reply to both
Hi, First of all so sorry for your hard experience with the infection. Wow! How very, very frustrating and scary! I would keep searching for a doc. There has to be someone out there who is willing to try to help. Infections scare doctors, I know in my state they soon will be posting the infection rates for all hospitals. My father was a doctor and invovled in the medical upper echalons and felt the hospital we are working with had too high infection rates. This may be a concern for the docs you have seen. I too have checked out the mapractice issue and you are right it won't work for infection.
Our concern has been the fact that despite the infection my daughter's instrumentation was extended not removed. And even that can't be construed as problematic because some well respected literature supports
that view. But I doubt that will happen again in most hospitals because I am sure the word will spread with her experience and with others who don't fit the results.
And for my professional friend, my daughter has seen a psychologist and appears to be coping very well with her disability ( except for the one acting out incident, which turns out to be unrelated to her medical problems.)
I have been seeing and getting counseling and medical help for awhile. I probably need more. The best help was talking to an Hospital Social Worker, I happened to grab on the phone. She talked my language since I was a Medical Social Worker and knew the Medical world intimately back in the day.
I had a child patient die from IV antibiotics back in the 80's. My sister also had almost deadly complications from a medport insertion. She had two collasped lungs and lost all her blood volume. She left with a Hospice referall. So my anxiety is based on past experience and has been getting worse as time goes on. I have been communicating with the nurse via e-mail and probably wrote anxiety provoked messages which the doc read and called blogs and thus my worry about this forum.
Surgical folks could care less about psycho-social issues and everyone in Medicine is pressed for time and under pressure.
Extended family members are very worried and have urged me to call regarding this past experience.
Multiple stressors for me equal high anxiety and it really makes me angry that we have had to go through this. We didn't need this.
But I knew when we started it was risky. I had hoped luck would be with us. I guess my issues are with trust. I don't believe this surgery is going to work. But my daughter does, and likes and trusts the doctor. He knows her back and he is accrediated.
Maybe what we need is a conference with him and the nurse without my daughter to go over the surgery and clear the air.
Thanks as always for your support and the support of this Forum - you have seen me at my most anxious and it has been a godsend to let it out!!! Mary
Hi, First of all so sorry for your hard experience with the infection. Wow! How very, very frustrating and scary! I would keep searching for a doc. There has to be someone out there who is willing to try to help. Infections scare doctors, I know in my state they soon will be posting the infection rates for all hospitals. My father was a doctor and invovled in the medical upper echalons and felt the hospital we are working with had too high infection rates. This may be a concern for the docs you have seen. I too have checked out the mapractice issue and you are right it won't work for infection.
Our concern has been the fact that despite the infection my daughter's instrumentation was extended not removed. And even that can't be construed as problematic because some well respected literature supports
that view. But I doubt that will happen again in most hospitals because I am sure the word will spread with her experience and with others who don't fit the results.
And for my professional friend, my daughter has seen a psychologist and appears to be coping very well with her disability ( except for the one acting out incident, which turns out to be unrelated to her medical problems.)
I have been seeing and getting counseling and medical help for awhile. I probably need more. The best help was talking to an Hospital Social Worker, I happened to grab on the phone. She talked my language since I was a Medical Social Worker and knew the Medical world intimately back in the day.
I had a child patient die from IV antibiotics back in the 80's. My sister also had almost deadly complications from a medport insertion. She had two collasped lungs and lost all her blood volume. She left with a Hospice referall. So my anxiety is based on past experience and has been getting worse as time goes on. I have been communicating with the nurse via e-mail and probably wrote anxiety provoked messages which the doc read and called blogs and thus my worry about this forum.
Surgical folks could care less about psycho-social issues and everyone in Medicine is pressed for time and under pressure.
Extended family members are very worried and have urged me to call regarding this past experience.
Multiple stressors for me equal high anxiety and it really makes me angry that we have had to go through this. We didn't need this.
But I knew when we started it was risky. I had hoped luck would be with us. I guess my issues are with trust. I don't believe this surgery is going to work. But my daughter does, and likes and trusts the doctor. He knows her back and he is accrediated.
Maybe what we need is a conference with him and the nurse without my daughter to go over the surgery and clear the air.
Thanks as always for your support and the support of this Forum - you have seen me at my most anxious and it has been a godsend to let it out!!! Mary
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