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Thread: So glad I found you guys!

  1. #766
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    April 19th. 2012 marked Elias' first anniversary of his second surgery where he had his rods put in. He is doing amazingly well and you'd never know he'd gone through what he did. He's doing so well in every aspect and we're getting ready to head back down to Portland, OR again on Tuesday for his checkup with the Shriners. It's a bit of a journey but they are so supportive, it's more like a little holiday. I'll let you all know how things go with the checkup with Dr. Krajbich. I'm expecting an excellent report.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  2. #767
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,901
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  3. #768
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Chinchillas and wine, two of my favourite topics. I'm pretty sure Pip can play some hockey; he's watched it enough on TV. 3 favourites now.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  4. #769
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,535
    I love that video! They should make a series of similar videos.....they would be a huge hit in piano bars. (Or rock shows)

    I saw Rush in concert about 20 years ago during the “Presto” tour and they had these huge rabbits coming out of top hats on each side of the stage. Same type of thing.....Rodent relaxation therapy.

    http://en.wikipedia.org/wiki/Presto_(album)

    Have a great trip.

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  5. #770
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    Quote Originally Posted by Elisa View Post
    April 19th. 2012 marked Elias' first anniversary of his second surgery where he had his rods put in. He is doing amazingly well and you'd never know he'd gone through what he did. He's doing so well in every aspect and we're getting ready to head back down to Portland, OR again on Tuesday for his checkup with the Shriners. It's a bit of a journey but they are so supportive, it's more like a little holiday. I'll let you all know how things go with the checkup with Dr. Krajbich. I'm expecting an excellent report.
    It's great to hear Elias is doing so well. Hope your journey back to Shriners goes well. You and Elias will be an inspiration to many, I'm sure.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  6. #771
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    Have a safe trip . Glad that he is doing so well
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  7. #772
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Thanks for the well wishes guys. Had a nice drive down the Island to Nanaimo and a very smooth ferry sailing across to the mainland and we're hanging out in our hotel room in Vancouver and about to head to the restaurant for something to eat. We'll be heading south across the border early tomorrow morning and should be in Portland by about 3:30 pm if all goes well. I love how quickly the Shriners bus gets pushed through at the border while everyone else has to sit and wait. The border guard (is that what they're called?) comes on board, checks passports and takes a quick look in the bathroom to make sure there's no stowaways and away we go. :-)
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  8. #773
    Join Date
    Oct 2011
    Location
    East Central FL
    Posts
    192
    One year out- that is so wonderful! Thank you - and Elias - for the inspiration to the rest of us! Keep on updating, please!
    Mom of 14yo son diagnosed Oct 2011
    Surgery 1/3/12 w Dr. Geof Cronen,
    Tampa General Hospital T3 to L1
    Jacob's pre surg curves: T58 & L31 12/28/11
    photos & xrays in "First-Time Surgery" thread "Before & After"

  9. #774
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Back in Vancouver. We left a bit later than expected b/c we were waiting for another family to finish up their appointment so we hit a bit of heavy traffic going through Seattle but we're finally back in Van and will catch the 8:30 AM ferry tomorrow and be back home on the Island by about 1:00.

    Everything looks great with Elias' x-rays and physical, all metalwork is securely in place and all restrictions have been lifted but of course I am still going to be keeping a close eye on him and I'm glad he's not the sporty type b/c that means less worry for me. Dr. Krajbich would like to see Elias again in one year b/c he is still "young" and has some more growing to do. He is now 6' 1/4" (6' six months ago) and 134 lbs, so still on the thin side but it's certainly not from lack of eating b/c he has a huge appetite. So we're looking forward to our visit this time next year unless of course something comes up and he starts having an issue and in that case we'd be heading back right away is what the plan is.

    I have every x-ray on one CD and I had a quick look at some of them but I'm still trying to figure out the program but there's some really neat ones that I've never seen before such as one with the Cobb angle drawing and another one of some sort of 'map' where the screws were to go. There's one when during his first surgery (posterior release) Dr.K put in 8 screws at the apex; looking forward to looking at all of them. Wine time!
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  10. #775
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    Glad that everything is going so well
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  11. #776
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,160
    Hi Elisa,

    Thanks for taking the time to post Elias's great report. I think of you guys often, and it's good to hear how well he is doing.

    Do you have any news on Walid?
    Gayle, age 49
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    5/10 VBS Dr Luhmann Shriners St Louis
    5/16 6 yrs post-op, 24*T/ 22* L, mild increase in curves, watching

    also mom of Torrey, 12 y/o son, 16* T, stable

  12. #777
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,901
    Great news. What a journey!
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  13. #778
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,809
    Glad to hear how well Elias is doing!
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  14. #779
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Gayle, I haven't talked with Debbie too much lately but Walid's surgery was very high risk and he did have some complications that he and his mom are dealing with. They both are amazingly strong people.

    I'm looking at the CD that Shriners put together for me and here's 3 images that I think are really neat.

    The first one is from our first consultation (ever) with Dr. Krajbich back in January of 2011 where his Cobb angle measured 110*. I really think his curve was probably closer to 115* b/c he actually lost an inch during our two month wait.

    Second one was taken after his posterior release, halo/weight traction after only six days and his curve measured 59.3*.

    The third image was taken after four weeks in halo/weight traction and his rods were put in. There is no measurement on the image but I was told his curve was about 25*.

    I am still amazed by these images and how great of a job Dr. K and the team @ Shriners did for Elias.
    Attached Images Attached Images
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

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