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  • April 19th. 2012 marked Elias' first anniversary of his second surgery where he had his rods put in. He is doing amazingly well and you'd never know he'd gone through what he did. He's doing so well in every aspect and we're getting ready to head back down to Portland, OR again on Tuesday for his checkup with the Shriners. It's a bit of a journey but they are so supportive, it's more like a little holiday. I'll let you all know how things go with the checkup with Dr. Krajbich. I'm expecting an excellent report.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

    Comment


    • Time to celebrate...

      http://www.funnyordie.com/videos/7b2...lla-wine-party
      Sharon, mother of identical twin girls with scoliosis

      No island of sanity.

      Question: What do you call alternative medicine that works?
      Answer: Medicine


      "We are all African."

      Comment


      • Chinchillas and wine, two of my favourite topics. I'm pretty sure Pip can play some hockey; he's watched it enough on TV. 3 favourites now.
        Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
        Halo Traction & 1st. surgery on March 22nd. 2011
        Spinal Fusion on April 19th. 2011

        Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



        http://tinyurl.com/Elias-Before
        http://tinyurl.com/Elias-After

        Comment


        • I love that video! They should make a series of similar videos.....they would be a huge hit in piano bars. (Or rock shows)

          I saw Rush in concert about 20 years ago during the “Presto” tour and they had these huge rabbits coming out of top hats on each side of the stage. Same type of thing.....Rodent relaxation therapy.

          http://en.wikipedia.org/wiki/Presto_(album)

          Have a great trip.

          Ed
          49 yr old male, now 63, the new 64...
          Pre surgery curves T70,L70
          ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
          Dr Brett Menmuir St Marys Hospital Reno,Nevada

          Bending and twisting pics after full fusion
          http://www.scoliosis.org/forum/showt...on.&highlight=

          My x-rays
          http://www.scoliosis.org/forum/attac...2&d=1228779214

          http://www.scoliosis.org/forum/attac...3&d=1228779258

          Comment


          • Originally posted by Elisa View Post
            April 19th. 2012 marked Elias' first anniversary of his second surgery where he had his rods put in. He is doing amazingly well and you'd never know he'd gone through what he did. He's doing so well in every aspect and we're getting ready to head back down to Portland, OR again on Tuesday for his checkup with the Shriners. It's a bit of a journey but they are so supportive, it's more like a little holiday. I'll let you all know how things go with the checkup with Dr. Krajbich. I'm expecting an excellent report.
            It's great to hear Elias is doing so well. Hope your journey back to Shriners goes well. You and Elias will be an inspiration to many, I'm sure.
            Surgery March 3, 2009 at almost 58, now 63.
            Dr. Askin, Brisbane, Australia
            T4-Pelvis, Posterior only
            Osteotomies and Laminectomies
            Was 68 degrees, now 22 and pain free

            Comment


            • Have a safe trip . Glad that he is doing so well
              Melissa

              Fused from C2 - sacrum 7/2011

              April 21, 2020- another broken rod surgery

              Comment


              • Thanks for the well wishes guys. Had a nice drive down the Island to Nanaimo and a very smooth ferry sailing across to the mainland and we're hanging out in our hotel room in Vancouver and about to head to the restaurant for something to eat. We'll be heading south across the border early tomorrow morning and should be in Portland by about 3:30 pm if all goes well. I love how quickly the Shriners bus gets pushed through at the border while everyone else has to sit and wait. The border guard (is that what they're called?) comes on board, checks passports and takes a quick look in the bathroom to make sure there's no stowaways and away we go. :-)
                Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
                Halo Traction & 1st. surgery on March 22nd. 2011
                Spinal Fusion on April 19th. 2011

                Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



                http://tinyurl.com/Elias-Before
                http://tinyurl.com/Elias-After

                Comment


                • One year out- that is so wonderful! Thank you - and Elias - for the inspiration to the rest of us! Keep on updating, please!
                  Mom of 14yo son diagnosed Oct 2011
                  Surgery 1/3/12 w Dr. Geof Cronen,
                  Tampa General Hospital T3 to L1
                  Jacob's pre surg curves: T58 & L31 12/28/11
                  photos & xrays in "First-Time Surgery" thread "Before & After"

                  Comment


                  • Back in Vancouver. We left a bit later than expected b/c we were waiting for another family to finish up their appointment so we hit a bit of heavy traffic going through Seattle but we're finally back in Van and will catch the 8:30 AM ferry tomorrow and be back home on the Island by about 1:00.

                    Everything looks great with Elias' x-rays and physical, all metalwork is securely in place and all restrictions have been lifted but of course I am still going to be keeping a close eye on him and I'm glad he's not the sporty type b/c that means less worry for me. Dr. Krajbich would like to see Elias again in one year b/c he is still "young" and has some more growing to do. He is now 6' 1/4" (6' six months ago) and 134 lbs, so still on the thin side but it's certainly not from lack of eating b/c he has a huge appetite. So we're looking forward to our visit this time next year unless of course something comes up and he starts having an issue and in that case we'd be heading back right away is what the plan is.

                    I have every x-ray on one CD and I had a quick look at some of them but I'm still trying to figure out the program but there's some really neat ones that I've never seen before such as one with the Cobb angle drawing and another one of some sort of 'map' where the screws were to go. There's one when during his first surgery (posterior release) Dr.K put in 8 screws at the apex; looking forward to looking at all of them. Wine time!
                    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
                    Halo Traction & 1st. surgery on March 22nd. 2011
                    Spinal Fusion on April 19th. 2011

                    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



                    http://tinyurl.com/Elias-Before
                    http://tinyurl.com/Elias-After

                    Comment


                    • Glad that everything is going so well
                      Melissa

                      Fused from C2 - sacrum 7/2011

                      April 21, 2020- another broken rod surgery

                      Comment


                      • Hi Elisa,

                        Thanks for taking the time to post Elias's great report. I think of you guys often, and it's good to hear how well he is doing.

                        Do you have any news on Walid?
                        Gayle, age 50
                        Oct 2010 fusion T8-sacrum w/ pelvic fixation
                        Feb 2012 lumbar revision for broken rods @ L2-3-4
                        Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


                        mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
                        2010 VBS Dr Luhmann Shriners St Louis
                        2017 curves stable/skeletely mature

                        also mom of Torrey, 12 y/o son, 16* T, stable

                        Comment


                        • Great news. What a journey!
                          Sharon, mother of identical twin girls with scoliosis

                          No island of sanity.

                          Question: What do you call alternative medicine that works?
                          Answer: Medicine


                          "We are all African."

                          Comment


                          • Glad to hear how well Elias is doing!
                            mariaf305@yahoo.com
                            Mom to David, age 17, braced June 2000 to March 2004
                            Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

                            https://www.facebook.com/groups/ScoliosisTethering/

                            http://pediatricspinefoundation.org/

                            Comment


                            • Gayle, I haven't talked with Debbie too much lately but Walid's surgery was very high risk and he did have some complications that he and his mom are dealing with. They both are amazingly strong people.

                              I'm looking at the CD that Shriners put together for me and here's 3 images that I think are really neat.

                              The first one is from our first consultation (ever) with Dr. Krajbich back in January of 2011 where his Cobb angle measured 110*. I really think his curve was probably closer to 115* b/c he actually lost an inch during our two month wait.

                              Second one was taken after his posterior release, halo/weight traction after only six days and his curve measured 59.3*.

                              The third image was taken after four weeks in halo/weight traction and his rods were put in. There is no measurement on the image but I was told his curve was about 25*.

                              I am still amazed by these images and how great of a job Dr. K and the team @ Shriners did for Elias.
                              Attached Files
                              Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
                              Halo Traction & 1st. surgery on March 22nd. 2011
                              Spinal Fusion on April 19th. 2011

                              Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



                              http://tinyurl.com/Elias-Before
                              http://tinyurl.com/Elias-After

                              Comment

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