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Thread: The benefits of being fused

  1. #91
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,551
    Hey,hey, hey.....this is a “benefit” thread!

    Stop thinking about death and scoliosis surgery.....Sigh....negative thoughts do not help. Think positive!

    Worry about things like building your immune system which is so important!

    Organic yogurt, spinach, and adding lemon juice to your drinking water, stuff like that.

    And don’t forget about leafy greens! LOL (If you work in the vegetable dept at the grocery store, drop that idea)

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  2. #92
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,526
    Thanks to everyone who has posted here. I am a big mess now with increased pain, scared of the possible X-ray results of progression in 2 weeks with my next surgeon appt......yet looking forward to doing something for relief. Pain pills do not help much. I will reread the positive notes frequently. I need to understand the benefit.
    Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  3. #93
    Join Date
    Aug 2008
    Location
    Indianapolis, IN
    Posts
    416

    Cool Benefits to being fused...there are many...

    I just noticed this thread,and it started me thinking. Even though I have had a rough surgical journey with 2 revisions, I would do it again. I know many of you would be surprised at that.

    I am a nurse. I remember that prior to my first scoliosis surgery, I would go to work and just the act of bending next to a patient to hang an IV bag, draw some blood or take a BP would set my back in spasms. I had such intense sciatica in one leg that I would get to limping with pain and had to sit down with my knee to my chin until it would die down. I was in tears many times. The pain was progressive starting in my 20's and I lived like this for many years. After my initial unsuccessful surgery, I could not walk even 1/2 a block. I had the rare complication of sagittal imbalance.

    I am pain free now. I work a very busy job and the most pain I may feel is an ache in my lower back. I hesitate to even call it pain after the pre-surgery pain and post-op pain I have experienced. There is nothing I can't do now that I wasn't doing prior to surgery. In fact I can do more.

    I have met many people in my daily life and with scoliosis, and most are surprised to learn that they have options like I had. A couple have gone on to have successful scoliosis surgery with my surgeon. Bless him.

    My back certainly is not perfect and sometimes I feel envious of people without scoliosis. In the whole scheme of things though, I would have rather dealt with this. Could have been worse.
    May 2008 Fusion T4 - S1, Pre-op Curves T45, L70 (age 48). Unsuccessful surgery.

    March 18, 2010 (age 50). Revision with L3 Osteotomy, Replacement of hardware T11 - S1 , addition of bilateral pelvic fixation. Correction of sagittal imbalance and kyphosis.

    January 24, 2012 (age 52) Revision to repair pseudoarthrosis and 2 broken rods at L3/L4.

  4. #94
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,551
    Kristy

    Having sciatica at our age presents an extremely difficult scenario....After you experience the pain that it offers, which I consider one of the worst, along with scoliosis and lumbar degeneration, there isnít much choice. It makes the surgical decision for you.

    My hospital reports state that I ďfailedĒ conservative measures. I tried pretty hard through the years and spent a fortune. I think that the best thing that I did in that state was swimming in the ocean. That worked the best, and of course cost nothing.....Maybe I could have moved to a warm area and continued swimming but progression was moving along.....having a 70 degree lumbar with degeneration at age 50 just about warrants surgical intervention. The pain doesnít tip the scales of decision, it slams it down. When it feels like a horse kicks you in the hip, and the flame thrower is on your ankle, you know your there. When you cant make it across the parking lot, and are left standing in the pouring rain, you know your there.

    We are pain free now....and you might have had to do your revisions, and I lost my gall bladder, but it was sure worth it.

    I donít feel envious of people without scoliosis, but have trouble offering sympathy for those non-scoliís in pain.....Iím not the right person for that job. For scoliís and kyphoís itís a different story. I hope Iím not being a sour puss about these feelings......

    The tears of pain have ceased.....itís a thing of the past.

    We did it.
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  5. #95
    Join Date
    Oct 2014
    Posts
    43

    Thank you so much everyone...

    Thank you Ed for starting this positive post on scoliosis fusion, and thank you to each and everyone of you that has contributed something positive. I am in the process of scheduling a spinal fusion, and this has helped me so much. I am so blessed.
    Hugs,

    hdsluckygirl
    hdsluckygirl@gmail.com

  6. #96
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,551
    I actually was looking back at some of the old stuff.....and came across this thread.

    It's pretty good reading material....(smiley face)

    Merry Christmas everyone!

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  7. #97
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,690
    Ed,
    I just read through this thread and got a little melancholy seeing names of "friends" from the forum who no longer post. I actually just recently checked back in myself. It was strange to read a post of mine from 2010 before I had surgervand then to read a couple from 2012 after surgery. I wonder how New York City, Jess, is doing. She was practically bedridden but did not want to have surgery.
    Last edited by golfnut; 12-24-2016 at 05:17 AM.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  8. #98
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,526
    Just reread my post. I was toast at that point, and although I may take the PRIZE for having some of the worst postop problems, I am still happy that I had my original surgery. Chronic sciatic pain can ruin your life.

    Susan....now known as "Titanium Susan" since I have 5 titanium rods
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  9. #99
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    766
    Susan it is so good to hear from you. I hope you are doing well
    T10-pelvis fusion 12/08
    Fractured t-9 six days out of surgery
    C5,6,7 fusion 9/10
    PJK at t-9
    T2--T10 fusion 2/11
    Removal of left side t6-t10. 8/14
    C 4-5 fusion 11/14
    Right scapulectomy 6/15
    Right pectoralis major muscle transfer to scapula
    To replace the action of Serratus Anterior muscle 3/16

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