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Thread: Nothing goes right !!

  1. #1
    Join Date
    Jan 2010
    Location
    United States / Florida
    Posts
    74

    Nothing goes right !!

    Hey Im Sydnie,
    I was scheduled to get the fusion with the cidaver bone on March 22 this year. That didnt work out because of my breathing . I have restrictive lung disease and i have 41% breathing compasity out of 80% and that morning i showed up and they did testing on me and they said she is weezing on and off we will have to post pone her surgery and when my surgen walked on in the room he had a excited look on his face to do my surgery because he was happy that i was going to be fixed and than he seen me sitting there upset and the happy look on his face just was wiped out with a dissipointed look but we sat there talking he and I were talking we rescheduled the surgery to april 12 and that is close that is this monday BUt I got sick with brawncitis and my breathing was down and I went to go do a check up with my plumenary specialist and he said there was no way I could have that surgery this week so my mother called the surgeon and there was another dissupointment to me and my surgeon and now its to july and if the curve grows thats not going to be good because when I first had my fist check up with him ever he looked at my xrays and said he was amazed how i am even walking but to me and everyone its a miricle but now im just waiting for my surgery ........ I am still very nervous about the surgery because of the cidaver bone theres going to be alot of pain involved with the surgery but also a happy patient and surgeon ! but has anyone got the cidaver bone replacement done? and how bad is the pain after surgery???and is there anything that you remember hurt thd most????


    sincery ,
    Sydnie
    Last edited by Syd; 04-08-2010 at 12:03 AM.
    [COLOR="Cyan"]59 degree curve birth
    110 degree curve now
    Sydnie SueAnn ^.^ Always open to help xo

  2. #2
    Join Date
    May 2009
    Location
    Topeka, KS
    Posts
    397
    When you're talking about cadaver bone are you talking about bone grafting? If so, I had some bone grafting - some bone taken from my hip and some using cadaver bone. I've had some hip pain post surgery, but not too bad.
    Rita Thompson
    Age 46
    Milwaukee Brace wearer for 3 years in childhood
    Surgery Mar 1st - 95 degree thoracic curve
    Surgery by Dr. Lenke, St. Louis, MO
    Post-surgery curve 25-30 degree

  3. #3
    Join Date
    Jan 2010
    Location
    United States / Florida
    Posts
    74
    hey rita !,
    im having someone elses bone replaced from mine they are taking out some of my curve from my back and they are puting the bone replacememnt is a donor bone from someone else . But the replacement isnt bad??
    [COLOR="Cyan"]59 degree curve birth
    110 degree curve now
    Sydnie SueAnn ^.^ Always open to help xo

  4. #4
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,901
    Syd, I think you have this exactly opposite.

    Cadaver bone SAVES you the potential pain of having bone harvested from your iliac crest. I have been told by folks who have had this done that the ongoing (years later) pain associated with this bone harvesting is worse than the pain that was associated with their scoliosis.

    As a result, I was ready to refuse to allow the surgeon to harvest bone and was going to insist on the exclusive use of cadaver bone for my kids.

    Luckily, they don't do the bone harvesting any more on kids as far as I can tell and I didn't have to take a stand.

    Good luck with your surgery.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  5. #5
    Join Date
    Jan 2010
    Location
    United States / Florida
    Posts
    74
    Thank you for the help ! Thats good that you refused because my mom had a hip graph and she is in so much pain today . Have a nice week thanks again for your addvise!
    [COLOR="Cyan"]59 degree curve birth
    110 degree curve now
    Sydnie SueAnn ^.^ Always open to help xo

  6. #6
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,901
    Quote Originally Posted by Syd View Post
    Thank you for the help ! Thats good that you refused because my mom had a hip graph and she is in so much pain today . Have a nice week thanks again for your addvise!
    No I didn't need to refuse the harvesting because the surgeon didn't intend to do it. Sorry if that wasn't clear.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  7. #7
    Join Date
    Jan 2010
    Location
    United States / Florida
    Posts
    74
    Oh its okay you were clear what you said i just didnt understand a little because i am still learning all the medical terms haha but But the surgeon made a good dission though because they would be in alot of pain if not and im happy everything went well! Have a nice week
    [COLOR="Cyan"]59 degree curve birth
    110 degree curve now
    Sydnie SueAnn ^.^ Always open to help xo

  8. #8
    Join Date
    Oct 2009
    Location
    Sydney, NSW, Australia
    Posts
    16
    I hope everything in the future is bigger, brighter and much more better for you! Good luck with everything and I hope no more complications arise before your next scheduled surgery date!
    Best wishes for the future,
    Sincerely,
    ShortEb
    10/09/09 - Diagnosed with Double Curved Scoliosis
    Curves degrees day before surgery (13th of May):
    T4-T10 = 89 degrees
    & T11-L4 = 75 degrees
    Surgery successful on the 14th of May, 2010
    Curves after surgery measured:
    T4-T10 = 34 degrees
    & T11-L4 = 25 degrees - Now 30 degrees as of 2012

    Sydney, Australia
    http://s182.photobucket.com/albums/x...09-09_1456.jpg
    ^ Picture of my curves before surgery

  9. #9
    Join Date
    Jan 2010
    Location
    United States / Florida
    Posts
    74
    Thank you so much that means alot to me ! And I hope things are going good for you to
    [COLOR="Cyan"]59 degree curve birth
    110 degree curve now
    Sydnie SueAnn ^.^ Always open to help xo

  10. #10
    Join Date
    Dec 2009
    Posts
    36

    So sorry to hear it was postponed a 2nd time

    Hi Syd.

    Sorry to hear you got bronchitis. That's a huge bummer because I know you were really looking forward to getting the surgery over with. Now you'll be thinking about it more.

    Be sure to talk over your thoughts with your Mom and Dad. The school social worker would be a good person to talk to also.

    John's surgery is 10 weeks away in June. He asks about the pain and how it will be managed at least once a week. We are starting a new list of questions to ask the doctor the next time we see him. Maybe you could do that.

    As for the bone grafts, maybe you'll bone grafts from someone super strong!

    We were cheering for Butler as soon as Michigan State got knocked out of the tournament. I know you were too.
    Thoroughly disgusted with people in this group

  11. #11
    Join Date
    Jan 2010
    Location
    United States / Florida
    Posts
    74
    Hey Mito mom,
    I hope everything goes great with John's surgery !! That is a really good idea to make a question list because I always forget all of my questions I wanted to ask I had a question is John getting the cadivar bone too? and i was so bummed out when michigan didnt got to the tournment trust me Nice hearing from you hope you have a good week!
    [COLOR="Cyan"]59 degree curve birth
    110 degree curve now
    Sydnie SueAnn ^.^ Always open to help xo

  12. #12
    Join Date
    Dec 2009
    Posts
    36

    Good question

    Hi Syd

    Hope your bronchitis it doing better.

    I don't know if they are using cadaver bone on John. That's a question we'll add to our question list.

    John and I were talking tonight and some of his friends are asking him questions so we decided to start writing those down too. Some of those questions are good too so that might be a good idea for you too.

    We are watching a replay of the Tigers game from this afternoon. We won 9-8. It was an exciting game.

    Have a good week.
    Thoroughly disgusted with people in this group

  13. #13
    Join Date
    Jan 2010
    Location
    United States / Florida
    Posts
    74
    hey Barb,
    Thanks I have gotten so much better I love the idea of the questions of the list of things to ask! I hope everything goes great for john I told my mom that john is getting the surgery to and we are both will be praying for him and go tigers haha have a nice week!
    [COLOR="Cyan"]59 degree curve birth
    110 degree curve now
    Sydnie SueAnn ^.^ Always open to help xo

  14. #14
    Join Date
    May 2006
    Location
    Near Houston, TX
    Posts
    495
    Hey Syd

    Sorry to hear about your setback. It's tough to wait so long only to have to postpone again. Hopefully, the 3rd time will be the charm.

    BTW, guess it's ok for us old folks to post here again.

    Take care of yourself.

  15. #15
    Join Date
    Jan 2010
    Location
    United States / Florida
    Posts
    74
    Hey sherie ,
    Hopefully the 3rd time will be the lucky okay to go for surgery I just really want to get the surgery out of the way Hope you have a nice week!
    [COLOR="Cyan"]59 degree curve birth
    110 degree curve now
    Sydnie SueAnn ^.^ Always open to help xo

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