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Thread: decisions, decisions and different opinions

  1. #91
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445
    Thanks for posting Rob. I'm glad the surgery is over and that everything went according to plan. Give Evelyn my best.
    Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  2. #92
    Join Date
    Jul 2011
    Location
    Nashville, TN
    Posts
    177
    So glad she is doing well. Please give her our best.
    Pam, age 49
    Thoracolumbar curves 80 and 40 corrected to 20 degrees
    April 20, 2012 surgery with Dr. Lenke
    T-3 to sacrum

  3. #93
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,975
    Thx for posting Rob.

    Things are hard in the beginning....you guys hang in there, things will get better.

    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  4. #94
    Join Date
    Jul 2010
    Location
    Dubuque, Iowa
    Posts
    61
    Great news, welcome to the otherside Evelyn....you are in my thoughts.
    Spring
    42 yrs old
    Milwaukee braced 1983 to 1989
    was told my curves would never progress
    at 19yrs old 1991, T30-L38
    2010, T38-L56--progression in one year 2011, T40-L67
    new diagnosis-kyphoscoliosis, DDD, Arthritis, Osteoporosis, 73 degree Kyphosis
    Surgery 1-09-12....10 hrs all posterior T4-sacrum & 2 cages
    Dr. Lenke-St. Louis Mo.
    Surgery to clean out infection 2-10-12
    Revision for broken rods 1-23-14

  5. #95
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,707
    THanks for posting, Rob. I'm glad everything went well. We will be looking forward to updates when there is time.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  6. #96
    Join Date
    Feb 2012
    Location
    NC
    Posts
    129

    Glad Evelyn is doing well

    So Glad to hear that Evelyn is doing well. Praise God! Rob, Can you tell us a little bit what it was like waiting while Evelyn was under? I would like to prepare my husband and family (I'm scheduled in Oct. w/ Dr. Lenke) as much as possible.
    Best wishes for continued healing and strength!
    Heidi
    Scheduled for surgery with Dr. Lenke Oct. 2012
    53*T 71*L
    Surgery 10/05/2012 T4-pelvis
    Correction: looks perfect! Will find out how perfect at future appointments

  7. #97
    Join Date
    Jul 2011
    Posts
    535
    Quote Originally Posted by hasteffen View Post
    So Glad to hear that Evelyn is doing well. Praise God! Rob, Can you tell us a little bit what it was like waiting while Evelyn was under? I would like to prepare my husband and family (I'm scheduled in Oct. w/ Dr. Lenke) as much as possible.
    Best wishes for continued healing and strength!
    Heidi
    Hi Heidi

    Congrats on your surgery date with Dr Lenke. What are your
    curve(s) measurements? Have your hubby read my blog
    so he can learn from my hubby's experience of taking care of
    me.

    Warmly
    Doreen
    44 years old at time of surgery, Atlanta GA

    Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
    Post-Surgery curves ~10 degrees, regained 4 inches of height

    Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
    2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!

    http://thebionicachronicles.blogspot.com/

  8. #98
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Rob--
    It was so good to check in and see your post. Tell her welcome to the other side and best wishes for a good steady recovery. Thanks so much. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  9. #99
    Join Date
    Feb 2010
    Location
    Ohio
    Posts
    200
    Rob,

    Great News! I'm glad everything went well for Evelyn! I have been thinking of her yesterday and today. I was wondering if she got "upright" today.

    A tip for you, Rob...My family thought the Queeny Tower Cafeteria there at Barnes had a nice view. I never got to see it (smile).

    Kathy
    Kathy
    46 yrs at surgery, now 50
    71 degree thoracolumbar curve corrected to 34 degrees
    8/2/2010 surgery with Dr. Lenke

    posterior T9 to sacrum with pelvic fixation

    4 osteotomies and 1 cage
    http://s1066.photobucket.com/albums/...athK_08022010/

  10. #100
    Join Date
    May 2010
    Location
    Indianapolis area
    Posts
    966

    Rob Again, Checking in

    Hi all. Evelyn and I (Rob) are in a private room on the seventh floor ortho unit at Barnes-Jewish Hospital South. I am typing, but Evelyn wanted to share her experience. So here goes:

    Evelyn: First of all, thanks you so much to everyone on the forum for the support before surgery.

    I went in Wed morning at 6:30. I waited in preop until about 8:30 when they gave me anesthesia. I don;t even remember being wheeled into the operating room. The first thing I remember was waking up and having my ventilator tube taken out. They took me down to the CCA (Critical Care Area), which I thought would be for a few hours. Ended up being 24 hours since there were no rroms on the seventh floor.

    Critical care was good from standpoint of a nurse devoted almost entirely to you. But it is very loud and bright and seems more like an emergency room. So not great for rest. Finally around 7:30 Thursday night, we moved into my room upstairs. Things have gotten better since then. Initially, I was in a lot of pain because my oxycontin dose got delayed by three hours due to the room change. Plus, they increased the delay between doses of pain medication from one/ten minutes to one/twenty before moving me. I would say my pain shot out to about an 8 out of ten. But then I got the ortho nurse talked to the doctor on call and increase the pain meds. So gradually, overnight, it went down to about a six. Then in the morning, I begged the rounding doctor (Dr. Lenke had to go to a Chicago conference) to do a little more. So he added percocet, valium and flexerol. So, I am definitely taking a large cocktail of pain medication. But now the pain is down to a 2 or 3.

    So today (Friday, 9:30 PM, second day after surgery) was a much better day. I got to sit up in a chair for about twenty minutes twice and I walked baby steps inside the hospital room. Also, Kathy from Dr. Lenke's office came by today with my x-rays. I don't know the degree of my correction, but it looks pretty straight. I have pictures and plan to post them later. I can tell by looking out my window that the weather in St. Louis is great. So I sent my husband and mo out to enjoy it for dinner. And I've beenh getting a lot of naps. (Oh by the way, the first 24 hours, I never slept more then ten minutes at a time because of the pain.)

    The next big hurdle will be getting my foley catheter removed so I can use the restroom. (Just as a side note, the tech in Critical Care Unit tried to take it out before I had gotten out of bed. Fortunetly, Dr. Lenke stoped by about that time, and told them to leave it.) All in all, the pain has been a little worse than expected, but I am extremely relieved to be on the other side, and very happy that so far there have not been any major complications.

    Thanks again to all for listening and supporting me. I will be in touch soon. Best, Evelyn
    age 44
    80* thoracolumbar; 40* thoracic
    Reduced to ~16* thoracolumbar; ~0* thoracic
    Surgery 3/14/12 with Dr. Lenke, T4 to S1 with pelvic fixation
    Not "confused" anymore, but don't know how to change my username.

  11. #101
    Join Date
    May 2009
    Posts
    3,745
    congratulations, Ev
    wonderful to hear from you...to know the surgery went well and that
    healing has begun...
    i hope that your recovery is steady and smooth...
    thanks to Rob for posting for you and keeping concerned forum folks informed...
    feel better every day!

    jess

  12. #102
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    Wonderful to read this news. You sound great, for this early. Glad to hear they were willing to help you with that severe pain. Looking forward to more updates as days go by. Thank you Rob!
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  13. #103
    Join Date
    Mar 2010
    Posts
    2,755
    Thanks for the update, for sure! I'm a little more than disappointed that they haven't kept your pain under better control. You don't have a morphine, dilaudid, demerol, or fentanyl pump (I listed all I could think of because every doc has their favorite med)? I would think this early after surgery a pain pump would be the thing so that you have some control over your pain med intake and can't accidentally overdose. When I had my recent surgery (not scoli related) the anesthesiologist and assistant asked me what "my" acceptable pain level was and they kept it well below what I requested, which was a 4. I know these harder surgeries aren't as easy to keep pain under control, that's why they usually give you a pump. Aside from that, I'm glad to hear that Evelyn is doing well. Again, thanks for the update. It especially helps those of us not yet to surgery to know what to expect. It is very selfless and giving to share your experiences, and I, for one, appreciated it tremendously!

    I hope Evelyn gets some well needed rest and gets that pain under better control!

    Take Care,
    Rohrer01

  14. #104
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,245
    Glad to hear that all is going so well so soon
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  15. #105
    Join Date
    Jul 2011
    Location
    Nashville, TN
    Posts
    177
    Hi Evelyn,

    Good to hear that you are making progress and doing well. I wonder why they decreased your pain dosage so soon? When did they take x-rays? I didn't realize they were taken so soon post-op? Sounds like you were lucky to get a private room. Keep up the progress and keep up posted.

    Pam
    Last edited by TwinmomTN; 03-17-2012 at 08:29 AM.
    Pam, age 49
    Thoracolumbar curves 80 and 40 corrected to 20 degrees
    April 20, 2012 surgery with Dr. Lenke
    T-3 to sacrum

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