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Our Ben has just had his scoliosis surgery date confirmed - May 12/2010 @ the Edmonton Stollery Hospital.
Ben is an 11 yrs with special needs child ... he has Smith Magenis Syndrome (SMS) plus his severely growing scoliosis. He doesn't know what is going to happen so it makes it a little easier with him not worrying or freaking out over it. Dad & I plus our other 3 kids are freaked enough for everyone anyway... very scared but extremely excited that Ben might be reasonably straight & pain free soon.
A quick thank you to everyone who writes their experiences on this forum... it sure helps those of us who are waiting understand & come to terms with our situation & feelings, it seems like such a lonely place when those around you have no idea how it feels before or after.
Will post his progress as we go. Talk to you soon
Ben's mom Nancy
Ben is an 11 yrs with special needs child ... he has Smith Magenis Syndrome (SMS) plus his severely growing scoliosis. He doesn't know what is going to happen so it makes it a little easier with him not worrying or freaking out over it. Dad & I plus our other 3 kids are freaked enough for everyone anyway... very scared but extremely excited that Ben might be reasonably straight & pain free soon.
A quick thank you to everyone who writes their experiences on this forum... it sure helps those of us who are waiting understand & come to terms with our situation & feelings, it seems like such a lonely place when those around you have no idea how it feels before or after.
Will post his progress as we go. Talk to you soon
Ben's mom Nancy
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