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Thread: decisions, decisions and different opinions

  1. #166
    Join Date
    Nov 2012
    Posts
    88
    Thank you for the update, Evelyn. It sounds like you are doing really well! That's great that you have such a straight back and very little leg pain. I was wondering about that.
    I am encouraged reading your update. I can identify so much with your post, such as eating comfort foods. I haven't been doing much walking but should get back to that.
    Thank you for the info about your hip. Just yesterday I got a pain in my left hip, so tender that it has caused more of a limp and hurts when I lay down. But I'll just wait some days to see if it goes away. Glad you are doing so well.
    1973 Age 15 diagnosed with scoliosis but told too old for surgery.
    2001 age 43 told too old for surgery, did physical therapy & traction.
    2001 to 2008 Intermittent use of home traction machine and TENS unit.
    2009 traction no longer effective - physical therapy.
    2011 More physical therapy. 2012 Collapsing scoliosis - MRI before surgery
    At age 53, surgery on October 2nd, 2012 with Dr Hey
    Fusion with titanium rods and bolts from T1 to pelvis.
    Post op x-ray

  2. #167
    Join Date
    Apr 2012
    Location
    San Jose, CA
    Posts
    570
    Congratulations, Evelyn on your one-year anniversary! As to being unsure, try not to look back and better think that you have a nice straight back that is stable and will not get worse. You mentioned that you're glad that this surgery is behind you, not ahead of you and I totally with you on that one even though I still have a lot of healing to do.
    I am stronger than scoliosis, and won't let it rule my life!
    45 years old - diagnosed at age 7
    A/P surgery on March 5/7, 2013 - UCSF

  3. #168
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,690

    Congratulations!

    Evelyn,
    Thank you for posting of your improvements as well as some issues you are still having. I eventually noticed improvements in year 2 and even now in the beginning of my third year. At a year, I still couldn't sit very long without noticing a pain in my tailbone-it felt like it had been bruised. As soon as I stood up and walked, it felt better. At some point during the 2nd year, it dawned on me that I was not longer having the need to stand. After my two year anniversary, I quit needing a pillow behind my back in the car unless it was a long ride. I actually try to work on abdomen muscles by just sitting up straight and not leaning back. A church pew is much better now! I know that I regained a lot of muscle strength during year 2 as I was permitted to do more exercises. My flexibility has improved, too. My point of all of this is that I think you are doing well and will continue to notice improvements. Congratulations on your one year anniversary!
    Your new picture on Facebook looks fantastic.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  4. #169
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    Hi Evelyn,

    Just wanted to reiterate what others have said, that the improvements continue into the second year and you may even find, the third year. I strongly believe you will be much more convinced this time next year, that you did the right thing in having the surgery.

    I am fascinated how instructions can vary so much: "I got to meet with Janet (the physical therapist), and she gave me some new exercises to stretch my hamstrings and calves, etc. Contrary to Dr. Lenke, she doesn't recommend bending, lifting or twisting. Also, she said logrolling "is forever." "

    I never log-rolled except for once or twice in hospital. My surgeon had a lever/handle placed onto the side of my bed and from then on, I pulled myself up, and never log-rolled again. Cross fingers it hasn't done me any harm. It doesn't seem to have.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  5. #170
    Join Date
    Aug 2011
    Location
    Indiana
    Posts
    104
    Hi Evelyn,

    Congratulations on reaching that 1 yr post-op milestone. As I am approaching my 2 yr anniversary, I would concur with the others saying that you will continue to improve. It's just more subtle now. It hit me a month ago when I met with my family doctor and I told him that I am really the strongest that I have ever been. Prior to my surgery I wasn't able to do any upper body strengthening because it would just make my back hurt. Now I am doing weights 2-3 times/wk, and it so much easier.

    Hope you will be able to find an exercise routine that will work for you as you head into your second post-op year. Thanks for sharing.
    Donna
    Female - 49 yrs old at surgery
    Surgery 5/5/11 - Dr. Bridwell, St. Louis
    Fused T3-L3
    60 degree thoracic curve corrected to 30 degrees
    Tennis player & returning to the courts!
    http://s1050.photobucket.com/profile/walkingmom1/index

  6. #171
    Join Date
    May 2010
    Location
    Indianapolis area
    Posts
    966
    Thanks, everyone, for the well-wishes! I do believe I will continue to improve. I'm with Susie Bee and some others who had slower recoveries. But I AM recovering, and for that I praise God! Karen, you mentioned the car--yes, I just took my pillow out of the garage because I don't need it anymore!! Jennifer, that is strange about the different instructions, but I would say Dr. Lenke's PT is extremely conservative--even more so than Dr. Lenke himself. I have gotten up a few times without logrolling, and it seemed fine. It's just that logrolling is my habit now.

    Best,
    Evelyn
    age 44
    80* thoracolumbar; 40* thoracic
    Reduced to ~16* thoracolumbar; ~0* thoracic
    Surgery 3/14/12 with Dr. Lenke, T4 to S1 with pelvic fixation
    Not "confused" anymore, but don't know how to change my username.

  7. #172
    Join Date
    May 2010
    Location
    Indianapolis area
    Posts
    966

    Scoliosis Art

    image.jpg

    Hi all,

    Thought you all might enjoy this art I saw at my son's PT office. (See attachment above.) I like the rainbow colored vertebrae.

    Evelyn
    age 44
    80* thoracolumbar; 40* thoracic
    Reduced to ~16* thoracolumbar; ~0* thoracic
    Surgery 3/14/12 with Dr. Lenke, T4 to S1 with pelvic fixation
    Not "confused" anymore, but don't know how to change my username.

  8. #173
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,525
    The image is beautiful! Thanks for sharing!
    Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  9. #174
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    The picture is wonderful. Thanks for sharing it with us

    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  10. #175
    Join Date
    Jul 2012
    Location
    Warsaw, MO
    Posts
    373
    That is very pretty art work.
    Tamena
    Diagnosed at age 12 with a double major curve

    Braced till age 15

    SSBOB T12-L2 Anterior age 34. (October 22,2012) Dr. Robert Gaines Jr. ( Columbia, MO)

    Revision Surgery T2-Sacrum with Pelvic Fixation Prosterior age 35 (November 13,2013) Dr. Michael Kelly (St. Louis, MO)

    Revision Surgery L4/L5 due to BMP Complication age 36 (November 20,2014) Dr. Michael Kelly (St. Louis, Mo)

    Revision Surgery due to broken rod scheduled for October 19, 2016 with Dr. Michael Kelly (St. Louis, MO)

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