Hi all. Just wanted to say I survived the surgery on tuesday! I have had so much horrible pain the past 6days. This surgery is brutal as I feellike I have bben run over by a mac truck or something! I will post more when I can. Too painful now. I have been in the hospital since Tuesday. Thank u all for the support. Debbe-thanks for posting for me!
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I survived June 8th!
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Hang in there Jen, it will get better - soon, I am sure. I hope you're getting the best care possible. Sleep as much as you can - it passes the time until that magical day when the pain eases up. It will!Surgery March 3, 2009 at almost 58, now 63.
Dr. Askin, Brisbane, Australia
T4-Pelvis, Posterior only
Osteotomies and Laminectomies
Was 68 degrees, now 22 and pain free
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I'm so glad to hear from you Jen. Hang in there, the pain will start to get better around the 2 week mark. The Dr. told me that and it happened like clockwork.__________________________________________
Debbe - 50 yrs old
Milwalkee Brace 1976 - 79
Told by Dr. my curve would never progress
Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
Pre-Surgury Thorasic: 66 degrees
Pre-Surgery Lumbar: 66 degrees
Post-Surgery Thorasic: 34 degrees
Post-Surgery Lumbar: 22 degrees
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Ditto what everyone else has said. It will get better. I remember those first few days trying to get out of bed were just agony. (part of the reason I decided sitting in a chair worked better for me.) Anyway, just wanted to send support and encouragement. Make sure you're getting your pain meds on time! Great to hear from you!
Anne in PA
Age 58
Diagnosed at age 14, untreated, no problem until age 50
T4 to sacrum fusion
63 thoracic now 35, 92 lumbar now 53
Dr. Baron Lonner, 2/2/10
Am pain-free, balanced, happy & an inch taller !
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Jen--You did great. It will get better. Hang in there! I know I wanted to fast forward about 5 months when I got done but just take it one day at a time. JanetJanet
61 years old--57 for surgery
Diagnosed in 1965 at age of 13--no brace
Thoracic Curve: 96 degrees to 35 degrees
Lumbar Curve: 63 degrees to 5 degrees
Surgery with Dr. Lenke in St. Louis--March 30, 2009
T-2 to Pelvis, and hopefully all posterior procedure.
All was posterior along with 2 cages and 6 osteotomies.
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Congratulations--it's done!!!
Don't forget to ask for more pain relief if you need it--they don't want you to be in pure agony! It's okay to use the meds for a while.
Hope you go home soon!
Evelynage 48
80* thoracolumbar; 40* thoracic
Reduced to ~16* thoracolumbar; ~0* thoracic
Surgery 3/14/12 with Dr. Lenke in St. Louis, T4 to S1 with pelvic fixation
Broken rods 12/1/19; scheduled for revision fusion L1-L3-4 with Dr. Lenke 2/4/2020
Not "confused" anymore, but don't know how to change my username.
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Congrats on being in recovery Jen, even though you're in a ton of pain. I hope you'll get pictures of your new back soon to see what you're doing all this for. You put it just like I've thought it will be, like being run over by a truck. But, I've heard it said alot that the pain starts to ease up after the 2nd week. Thanks for posting and hoping each day brings more relief.
DebraDebra
Age 45
Pre - surgery Thoracic 69, Lumbar 48
Post-surgery Thoracic 37, Lumbar 39 (unfused)
Fused T4-T12
Milwaukee braced, 11 years old to 15 yo
Surgery Sept. 1st, 2010 Dr. Boachie
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I spoke to Jen this afternoon and she's still in the hospital. They were ready to release her today, but she's having horrible muscle spasms (in the exact spot I always had them--to the right of the left shoulder blade) that had her screaming in pain. They're adjusting her meds to try and handle it better, but she was very upset that it was still terrible. I assured her that it will not always be this way and it WILL get better. It's hard to believe when you're in the middle of it though.
She's also fearful of the car ride home, as the NY streets are so bumpy. I had that problem too; I told her to make sure she is medicated right before they leave, have pillows with her, and be able to 'brace herself' with her arms on the car arm rests when bumps happen.
I'll check on her tomorrow.__________________________________________
Debbe - 50 yrs old
Milwalkee Brace 1976 - 79
Told by Dr. my curve would never progress
Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
Pre-Surgury Thorasic: 66 degrees
Pre-Surgery Lumbar: 66 degrees
Post-Surgery Thorasic: 34 degrees
Post-Surgery Lumbar: 22 degrees
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Oh poor Jen. I hope they can get her meds right to relieve those spasms and she can get home, into her own bed, where I am absolutely positive, things will look a lot better. Thanks Debbe for your update. Hope the next one is much happier.
Those of us on "this" side know it gets better, but as you say Debbe, it's hard to believe at that point.Surgery March 3, 2009 at almost 58, now 63.
Dr. Askin, Brisbane, Australia
T4-Pelvis, Posterior only
Osteotomies and Laminectomies
Was 68 degrees, now 22 and pain free
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