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Thread: Update on Brenda (Barleygirl)

  1. #1
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,691

    Update on Brenda (Barleygirl)

    Here is a post from Brenda's Husband from her Care Pages:

    "The rehab is tiring her out, but she is enjoying the exercise. Earlier today, they told her that they would fit her for leg braces. The good news about that is that they are expecting her to walk."
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  2. #2
    Join Date
    Mar 2005
    Location
    Ukiah CA
    Posts
    891
    I'm glad brenda is geting better
    Kara
    25
    Brace 4-15-05-5-25-06
    Posterior Spinal Fusion 3-10-10
    T4-L2
    Before 50T
    After 20T

  3. #3
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Karen--
    Thanks for letting us know this! That is definitely an improvement. Hopefully, this trend will continue. I'm sure it will be a slow road. Lots of special prayers for Brenda. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  4. #4
    Join Date
    Dec 2009
    Location
    NC
    Posts
    791
    That is wonderful news. God is Great. I have her in my prayers.

    Melissa

  5. #5
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,691

    Update from Brenda's husband on Carepage

    Patient UpdateMy Account Sign Out
    Print Updates Close this window

    October 02, 2010 at 09:00 PM MST
    It's nice to post an update in the middle of the day when I'm not exhausted. Tomorrow will be two weeks sine Brenda "woke up." she is now feeding herself, tootling around in a wheelchair and moving herself in bed. Her legs are still paralyzed although she does have some movement and feeling. All that bodes well for her future and her ability to walk Pain is a big issue yet as is discouragement. As any one who has been very ill knows, it is hard to be positive all the time.

    We anticipate about four more weeks, perhaps more, in St. Joseph's rehab. We are often asked when she will be released. We are told when she is independent in most functions. Brenda was able to join me at lunch today in the hospital cafeteria. For as many times as I've eaten there by myself, it was great to have her with me. We enjoyed listening to LDS General Conference on the Internet this morning. Things are progressing slowly, but -->
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  6. #6
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    Thanks Karen, for posting that. I'd been wondering if Brenda was improving. Sounds like she can now look forward to better times to come, even if it may take some time.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  7. #7
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,691

    Recent update on Brenda

    Print Updates Close this window

    October 07, 2010 at 09:00 PM MST
    Brenda has had a relatively good week. She is not able to stand or walk, but her upper body has recovered relatively well. She is able to transfer from bed to wheelchair with help. She enjoys moving around in her wheel chair and is happy to have a replacement for the one that pulled left. Yesterday (Thursday), she went to lunch with her OT and some other patients. It felt good to get out. She likely has two to four week left at St. Joseph's rehab, then she will transfer to outpatient rehab in Gilbert. Hopefully, a couple of weeks after that she'll return to Payson. At that time, it will be a challenge for me to take care of her, but we'll worry about that when the time comes. Lori and Ellen from Brenda's Redbird days will visit tomorrow. Brenda is looking forward to having them. Hope all is well with everyone.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  8. #8
    Join Date
    May 2008
    Location
    long island, ny
    Posts
    233
    I've been following Brenda's progress on the this forum, and there really does seem to be some, it looks like there is a chance she will, with time walk again prayerfully.
    Dolores A
    June 4, 2009 Anterior L3 - S1
    June 8, 2009 Posterior T4 - Pelvis
    Mark Agulnick, MD FAAOS
    NY Spine & Scoliosis Center

  9. #9
    Join Date
    Jul 2009
    Location
    Missouri
    Posts
    67
    was this the last update on Brenda? Anything new that I missed? I had to take a break from the forums but I was thinking about Brenda.
    Thanks
    Kelly
    mom of Cameren 12 yrs. old
    Chiari,retroflex odontoid,syringomyelia,scoliosis
    Chiari decompressions 6/2005,5/2006
    Syringopleural shunt 6/2009
    Boston Braced off & on 6.5yrs
    scoliosis surgery- 9/15/10 T4-L4 Dr. Bridwell
    Fell & broke finger,surgery 3/2011

  10. #10
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,691
    I got a CarePage update about 10 days ago after not hearing anything for some time. Brenda and her husband are home and were "giddy" about being home. They have a ramp to their house now and I think she is being fitted with braces for her legs. If I get another update, I will be sure to post it.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  11. #11
    Join Date
    Jul 2009
    Location
    Missouri
    Posts
    67
    thanks Karen, the news they are home and she is recovering is GREAT,,,
    Kelly
    mom of Cameren 12 yrs. old
    Chiari,retroflex odontoid,syringomyelia,scoliosis
    Chiari decompressions 6/2005,5/2006
    Syringopleural shunt 6/2009
    Boston Braced off & on 6.5yrs
    scoliosis surgery- 9/15/10 T4-L4 Dr. Bridwell
    Fell & broke finger,surgery 3/2011

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