Dr Luhmann, St Louis
I am so sorry to hear that your daughter will need surgery. My daughter's curve is very minor compared to your daughter's, but I wanted to tell you that she had surgery (VBS) with Dr Luhmann at Shriner's St Louis in May. I absolutely love Dr Luhmann, as does my daughter (who is 8). He is great with the kids. He is clearly very smart and experienced with scoliosis. He is very calm, kind, completely unhurried, and will answer any and all questions you can think of. He also told me he puts up all of a child's x-rays on huge screens and studies them over and over while planning for surgery.
We were very impressed by our experience during my daughter's post-op hospitalization. We saw a number of young children in halo's. It is kind of shocking to see at first, but I had plenty of chances to observe these kids in the nurses station and playroom, and they don't seem bothered at all by the halo. The nurses were very comfortable caring for the halo kids.
Good luck with your decision, I wish you and your daughter the best. Please let us know how things are going.
Gayle, age 46
Boston brace as a teen for AIS
Oct 2010 fusion T8-sacrum w/ pelvic fixation, TLIF at L4/5.
Feb 2012 major A/P revision for broken rods
mom of Leah, 12 y/o, diagnosed Jan '08 with 26* thoracic JIS (age 6)
4/08 26 degrees, brace 16 hrs/day
9/08 17 deg. OOB - brace discontinued
9/09 30 deg, resuming brace
5/10 VBS Dr Luhmann Shriners St Louis
5/14 stable 4 yrs post-op, 14* T
also mom of Torrey, 9 y/o son, 12* T, decreasing spontaneously (from 19*)