Originally posted by jrnyc
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Hi,
I am from the UK and am interested to read that there is an increase in your pain and your experience with the consulting surgeon.
I found out about my scoliosis in my early 30s and my curves of 55T and 35L did not progress until I was 50. After years of accommodation back pain without really knowing why I started getting bad acute pain. On the intervening years I had generally kept fit (nothing major) but I was slim and enjoyed STEP and badminton and gave most exercise classes a go when the opportunity arose. I headed off to physio and there I remain- twice a week - paid for out of my own pocket to ensure continuity etc.
I am 56 now and have had some monitoring in between- 6 years ago the surgeon told me that I now had a small neck curve but I was stable (head on top of pelvis) and that the deformity was too long (3 curves) for surgical intervention.
So on I went- now getting a bit down and very very scared of what was happening to my body. A couple of years later I have no neck to speak of - but most of all SO much more pain.
Back to the surgeon and find that my neck is now 49* - where did this curve come from?? and the others are progressing. What to do now- but the reason I ask is that generally in the UK they don't seem to do surgery for pain - it is much more for stability. Unless you are in your teens when it can affect you so much more cosmetically. I don't know if my neck qualifies me now for being unstable -. I was on the list for a PLIF just to help a bit!- now they said that this might prevent a longer term solution and I have to go back for a further consultation with someone else.
Did your surgeon suggest that they would operate for the pain even though you are not progressing? I am not sure what I want because it is so complicated but some days I would just like it all to stop.
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