Page 16 of 17 FirstFirst ... 614151617 LastLast
Results 226 to 240 of 248

Thread: I have some imaging CD's

  1. #226
    Join Date
    Oct 2007
    Location
    Indiana
    Posts
    1,978
    It's so good to hear from you again, Rohrer. I am so sorry about your pain, but it's good to know the SI joint injections helped. Ah, yes, thrush... I developed a bad case of it back in college when I kept getting strep throat and tonsilitis, over and over, so was on antibiotics. They can kill everything and allow thrush to thrive... My throat/mouth looked so white!

    Regarding your feet... mine do that too. I sleep with a small (baby sized) pillow down to rest my heels on (plus a pillow under my knees) and hope for the best with the sheets. They sell something that I've wondered about-- not sure if they work or are comfortable or not, called night splints. I know I saw one that kept your heel elevated a tad to prevent pressure, plus is a little longer than your toes, to keep the sheet from touching them. Here is one I found on amazon, but is not the one I'd seen before. I don't know if spending that much is worth trying it out or not. I'm ok with my pillow and try to keep my toes pointed straight up so nothing touches the tops of them (90º angle). http://www.amazon.com/Pro-Tec-Night-...t+for+sleeping

    I still have swelling and need to have an ultrasound. From what I've read, this is something that happens with CMT (for some) because the muscles aren't working well enough to send the blood flow back "upstream" and so it leaks and pools. They are still swollen in the morning and often my big toes are numb when I first get up. Better get that done!

    All the best--Susie
    67 and plugging along...
    2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
    5/4/07 posterior spinal fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
    Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

    Corrected to 15°
    CMT (type 2) DX in 2014, progressing
    NEW 10/2018 x-rays show spondylolisthesis at L4/L5 - Dr. DeWald is monitoring

    Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

  2. #227
    Join Date
    Mar 2010
    Posts
    2,764
    The swelling issues are CMT related? It's been getting worse the older I get. Wow, I'm learning so much from you!
    I can't take gabapentin because I gained a gallon of water! It got between my ankle bones and made it very painful to walk. I literally couldn't fit my feet into any of my shoes. I have long skinny feet and they got very fat. From what I've read, CMT isn't supposed to be this virulent. Maybe it's that "unknown" mutation on the section of the gene that causes the worst form of CMT or a combination of both mutations. As it stands, they don't consider me a CMT patient. We just treat symptoms as they crop up and get to a level that I can no longer tolerate.

    Right now they are trying to figure out how to help me swallow. They want me to puree all of my food. I said I'd puree it with my teeth! There is an enzyme in your saliva called amylase that starts the digestive process of breaking down starches into sugar. So the longer you chew, literally the more nutrition you get from your food. I don't want to bypass that process unless it's absolutely necessary. My dad was able to "eat" until he died, although he did have to go to puree the last couple of years. I was supposed to have an internal ultrasound procedure this week that I had to be under general anesthesia for, but the nurse gave me the wrong day and time. My aorta is pushing against my esophagus and the sphincter between my stomach and esophagus is very narrow. Water doesn't even go down very quickly and can back up. They want to make sure that it's "just" a muscle spasm and not scar tissue or something else. They've ruled out a tumor and such as I explained earlier. I'm just bummed that I have to wait another two weeks. Botox to the esophagus is off the table now because it has to be repeated so often and can cause scar tissue, so I'm told. My other options are balloon dilation, which is stupid to try on a sphincter in my opinion, or surgery. I'd let them try the balloon dilation first, of course, before consenting to any form of surgery. I might just live with what I've got for as long as I can.

    Everything else just seems so much like ALS and there's no test for that. I can be walking normally and my legs will just get weaker and weaker until I'm hanging on to a wall or door jam hoping not to fall until someone rescues me! I don't leave home alone without my walker. If that were to happen I could sit down. If my legs were completely paralyzed where I couldn't push myself, then I would just call one of my sons to take me home. Fortunately it's never happened in public anywhere except at the doctor's office after receiving certain medications. Lidocaine is a biggie if I get enough. But it did happen one time, but I was surrounded by family and friends at our gathering. So lots of help available! I could never get by with a walker that didn't have a seat and wheels and breaks! My arms are getting weaker, too. It's ironic because it seems that the more active I am, the worse it gets! I have a whole gym at my house and am afraid to use it. I keep telling hubby that I'm going to get back to it so I can know for sure. But if it IS doing damage, I'll be in trouble.

    I'm glad you found a solution with your feet. I can't put pillows under my heels. It would make it tighter under the covers. I sleep with my feet folded inward and flat most of the time. I know it sounds weird, but my feet have naturally taken that position since I was born. They wanted to brace my feet and legs when I was a newborn and my mom wouldn't let them. So the doctor told her to put my shoes on the wrong feet. All that did was confuse me when I became school-aged! I walk normally with my feet straight until the weakness sets in. Then I'm pigeon toed and knock-kneed (my legs are straight it's just the way they turn).

    Thanks for keeping up with me! You've actually given me a lot to think about and ask my doctors about. It's just the gradual paralysis that really scares me because eventually you lose your core muscles and can't cough. That's how my dad died. They never offered him a chair he could use with his mouth or a tracheotomy when he had trouble breathing. They didn't even do range of motion on his arms and his elbows fused. THAT infuriated me! I wish I had lived closer. It just wasn't possible and I have a sister that lives down there in AZ close by. There were insurance matters and doctor matters that weren't properly handled. It was a mess. He couldn't get transport to his doctor because he lived one block out of his insurances transport route! So once my tiny step-mom couldn't get him into the car... no more doctor visits except a hospice doctor that saw him once or twice a year. Then he said he could go on forever the way he was and kicked him off hospice within two months of his death. Fortunately, he was able to get hospice with a different company. But they came in and took his bed, hoyer lift, oxygen, washable moisture pads, and every piece of equipment that was "theirs" and left him sitting helplessly in a chair. Grrr... Now I'm getting angry! The new hospice people got there that evening with new and very inferior equipment including a very hard mattress on the bed, which I think was a crank bed (not quite sure) where he used to have a mattress that would inflate air in alternating spots to reduce his bed sores. I think she did get another one, but again wasn't as nice.

    Sorry I got off topic. I might die from this, but NOT like my dad.

    Have a good day. I feel better after venting.
    Rohrer01
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  3. #228
    Join Date
    Oct 2007
    Location
    Indiana
    Posts
    1,978
    I'm SO SORRY about the rotten deal with your father. Yes, you needed to share that with us. It is so unfortunate when people are viewed more as objects. It must have been very difficult for all of you to watch the unfairness and harsh treatment of his situation.

    As for us, whether it's CMT or something similar, many factors come into play. I am going to put a few links on here, although you may have read all this before. But that is how I came up with the swelling being a symptom of sorts... I've read it in more than one place, and I try to stay with legitimate sources. One of these is from a person (Linda Crabtree) but she seems to be published in medical circles. Take them or leave them as you want.

    http://www.lindacrabtree.com/cmt/fee..._article3.html

    http://www.ninds.nih.gov/disorders/p...neuropathy.htm

    http://www.hnf-cure.org/podiatrics-a...ymptoms-treat/

    http://www.ohsu.edu/xd/health/servic...neuropathy.cfm

    You can see, especially from the more lengthy ninds/nih.gov article that CMT (and related peripheral neuropathies) can affect all the different nerve types- motor, sensory, and even sometimes autonomic. (I still remember, from my comparative anatomy class in college, the little sayings to help you remember the order (On Old Olympus Towering Top A Finn And German Viewed Some Hops - the first letter is what the nerve name starts with, and then whether they were motor, sensory, or both-- some say marry money but my brother says bad business marry more). Ha ha. The other widely accepted name for CMT is hereditary motor sensory (peripheral) neuropathy, and occasionally also affect the central nervous system.

    I, too, occasionally have trouble swallowing. I even did way back in my early 30s and had it checked out... the ENT said it was muscle tightening. I don't know now what is what. But I get a coughing fit sometimes just from breathing and food and/or water sometimes don't want to go down. I guess we'll explore this added adventure but not with a lot of enthusiasm! It is what it is.

    Your foot story reminded me of my youngest daughter. She was born with feet that curved in some, called metatarsus adductus. Looks like you're pigeon-toed but it's actually your metatarsal bones that are curved. They said at that time (she's 30 now) that if we casted her feet before they ossified, it would correct that. But you had to do that by about 18 months or else they would be "bone" and would need to be broken in order to do a fix. So when she was walking around 1+, she had plaster casts on both feet. She managed to run around pretty well with those! Then we had to buy some orthopedic shoes that looked like sturdy sandals but with a curve going opposite of what would be normal, so like wearing your shoes on the wrong feet, as suggested. She also had flat feet and we bought custom orthotic inserts for awhile, but boy, they were expensive! She is fine -- ran track and cross country and seems to have no problems. I always thought her foot problem happened because she was so big (9 lbs. 10.5 oz.) and I am very short torsoed... so there was no where for the feet to go but to wrap around in a strange way. Now I wonder.

    Take care. Keep us updated as you find out more.
    Last edited by Susie*Bee; 02-12-2016 at 03:47 PM.
    67 and plugging along...
    2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
    5/4/07 posterior spinal fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
    Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

    Corrected to 15°
    CMT (type 2) DX in 2014, progressing
    NEW 10/2018 x-rays show spondylolisthesis at L4/L5 - Dr. DeWald is monitoring

    Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

  4. #229
    Join Date
    Mar 2010
    Posts
    2,764
    Susie,
    I get hiccups when my food doesn't go down. That means I get the hiccups a LOT. I'm a muncher since my tummy is twisted and doesn't hold that much food. Thanks for the links. My neurologist says it's muscle disease, but CMT is listed as one of the diseases on the Muscular Dystrophy Association's website. They don't call it MD for "muscular dystrophy" anymore. They call it MD for "muscle disease". It's funny how terminologies change over the years. They have just found too many diseases, including neuropathies, like CMT, that affect the muscles. That's why the change. I read it somewhere, not sure where because I was reading so much.

    Anyway, I'm going to try to upload some new, eh hem, radiographs and an MRI from 2014 and 2015. Eeek, I'm slow!

    I hope you're doing well!
    Rohrer01
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  5. #230
    Join Date
    Mar 2010
    Posts
    2,764
    I say "new" because the x-rays are from 3-2015 and the MRI is from 9-2014, Eeek! Sorry, but you can all see for yourselves if I remember how to do this. LOL

    cropped March 2015.jpg
    cropped sagittal 2015.jpg
    freaky MRI 2014 cropped.jpg
    cropped MRI blown disc 2014.jpg


    I put one more in here to show my L5/S1 that some lady I saw said wasn't blown. I have the sliced view of it, too, but my markings didn't come through so many people might not be able to tell where it's actually in the canal (no actual spine down that low) and pinching some of the nerves in there AND restricting the outlet of the nerve on the left, actually touching it on one side. She must have been showing me something from years past because I never saw what she showed me on this set of MRI's. I hate it when people mess with you because they don't want to deal with it. They get PAID to take care of this.

    By the way, I am going to make an appointment with the chief neurosurgeon about my whole situation with the aorta and sphincter putting pressure on each other along with my twisted stomach. All this GI stuff is caused by the scoliosis. How do I know that my angina isn't caused from pressure on the aorta? It's pretty close to the heart right there. Looking at those MRI's opened my eyes quite a bit. I have bone spurs on C3/4 and C4/C5 both restricting my spinal canal. The top one looks like it's just touching the cord. And they said it was mild? The MRI revealed that my spinal cord is really pinned to the side of the canal in the T1-T3 area. I don't know how you folks with huge curves make it. Maybe it's WHERE the curve is? Still, after all of these years of looking at the forum and asking my doctors, no one has EVER seen a curve like mine. Keep in mind when you look at these that the highest curve goes to the LEFT. It may not look that way on the pictures.

    Also, I measured the distance of my spine to sternum. It varies between 4 to almost 6 cm. My heart isn't even under there anyway. So if someone tried CPR on me I would die. There seems to be great vessels and bronchial tubes there. The heart really takes up the lung space on the left. It's really weird looking. I can see my right carotid artery really stretching across as it goes up my neck. Cool things those MRI's are. On the right side the spine is directly under the right lobe of my liver. Woooo

    Enough talk about what I saw. Here is what you guys get to see!

    Enjoy!
    Rohrer01
    Last edited by rohrer01; 03-15-2016 at 02:19 AM.
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  6. #231
    Join Date
    Mar 2010
    Posts
    2,764
    Here are the coronal x-rays from 2005 to 2015. You will see the progression much more viewing them this way. Notice that in 2013 the apex of my primary curve shifted from one level above my clavicle (collar bone) to being even with the collar bone. That was around the time I had just started getting Botox injections. I haven't counted vertebrae to see if it is the same one or not. It could be that the clavicles have dropped a bit by not having so much muscle bulk. You can see the muscle mass that I had on the left shoulder is noticeably GONE. My clothes fit much better now.
    2005.jpg
    2010 radiograph.jpg
    2010 radiograph.jpg
    cropped March 2015.jpg

    That was a LOT harder than I thought. I forgot to crop out my personal information and then every time I tried to post these here it would say invalid or be a duplicate. Let's hope I got it right. I previewed it and it worked then. Let me know if you have any trouble viewing and I'll see what I can do.

    Good night everyone. I'm exhausted!
    Rohrer01
    Attached Images Attached Images
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  7. #232
    Join Date
    Mar 2010
    Posts
    2,764
    I don't know why that 2013 is there at the bottom. I didn't put it there and I can't get rid of it. At least it's cropped. It's just another duplicate. It doesn't show up when I preview my message and when I try to edit it's listed below with no way to remove it. Please ignore it.

    Nighty night... (sleepy face)
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  8. #233
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,335
    I understand your frustration with uploading these things. I recently had to give up when I couldn't get a file to be < 100 kb (or whatever the size limit is).

    Wow you have a very high curve! I can believe that is painful.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  9. #234
    Join Date
    Mar 2010
    Posts
    2,764
    With the MRI showing the disc herniation, you have to look toward the spine to see the disc material spilling over. I have one MRI slice that shows the edges are bone on bone and the other, as I mentioned shows the disc matrix spilling into the canal space. I just chose not to upload those ones as they aren't as easy to read. Maybe I'll show the bone on bone one. At least the whole disc isn't sitting on bone, just the edges. But still painful.

    This is why I don't know how a spinal fusion would go. The increased weight of the hardware would definitely exacerbate the lower back pain.

    I also noticed that the SI joint that hurts the worst has a gap between the ilium and sacrum. I noticed that on someone else's x-ray who was also complaining of sciatic pain on one particular side.
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  10. #235
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,117
    Rohrer

    I see your progression.... Your neck looks so painful....it actually hurts my neck.

    Jay on SSO in England was fused up high and into his neck.....the surgeon did a strut graft, which is a rare thing these days. I believe they fused him from T10 up to C4. He has a bit of kyphosis.....

    In the past, I have mentioned how I was ready to move to San Francisco for my surgeries....Of course, that was many years ago before we had a scoliosis specialist here in little old Reno. I think that its important that you pick the right surgeon from the start and if moving is part of that, its important. Many have traveled in the past, flown in and flown back, but this doesn’t make things easy. Melissa is a good example who was done in NC, and was given up on until she moved to Southern California and found Dr Bederman. If you have several things on your plate, a move “might” be worth entertaining.

    Having 100 specialists within an hours drive makes things easier.

    Ed
    49 yr old male, now 61, the new 61...
    Pre surgery curves T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  11. #236
    Join Date
    Oct 2007
    Location
    Indiana
    Posts
    1,978
    Quote Originally Posted by rohrer01 View Post
    Susie,
    I get hiccups when my food doesn't go down. That means I get the hiccups a LOT. I'm a muncher since my tummy is twisted and doesn't hold that much food. Thanks for the links. My neurologist says it's muscle disease, but CMT is listed as one of the diseases on the Muscular Dystrophy Association's website. They don't call it MD for "muscular dystrophy" anymore. They call it MD for "muscle disease". It's funny how terminologies change over the years. They have just found too many diseases, including neuropathies, like CMT, that affect the muscles. That's why the change. I read it somewhere, not sure where because I was reading so much.

    Anyway, I'm going to try to upload some new, eh hem, radiographs and an MRI from 2014 and 2015. Eeek, I'm slow!

    I hope you're doing well!
    Rohrer01
    Thanks for the response, rohrer! Yes, I've read a lot about CMT in the MD site, but had not even noticed the change in the "D" word! I think CMT was originally included because even though it is nerve generated, it affects the muscles because they atrophy-- and with many, this begins with babies and tiny tots. Some of the muscular problems are extremely so and heartbreaking. I have seen so many surgeries (many repeatedly), AFOs, and wheelchairs on the CMT facebook site!

    I also cannot eat very much at one time. Never more than 1/3 to 1/2 of a normal helping. (Half a hamburger or grilled chicken sandwich, etc.) I am "fed up" (pardon the pun) with the ups (mostly) and downs (very few) caused by my medicines they try me on. One caused a weight gain of 25 lbs. in 3 months, none of which I've been able to take off. Then I recently was put on a different one and gained 10 more. I already have healthy food choices and don't eat much. It's the exercise that is difficult, but then I don't have as much energy, have arthritis, and as you know, weight-bearing exercises aren't very good for CMTers. And a gym is at least 30 miles away for me, so swimming would be difficult. Aughhh! Plus I know extra weight causes more problems, so it's a vicious cycle. I went from a size 6-8 a couple years ago to probably a 16 now. I hate to go shopping! Up and down is not good. I am quite depressed about this.

    I was impressed by your radiographs although I am not good at reading them except at a fairly basic level. I thought we almost looked like a mirror image in one-- the one you added afterward-- as I compared it, but I am probably missing seeing things. Your neck curve starts sooner, but not by much (I think) and yes, it looks painful. It is an area that I have always had a problem with, but not to your extent... And even now, being fused to T2, sometimes my neck bothers me, but I think I have arthritis there. I often wonder if my neck is the cause of my migraines, as the pain often travels down my neck and into my back. Here is my x-ray that "at a glance" reminds me of a mirror of yours (the 2013 one)-- our ribs, the curve (although that is not my major curve) but maybe you (or someone else) can help me understand the differences. http://i244.photobucket.com/albums/g...20x-rays/3.jpg

    I feel so sorry for your plight and all that you are going through. Know that I am thinking of you and praying for a solution of some kind.

    I am doing "mostly" ok. I get by and count my blessings. I will see my scoli doc sometime this summer and he doesn't know about the CMT part yet. That should be interesting (smile). You take care and please know that you mean a lot to me. -Susie

    Also, there was a lady several years ago that had her big fusion surgery and then shortly after that needed cervical fusion also. She seemed to do ok. She had a blog I used to follow... Anyone remember her name?
    Last edited by Susie*Bee; 03-16-2016 at 10:34 AM.
    67 and plugging along...
    2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
    5/4/07 posterior spinal fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
    Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

    Corrected to 15°
    CMT (type 2) DX in 2014, progressing
    NEW 10/2018 x-rays show spondylolisthesis at L4/L5 - Dr. DeWald is monitoring

    Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

  12. #237
    Join Date
    Mar 2010
    Posts
    2,764
    Quote Originally Posted by titaniumed View Post
    Rohrer

    I see your progression.... Your neck looks so painful....it actually hurts my neck.

    Jay on SSO in England was fused up high and into his neck.....the surgeon did a strut graft, which is a rare thing these days. I believe they fused him from T10 up to C4. He has a bit of kyphosis.....

    In the past, I have mentioned how I was ready to move to San Francisco for my surgeries....Of course, that was many years ago before we had a scoliosis specialist here in little old Reno. I think that its important that you pick the right surgeon from the start and if moving is part of that, its important. Many have traveled in the past, flown in and flown back, but this doesn’t make things easy. Melissa is a good example who was done in NC, and was given up on until she moved to Southern California and found Dr Bederman. If you have several things on your plate, a move “might” be worth entertaining.

    Having 100 specialists within an hours drive makes things easier.

    Ed
    So here are MRI's of my neck from 2010 and 2014. You can see the progression of arthritis there in only four years. It looks like there will soon be some major compression of my spinal cord at C3/4 and C5/6. I know I said on the other thread that I said C4/5. That is because that is what the doctor told me. He later could not find any compression at C4/5 because it's at C5/6!

    It hurts to put even the slightest pressure on my c-spine. I don't get zaps or tingles. But, I dare say anyone that pushed that hard would get an involuntary push right back unless my arms went numb, then it might be a kick!

    2010:
    cervical 2010 C5 6.jpg Notice C5/6.

    2014:
    cervical bone spurs 2014.jpg Notice C3/4 and C5/6. The higher one seems to be worse.

    Do you or anyone else know what they do for these when the bone spurs go toward the spine and not away from it? I can't think of how they could even reach that area... :-(

    Rohrer01

    The attached image is one that I found in the 2010 collection that looks like a bulging C3/4 disc. The 2014 one looks like bone spurs around where the disc was bulging. I'm not a radiologist. But in 2010 they couldn't capture them both in one slice like they did in 2014. It's been about a year and a half since the 2014's so I don't expect that much has changed. But I am having symptoms in my right forearm, but these are recent. There's a lot of spasms and cramps. This also goes along with my unknown MD.
    Attached Images Attached Images
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  13. #238
    Join Date
    Mar 2010
    Posts
    2,764
    Quote Originally Posted by titaniumed View Post
    Rohrer

    I think that its important that you pick the right surgeon from the start and if moving is part of that, its important. Many have traveled in the past, flown in and flown back, but this doesn’t make things easy.
    Having 100 specialists within an hours drive makes things easier.

    Ed
    Unfortunately and fortunately I live in the hub of several great places to go. Minneapolis, MN, Rochester, MN, Madison, WI, Chicago, IL, Ames, IA, and St. Louis, MO is a bit farther but doable. So I live in the most central location to some of the best surgeons. My insurance limits me to ONE doctor or facility because of an HMO. They consider only ONE of these facilities as their "center of excellence" as they call it.

    Moving isn't an option. The only place I would move to is Oregon and there is only one good doctor there, Dr. Hart, from what I'm hearing. I'm sure he's pretty busy and very hard to get in to see. Southern California is out. Too many earthquakes. I lived on the AZ border and had some of their tumblers knock things off of my shelves. My sister lived in the city of the epicenter of the last "BIG ONE" back in the 90's. She left and NO turning back.

    My hubby has a good job and we just refinanced our home to make it more handicap accessible. So we're stuck for awhile. Besides, I really would only live in a town on the Oregon coast that's not in a tidal wave zone, which many are. The real estate is outrageously expensive there. Real estate here is cheap. So even if we got a great price for our home, it wouldn't be a drop in the bucket for something out west. My grandmother was from Coos Bay and I just love it out there. I was born in Portland and lived in Vancouver, WA in my younger years. Many a good memory going down the PCH to visit grandma. Took a vacation out there a few years back and hubby and I almost didn't come home. We actually looked at some real estate prices and about choked. In Vancouver, the house my parents had built in the 70's was the nicest in the neighborhood. A cheaper rendition on the same street was for sale at $250,000!!! My old house would be far more than that. I honestly haven't looked at Coos Bay recently. But I'd have to travel to Seattle or SF to see a doctor IF I could get insurance that would cover me. Maybe when hubby retires. But I'm afraid I'll be too far gone with the MD before that happens.

    So do I risk it with the one doctor? Maybe he's better now. I talked to a little old lady that was fused by him. She needed a full fusion because she's an avid skier (lots of skiing here, pppbbbbt, LOL), so he left L4 down undone until she couldn't take the pain. She was in for her revision and she just loved him! He'll probably just tell me no again, anyway. Maybe it's because he's uncomfortable?
    Last edited by rohrer01; 03-16-2016 at 11:35 PM.
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  14. #239
    Join Date
    Mar 2010
    Posts
    2,764
    I'm just updating my thread.

    I got approval from insurance company to see Dr. Folgeson in Rochester, MN. Waiting on appointment.
    I also had my first facet joint injections. These were the easiest of the three types I've had for those of you contemplating injections. I was found to be pretty arthritic on the lower left L5/S1 facet joint. Normally, with my injections, my leg pain immediately goes away and comes back as the Lidocaine wears off. Not so with this type. Although the injection sites still hurt this morning.

    So the three types that I've had by rank of painfulness: SI, epidural (one incident of an intern touching a nerve), facet.

    Rohrer01
    Last edited by rohrer01; 06-22-2016 at 11:18 AM.
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  15. #240
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,117
    Rohrer, I am following....sounds like good news.

    In regards to your fears about earthquakes, and tsunami’s, I had a post written up last night about my fears while diving that included sea bass with laser beams on their heads.....then again, you don’t see too many of these so, not really a concern.....I try not to worry about these things. 93 people were struck by lightning in India in one day, and out of 1.3 billion people, I guess it’s a numbers game. Just trying to figure out why they were all playing golf at the same time? He he

    Be sure to let us know how it goes....

    I even found a photo of a sea bass! Sometimes you have to wrestle these guys when they attack. I try not to worry about it.

    My posts include eccentric comedy when I am in pain....I guess its my way of dealing with the ups and down’s of scoliosis....

    Ed
    Attached Images Attached Images
    49 yr old male, now 61, the new 61...
    Pre surgery curves T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •