    May 2010
    Posts
    49
    I contacted a local chiropractor who offers this test and inquired about the cost to me. Still waiting to hear back from him.

    If it's a reasonable amount, I would consider having my daughter take it but to be honest, I don't think I'd change her current treatment (RSC brace 23 hours a day). But it might make me feel a little better that she's having to deal with a brace if her number came back as anything other than " very low".

  4. #19
    Join Date
    Oct 2008
    Posts
    299
    Jessica, I will send you a PM with the name of a pediatric ortho in NoVa who I believe was participating in the trial of this test. A friend of mine's daughter sees him for other ortho issues. You might contact him as well.
    mamandcrm

    G diagnosed 6/08 at almost 7 with 25*
    Providence night brace, increased to 35*
    Rigo-Cheneau brace full-time 12/08-4/10
    14* at 10/09 OOB x-ray
    11* at 4/10 OOB x-ray
    Wearing R-C part-time since 4/10
    latest OOB xray 5/14 13*
    currently going on 13 yrs old

    I no longer participate in this forum though I will update signature from time to time with status

  5. #20
    Join Date
    May 2010
    Posts
    49
    Thanks for the info. After looking around I see that Dr. Sponseller at Johns Hopkins, which is the office I take my daughter to, is listed as a provider on the Scoliscore website. I'll ask about it at her next appointment.
    Mom to 11 year old DD who was:
    diagnosed 5/09: 8*L, 8*T
    braced 7/10: 17* L, 25*T, 20*C
    x-ray 11/10: 7*L, 17*T, 20*C (x-ray immediately OOB)
    most recent x-ray 06/11: 17*L, 24*T, 22* C (x-ray 24 hours OOB)

  6. #21
    Join Date
    Oct 2008
    Posts
    299
    If your daughter does the test and you don't mind sharing, I would be interested to know the results. The test is completely no applicable to us, but I find the idea interesting. What is more interesting to me and I suspect maybe very unpredictable is what people do with their results. Curiousity question--I was looking at your signature--how was your daughter diagnosed? Was it via an x-ray for some other purpose, or just VERY sharp pediatrician eyes. 8* is so small.
    mamandcrm

    G diagnosed 6/08 at almost 7 with 25*
    Providence night brace, increased to 35*
    Rigo-Cheneau brace full-time 12/08-4/10
    14* at 10/09 OOB x-ray
    11* at 4/10 OOB x-ray
    Wearing R-C part-time since 4/10
    latest OOB xray 5/14 13*
    currently going on 13 yrs old

    I no longer participate in this forum though I will update signature from time to time with status

  7. #22
    Join Date
    May 2010
    Posts
    49
    Sure, I'll share them. She doesn't get seen again until May.

    She was diagnosed by a very sharp pediatrician at her 10 year old checkup with an Adams test. She sent my daughter for an x-ray based on that. She wasn't even really classified with scoliosis at that point since it was less than a 10 degree curve, but she started on the "watch & wait" track with x-rays every 6 months. A year later it had progressed to 25 degrees.
    Mom to 11 year old DD who was:
    diagnosed 5/09: 8*L, 8*T
    braced 7/10: 17* L, 25*T, 20*C
    x-ray 11/10: 7*L, 17*T, 20*C (x-ray immediately OOB)
    most recent x-ray 06/11: 17*L, 24*T, 22* C (x-ray 24 hours OOB)

  8. #23
    Join Date
    Oct 2008
    Posts
    299
    Thanks for the info, I was curious because my daughter's BFF was diagnosed "accidentally" about 6 months ago while getting a back x-ray for an ice-skating injury. She was 9* and they wanted to see her again in 4 months for another x-ray which I thought was pretty aggressive given that it is not even scoliosis. 6 months seems more reasonable but even still I wonder if a clinical exam would not suffice for the time. This child has had a lot of x-rays and other tests for other medical reasons and I worry to see her have to do more. But that's not relevant, it just piqued my interest.
    mamandcrm

    G diagnosed 6/08 at almost 7 with 25*
    Providence night brace, increased to 35*
    Rigo-Cheneau brace full-time 12/08-4/10
    14* at 10/09 OOB x-ray
    11* at 4/10 OOB x-ray
    Wearing R-C part-time since 4/10
    latest OOB xray 5/14 13*
    currently going on 13 yrs old

    I no longer participate in this forum though I will update signature from time to time with status

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