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Thread: On the verge of a mental breakdown...

  1. #46
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    That is a new one. I can't believe he took so long to look at your x-rays with all the pain you were having. I sure hope this relieves your mind but I think a second opinion is a very good idea just to be sure. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  2. #47
    Join Date
    May 2009
    Posts
    3,745
    hey fierce
    sooooo glad to hear no rods are broken!
    i have heard (from a doctor)of bones being "stronger" than expected....but not that strong! hope the additional opinion gives you no surprises...and that you heal without any further incidents!

    jess

  3. #48
    Join Date
    Mar 2010
    Posts
    2,755
    That's good news! I've been lurking on your thread, too, waiting to hear your news. That's a really weird explanation. Maybe that's all he could come up with since he maybe doesn't really know what the POP was??? Hang in there!

  4. #49
    Join Date
    Oct 2009
    Location
    PA
    Posts
    798
    Quote Originally Posted by fierceliketiger View Post
    his secretary did say she had tried to pull them up MANY times but the files were not compatible with her computer.
    Luckily (and shockingly to me!) I have NO broken rods (as of a month ago).

    Apparently I have ridiculously strong and dense bones (I have been told this before by my neurosugeon who did my lamenectomy/lipoma removal in 2006)....Until the screws have worn a slightly larger "hole" it sounds like they will continue to do so and be "uncomfortable" until then.
    ...
    Hardly know what to say. I think YOU are doing all the right things, tho', including the 2nd opinion. It really sounds promising, compared with your worst fears (which I confess, I had come to share - partly because he sounded like such a dork. LIkewise, the whole facility with that bit abt the vacation, etc.)

    I doubt he would dare take a chance on misinforming you abt something so serious, though. Let us know about the other doc's thoughts. Boy, that explanation sure makes us sound like tinker toys, doesn't it?

    I feel a LOT better, though on your behalf, still upset about their negligence/insouciance about your situation. (Might one ask this [censored] doctor's name? He IS an SRS member, right?

    PS Did he apologize at least, about his delay in reading your films/ getting back to you? Probably, even if he had the impulse, he followed the legal dictum "Never apoloigize, never explain."
    Not all diagnosed (still having tests and consults) but so far:
    Ehler-Danlos (hyper-mobility) syndrome, 69 - somehow,
    main curve L Cobb 60, compensating T curve ~ 30
    Flat back, marked lumbar kyphosis (grade?) Spondilolisthesis - everyone gives this a different grade too. Cervical stenosis op'd 3-07, minimally invasive

  5. #50
    Join Date
    Sep 2007
    Location
    Geneseo, NY
    Posts
    133
    Tiger,
    You could PM our forum moderator Linda Racine. She might know if your doctor's story holds water, has been observed with patients in the clinic where she works.
    1966 fusion in Buffalo of 11 thoracic vertebrae, with Harrington rod

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