My kids had their echos and everything was normal.
The pediatric cardiologist mentioned he was now involved in a study of Marfans which obviously is a good thing in our case.
As I understood him, he said that if you have Marfans and get through your 20s, basically, if you get to 30 without any aortic root enlargement, the chance of enlargement and dissection drops off a lot after that point. He is not saying the chances drop to zero so he is not in contradiction to the metabolic geneticist who said you can never stop monitoring if you have certain indicators. But I think if my girls get to 30 then they can relax about it and maybe only get echos every 5 or even 10 years.
He recommended they continue to get echos every 2 years until they are out of their teens and then I think will have to hand them off to an adult cardiologist. So it will be interesting to see that that next person says when we cross that bridge.
The pediatric cardiologist mentioned he was now involved in a study of Marfans which obviously is a good thing in our case.
As I understood him, he said that if you have Marfans and get through your 20s, basically, if you get to 30 without any aortic root enlargement, the chance of enlargement and dissection drops off a lot after that point. He is not saying the chances drop to zero so he is not in contradiction to the metabolic geneticist who said you can never stop monitoring if you have certain indicators. But I think if my girls get to 30 then they can relax about it and maybe only get echos every 5 or even 10 years.
He recommended they continue to get echos every 2 years until they are out of their teens and then I think will have to hand them off to an adult cardiologist. So it will be interesting to see that that next person says when we cross that bridge.
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